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tipnpat

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Everything posted by tipnpat

  1. tipnpat
    Jersey Mike's subs has an extensive gluten-free selection. They are not a "trained" gluten-free store but most of their meats are gluten-free and chips. They use Frito-Lay chip products and both the Jersey Mike's website and the Frito-Lay website have detailed allergen info available. I get a sub in a tub when I go. You just have to ask to watch for cross...
  2. tipnpat
    I think it's all so variable no matter what. Some people are seronegative and biopsy positive and vice versa. Some still have damage after a year or two gluten free. I did read an article on the Pillcam which looks at the entire length of the small intestine rather than just the duodenum. It's a tiny camera the size of a pill that you swallow and it takes...
  3. tipnpat
    The elevated prothrombin time could be due to an abnormal Vitamin K level. Vitamin K is a fat soluble vitamin and these are often skewed in malabsorption cases such as celiac, IBS, chron's leaky gut, etc. You need to be certain your vitamins/supplements are gluten free. Vitamin E's are frequently derived from wheat. Dairy is my drowsy...
  4. tipnpat
    I'm not sure what that meant either but there should be 5 tests in the panel. Most docs will say that only one or two are necessary but those one or two are very specific to intestinal gluten sensitivity. There is some research indicating that gluten sensitivity can be present without intestinal involvement (as most of us here know already). For this the...
  5. tipnpat
    This is strictly an observation because I'm a watcher and thinker. I have no scientific facts on which to base this or prove it. I just wondered if anyone has ever seen symptoms come and go as if the antibodies moved in to one organ, damaged it, had their fill, and then moved on to another organ? It might sound ridiculous. I've just observed it in my...
  6. tipnpat
    What a horrible ordeal for you! At least you have a concrete answer now and they can't dismiss you anymore (that isn't to say that they won't), but their tails are between their legs, I'm sure.
  7. tipnpat
    Believe me, I'm not a believer in studies and "the facts." I think it is all skewed and so thick in numbers and circumstances that it can't possibly be absolute. I just meant that if he published something then it would at least be more open for debate. As it is, he's just dismissed. I'm a believer. Tip
  8. tipnpat
    I started to question all of the positive results I was seeing with Enterolab. I fully expected my two sons' tests to come back positive. But my older son who has IgG food intolerances (including wheat) testing completely absolutely negative and he is not IgA deficient. My other son's were positive. The numbers were only mildly elevated but Dr. Fine's...
  9. tipnpat
    I'm in Asheville, NC!
  10. tipnpat
    I'm not sure who your post was directed at. I'm not offended if it was at me because I agree with you. I don't think we're trying to join a private social club. I think we're trying to be taken seriously. So far, the only people who have taken me seriously have been people on this forum. That's just the reality and since I need people to take me seriously...
  11. tipnpat
    This sheds some clarification on how to explain to my husband why I'm still worried about our son even though his ttG was normal. He has almost no Vitamin D despite supplementation and it was actually lower this summer after sun exposure than it was this winter prior to supplementation. My husband thinks I'm looking for a sickness that isn't there and I...
  12. tipnpat
    Hi, I was the one with the "RA" question. When you said RA gene I was thinking along the lines of DQ and I thought RA was another gene locus or something like that. Now that rheumatory arthritis is spelled out I'm thinking - duh! This was a very interesting and fascinating post. It was timely as I had just gotten my glutenfreeindy newsletter by e-mail...
  13. tipnpat
    They are indeed interesting. I did genetic testing with Enterolab on myself and then Kimball genetics on my two boys. What I liked about Enterolab was that they tell you each allele no matter what it is. Kimball only tells you whether or not DQ2 and/or DQ8 was detected. I was second guessing Enterolab's credibility and so that was why I went with Kimball...
  14. tipnpat
    Has anyone out there ever tried the Biocard home testing kits? They test for ttG. They are not available in the US but of course, the UK, Canada, and Australia have them.
  15. tipnpat
    I feel the same way. It just seems so important to me but everyone in my family, including my husband look at me with tried patience. In the beginning I said to myself that being on a gluten-free diet was a lifestyle choice for me and a diagnosis would not change anything. But, it DOES change whether or not anyone believes you or thinks you've just gone...
  16. tipnpat
    I used to believe there was a difference but now I think gluten intolerance is just early detection and a name for inconclusive tests that have proven to be unreliable. There are many instances of negative blood work but positive biopsies and vice versa with the biospsy or blood work becoming positive in a year or two. If you feel bad when you eat gluten...
  17. tipnpat
    On my last panel of "routine" blood work I had an elevated CRP. I had had a recent gluten exposure and was in the middle of a migraine. I told my PA this but she didn't seem to think there was an inflammation connection and talked me out of doing a Celiac panel. Her words were, "I think your health care dollars could be better spent." Also, I had...
  18. tipnpat
    Are you in college? Student health centers usually do them for very cheap. Your local health department can do it inexpensively. You could apply for medicaid. Just because you use it once doesn't mean you'll be on it forever. They have temporary authorizations for certain things. You never know...
  19. tipnpat
    What is the RA gene? I'm only familiar with the HLA's. Tip
  20. tipnpat
    Exactly!!! My friend isn't like that, though. She was very relieved to have an answer and we've shared information. I must've worded that wrong. I just meant that I'm speculating and part of it could be paranoia on my part. I just stumbled upon all of this. It's hard to tell people who didn't know you when you were a wreck that you used to be that way...
  21. tipnpat
    Hi, A friend of mine's 13 month old was just diagnosed. I believe his blood tests were iffy but he had fat in his stool. On his endoscopy the GI said it looked normal but the bx came back for all three markers of Celiac. Wouldn't it be nice if Celiac didn't fall under just GI docs. I guess it has to since it deals ultimately with the intestines but...
  22. tipnpat
    You are completely correct and I could definitely change my mind. I've been eating gluten for only 24hrs now and I'm starting to feel it. I just want to be taken seriously. But, what should it matter what other people think, hugh? I'm not going to change arrogant doctor's ways by doing this am I? In the end when it's all negative I'm still going to remain...
  23. tipnpat
    I went to that site and it was very interesting. It makes me wonder how many people who get severe migraines have Celiac disease. JFK had Addison's disease which can be associated with celiac. I've read that a lot of people get migraines. Maybe that's reaching a bit. But, that isn't to dismiss that there is such thing as a Migraine disease. Mine are...
  24. tipnpat
    Sorry, I guess I did take over. I almost started a new thread and I guess I should have. My apologies as well.
  25. tipnpat
    I know, I know. I can't completely explain it. Like one alternative medicine practitioner I see said to me when I asked about blood tests, she said she thought my health care dollars could be better spent. Then, she shrugged and asked me, "So, what would be different? Would you get a member's card or something?" I think I'm thinking I need a concrete...
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