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nicolebeth

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nicolebeth

  1. nicolebeth
    I've had that happen with various alcoholic beverages. Wine, beer, etc. I think it's something else, but could be a FODMAP reaction if celiac has been ruled out. (Beer and wine contain FODMAPs.) I do better with spirits. good luck!
  2. nicolebeth
    Just saw this! We always take (in a cold bag): boiled eggs, carrots, sliced peppers, and sliced cucumbers (or mini-cucumbers). We'll usually have a bag of potato chips, Lara bars, and Justin's almond butter packets. Usually, we'll have fruit as well. We haven't found too much gluten-free in the airport beyond coffee or more potato chips. We do tend to...
  3. nicolebeth
    Both of those for my son. He doesn't technically have celiac because he's low IgA/low IgG (and had an incomplete biopsy at 5). By 7.5, he was often in a bad mood, irrationally so, and complained of stomach aches that doubled him over. He wasn't growing. "Perfect" at school. As soon as he went gluten-free, he had no more pain. He never realized that his...
  4. nicolebeth
    This is what we're going through, too. My 8yo stays home at least once a month (this is an earlier thread). I think we're going to try removing dairy, but I do have to speak to him about this. He has never resisted removing gluten. I think he would resist moving dairy. He was not lactose intolerant according to the test. (We know it could be casein-intolerance...
  5. nicolebeth
    This GI did not make us do an endoscopy. We're not ruling it out, but want to wait until my son is old enough for it to show up, if that is the case. Or, see if he gets to the point that he accepts being gluten-free. (We don't have very good compliance with him since he's 3.5--his symptoms don't seem severe when he begs bread off of another child when we...
  6. nicolebeth
    Thank you, I just saw this and your other reply! I'm sorry that your 8yo has been going through so much! I hope that, with time away from the offending foods, things improve even more for your son. We like our son's GI in that he acknowledges the existence of NCGI. On the other hand, we think our son actually has celiac (confirmed celiac and autoimmune...
  7. nicolebeth
    I will check with the teachers today. What was odd is that he enthusiastically (for him) did his HW the previous evening. Usually, this happens on a Monday...as if he just needs an extra day to recover from the weekend? (I'm not sure how that will play as he gets older.)
  8. nicolebeth
    Thank you; I will try keeping a food journal for him. (We do it before he sees the nutritionist, but apparently don't do a good job since she thinks he eats nothing! In this case, getting portions wrong shouldn't be a problem, though--I can see that knowing what he's having should help us.)
  9. nicolebeth
    I think that's a good rule of thumb. Previously, we have worried less about cross-contamination with him (he doesn't seem to have issues after having gluten-free pizza from regular restaurants, for instance--that's also why it's hard to pin this on dairy). Every product that the woman had with her was gluten-free; it was my understanding that her products...
  10. nicolebeth
    Thank you--we don't buy much, if any, soy either. If he has any, it's just what's present in gluten-free products (cookies). I think Udi's bread is soy-free. He occasionally has edamame (but it's infrequent). For milk, he has almond milk. We use coconut oil or olive oil, and buy coconut or almond ice cream for the house (he'll have dairy when not at home...
  11. nicolebeth
    Hello! My 8yo son is home at least once/month for stomachaches. Most recently, it was about 2.5 weeks ago (he is home again today). The last time, he may have had a low-grade fever. We have noticed no fever today. We went to the doctor last time, and I can bring him today (I suppose) or see if he could have bloodwork, but he doesn't really seem "sick...
  12. nicolebeth
    We did go through something similar with my second son. He had fissures as an exclusively breastfed infant (which definitely seems odd, looking back--obviously, I was eating something that didn't agree with him and caused much straining). And, then, despite using "elimination communication" (which was successful with his brother), he was in so much pain while...
  13. nicolebeth
    St. Peters sorghum beer was quite good, I thought (and I normally like Guinness, which couldn't taste more different). But, the Beer Advocate apparently thinks it's very poor: Open Original Shared Link
  14. nicolebeth
    I recommend continuing with breastfeeding. This is going to help her gut more than anything. Plus, she'll be miserable with the weaning (as will you). Doing so abruptly is bad for her health (stress, less healthy gut, greater risk of illness, etc.) and yours (future health, your stress, and, more immediately, mastitis). I would recommend doing what...
  15. nicolebeth
    I think most corn is a problem for me--corn starch, corn chips, actual corn. I can have a few chips. But, if I try to have them another day, it's not good. So, it's cumulative. Anyway, I try to avoid it, for the most part, since I'm not good with limiting myself once I start eating it. Udi's whole grain bread is generally ok (corn syrup solids), but I'm trying...
  16. nicolebeth
    Animal Parade are good--no sugar, dyes, gluten-free. There is iron in the multi (along with Vitamin D), and there is a separate Vitamin D option. When we remember, we give both. Open Original Shared Link
  17. nicolebeth
    What about the Hyland's teething tablets? They're usually marketed to babies, but if the tooth hasn't fallen out yet, why not give it a shot? My kids seemed to calm down from having those when they were teething, anyway. (Otherwise, I'd go with Tylenol, arnica tablets, or motrin.)
  18. nicolebeth
    Update: just saw the GI doc today. The plus: he strongly believes in NCGI. On the other hand, it's difficult since the doctor is so sure there's no way my son has celiac. He doesn't think the Vitamin D being low means anything in NE after winter (my son's Vitamin D was higher the last time it was checked). He doesn't think the iron is too low. He's not concerned...
  19. nicolebeth
    EMA-negative Gliadin DEM IgA <10 (<20) (negative) Gladin DEM IgG <10 (<20) (negative) TTG IgA AB <1.2 (<4.0) (negative) TTG IgG AB 1.2 (<6.0) (negative) The rest are above. Thank you.
  20. nicolebeth
    Thank you very much! I have made him an appointment--not until May 15, unfortunately. We are pretty sure he should stop eating it, but perhaps I can speak to someone at the office before doing so. My older son also has low IgG; I suppose it's possible that DS2 has low IgG as well. (That would also affect the IgG test result, right?) Thanks again...
  21. nicolebeth
    Thank you to everyone who responded. We did get DS2 tested. He may have been "gluten-lite". Any results that stood out are below: Total IgA: 21.6 (34-108) His brother is also low Total IgA. Iron: 52 (65-175) Vitamin D: 22 (33-100) TSH: 3.993 (0.550-4.780) I know this is "normal", but if that were my TSH, I wouldn't be able to get off the couch...
  22. nicolebeth
    That can be connected to thyroid. I'm hypothyroid. If I take too low of a dose of meds, I have so many PVCs that I can't relax into sleep at night. My doctor (after an EKG) expressed some amazement at the number since I think she thought I was exaggerating. Less than a week on the higher dose, and everything stabilized (I also had a normal echo to confirm...
  23. nicolebeth
    Do you know if it's casein or lactose? Our household can tolerate butter (at least, the pastured butter) well, but we seem to have issues with milk, cream, yogurt, cheese, etc. Some of the substitute products taste better with actual butter (like the Chreese). Amy's also does a boxed dairy-free/gluten-free. We found it at Whole Foods. It got mixed reviews...
  24. nicolebeth
    Perhaps then she should just add some regular matzah to this week's repertoire. It should be in most stores, and it definitely has gluten. Good luck!
  25. nicolebeth
    Unless she is specifically eating gluten-free, most Passover foods have matzah meal, which is wheat. Standard matzah also contains wheat (it just doesn't contain yeast). So, she may be good to go after this week.
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