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nicolebeth

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nicolebeth

  1. nicolebeth
    Thank you--that's a very good point. I guess the task has seemed a bit lacking in fun, especially today (as I'm sure everyone here knows), and I was trying to figure out why we're doing it (if they're going to recommend endoscopy anyway). Perhaps this would rule something out for them, though I'm not sure about that. I do remember something mentioned about...
  2. nicolebeth
    May I ask: why do they insist on stool tests first? Children's made such a good case for an endoscopy (could be celiac or intestinal allergy, his very slowed growth indicates that there will be damage, and we'll want to have proof of results for when he's a teenager and diet-resistant). My son eats everything we eat, and has not travelled abroad to...
  3. nicolebeth
    We just tasted the Follow Your Heart--finally. I don't think it tastes like sour cream. It wasn't horrible. But, my husband and son liked it (especially with strawberries). I think it would be ok in small amounts. I do remember making a vegan sour cream at one point with silken tofu--the key is the lemon juice in it to give it the sour flavor. I...
  4. nicolebeth
    I agree, but for different reasons. I used to be told my thyroid status was "normal"--and then found it was over 3.0 (no wonder why I was exhausted!) Similarly, my Vit. D levels were 38-39--also "normal", but not ideal. The lab value ranges of "normal" don't always match up to a healthy level. We also had this happen with our son's total IgA. His...
  5. nicolebeth
    I can't answer to the celiac part of this, but highly recommend taking supplemental Vitamin D. Getting your levels between 60-70 is ideal for fighting off illness. Mine were 38-39, and I got what I thought was mild H1N1 (here in the Eastern US, it was going around in late October). I've since brought it up to 62, haven't had a cold since. My kids were...
  6. nicolebeth
    My kids like Follow Your Heart cheese. My husband likes it, too. I don't, but I'd rather eat no cheese than eat it (or, eat it in very sparing amounts). We have Follow Your Heart sour cream in the refrigerator, but haven't actually tried it yet! (The Skinny "adult female dog" authors are the ones who recommend this brand of cheese on their Web site. ...
  7. nicolebeth
    We haven't ever frozen it. What I have noticed with the spaghetti and linguini that it needs to be stirred, even when cooking the "environmental" way--just letting it sit in the boiled water (but with the stove turned off). We have noticed clumps on day 2 bringing it out of the refrigerator. The other types of pasta (shells, etc.) are lower maintenance...
  8. nicolebeth
    I definitely recommend trying other options before switching to formula. Breastfeeding can be protective against the onset of celiac disease, among many other things. Open Original Shared Link Your baby is six weeks old; weaning to formula at this point might be more stressful. Obviously, the hypoallergenic formula does work best for some families (I'm glad...
  9. nicolebeth
    The breastfeeding, itself, can protect against the baby getting celiac. Open Original Shared Link You wouldn't be deliberately exposing your baby to gluten; it sounds like it will be harder for you if you get accidentally glutened! (You can also nurse lying down next to the baby, if you do have a period of extreme discomfort--hopefully, someone else...
  10. nicolebeth
    These are vegan, not what you're looking for, but I've made them when we've had company with serious gluten and egg allergies. And, no one else complained! The Vanilla Gluten Freedom Cupcakes from Vegan Cupcakes Take Over the World, by Isa Chandra Moskowitz & Terry Hope Romero. I've seen the recipe online here and there--just search for the name under...
  11. nicolebeth
    If the candy says "pareve", or "parve" it's not supposed to have dairy in it. Many items will not have soy during Passover since most observant American Jews don't eat soy on Passover as well. (But, if a candy is made in Israel, it could be different; the rules of soy are custom-based, and different from place to place. I would look at the ingredients...
  12. nicolebeth
    Thank you! We're going to ask to do those tests as well. I was confused by all the tests, not realizing there was an AGA test. Is the AGA not as common to do for some reason? I think my kid would have passed out with any more blood drawn that day, so it's just as well they didn't do it then. (Oh-my son is over 3 (almost 5, actually), but perhaps it...
  13. nicolebeth
    Thank you. No, we hadn't thought about the skin biopsy. The rash really looks like eczema (we had read that rashes in children could appear to be like eczema). At times it has been worse (after antibiotics, for example), and perhaps those rashes more resemble a DH rash? All the photos I've seen online, though, look nothing like his rash. I did find...
  14. nicolebeth
    Thank you for the responses! That is interesting to hear that it is a low total IgA; the pediatrician wanted to emphasize how it wasn't really low, just slightly low, etc. (In fact, she's been unreachable since I first talked to her Thursday, and we got the reference range from the lab, ourselves, yesterday.) Symptomatically, we do see that our son...
  15. nicolebeth
    Hello, I haven't posted here before, but have learned a lot of very interesting information. My 4 1/2-year-old son was recently tested for celiac. To preface, his symptoms have been: occasional loose stools (with undigested food), eczema since he was a baby (most recently disappearing, but coming back worse in January, enough to impact his eyes and face...
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