Jump to content

OBXMom

Advanced Members
 View Profile  See their activity

  • Posts

    134

  • Joined

  • Last visited

  • Days Won

    2

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by OBXMom

  1. OBXMom
    RiceGuy, thank you for sharing your memories of a child's perspective. Your opinion is a little different than some of the others, and I wonder, do you think getting practically pushed onto the bus made you any more resilient or gave you a stronger work ethic? Hard to say, of course, but just wondering.
  2. OBXMom
    Ursa & Tamara, we have eliminated dairy, soy and corn, which we determined were causing problems through an elimination diet. All he eats now are rice products, meat & poultry, eggs, potatos (only a bit), and fruit leather. He only drinks apple juice & rice milk. There are other foods he might be able to tolerate, but he refuses to try them...
  3. OBXMom
    Hello, neighbor! We are actually in the same hometown. So you know I know what you mean about the pollen. Do you go to R.O.C.K. events? There has only been one since we were diagnosed, but it was fun. You know, we have a bit of the-never-sick-on-the-weekends thing, too, but I think it actually makes sense. It is much easier to overcome feeling bad for...
  4. OBXMom
    My second grader with celiac disease is home from school yet again. Last week he missed most of the week, and this week he went in late one day, and I took ear drops to school another couple of times to help him get through the day, because he refuses motrin and tylenol. Today even the playdate he would have had after school was not enough to lure him to...
  5. OBXMom
    Some of the most difficult times in my life where when my daughter was having explosions at about the same age as your daughter. They were terrible - I remember picking up my toddler and locking the two of us in the bathroom, singing to him as loud as I could to drown out her screaming and banging. I can't say that they were due to gluten at this point...
  6. OBXMom
    Debbie, it sounds like you have really been on top of things to have figured out so much - Nathan is very lucky to have you for a Mom. My son was diagnosed with ADHD and auditory processing issues which mostly showed up in public, stimulating environments. I got so many sypathetic looks that I wanted to have sweatshirts printed saying, "Don't feel sorry...
  7. OBXMom
    Thank you for sharing your incredibly journey - I have been thinking about everything you said but have not had a chance to respond due to PC issues before now. I have thought so many times about your story, and thought, I really wish I was a documentary film maker to tell this and other incredible stories. (And I promise I have never had that wish before...
  8. OBXMom
    I just posted a question to you on another thread that you answered here . . . So sorry to hear about your miserable time. It does seem like an injustice, though, that people who already have to deal with celiac issues also get struck with the bugs the worst. Very unfair. I would have loved to see your ice breaking up - here in the South we haven't had...
  9. OBXMom
    I wonder, are people with celiac more susceptible to tummy bugs, or does it just seem like it because of the injustice of it all?
  10. OBXMom
    April, thank you for sharing this. My son is celiac and still having issues, and eosinophilic esophagitis has been mentioned. What treatment will your son be receiving for the EGE? I printed out your email, and will make sure I have my little guy's blood vitamins checked as well.
  11. OBXMom
    I wish I could say I had answers, but we are still very much working through the same thing. I knew that we needed to do an elimination diet, and I was delighted when the team at our Children's Hospital said the same thing, and offered to guide us through it with a nutritionist to help. We started with blood and skin allergy testing, then for 10 days my...
  12. OBXMom
    Cheri, what is astonishing is to see how Carleigh had her skin problem from birth, and it still took so long to figure it out. I am so sorry she had such a terrible time. Now that she is so much healthier, is she happier, too? I hope so.
  13. OBXMom
    Thank you so much, this is great. Now I know what I'll be doing tonight after the kids are in bed, and American Idol is over.
  14. OBXMom
    Wow! I can't believe you self diagnosed and had such a dramatic turnaround. I am so happy for you, and encouraged, too. You know, it is funny, I googled my son's symptoms, too, a number of times, and came up with celiac, but he had had a negative blood test when he was two so I discounted it. Then our GI doctor did another celiac test without telling...
  15. OBXMom
    Thanks for sharing, Dandelionmon, THREE clothing sizes, that is really incredible. I know what you mean about the stomach flu, we used to think my little guy got it all the time, now we know better. You guys are a few months ahead of us - hope we join you in the healthy club soon.
  16. OBXMom
    Thanks, Patty, we will hang in there. . . It is great that your daughter is sleeping better, it'd be worth it to be gluten free for that reason alone, wouldn't it? For years my son woke up every 2 hours, and it really took its toll. I only found out recently that that was probably a celiac side effect. I hope everything continues to go great for you both...
  17. OBXMom
    Jerseyangel, your story is amazing, touching, to hear how the diagnosis gave you your life back. Thank you for also letting me know that it took a while to get it right, because it seems like that is where we are now, trying to figure out the other food intolerances. What foods do you have to avoid?
  18. OBXMom
    Rachel, thank you for sharing how well things are going for your children. Too funny that your son took a bite from each hamburger - I guess he figured he'd better make the most of his opportunity. My son at 8 is the most cautious little person in the world, at least foodwise, having learned from experience that food can be painful. A 2 year old is whole...
  19. OBXMom
    If anyone has had any really good results from their gluten free diet, I would love to hear about them. I am normally a glass half full type, but it is getting tougher to maintain a hopeful state while we continue to try to get my little guy feeling better. Second hand accounts are fine, as are good outcomes for celiacs of any age. Just hoping all the...
  20. OBXMom
    Yes, my son threw up. I thought he just kept getting stomach viruses, and once when I was talking to a nurse on the phone, she said, that doesn't sound like a virus. A light bulb went on, and I knew it was something else. At our next GI appt., I said this has been going on his whole life, we've got to figure it out, and that is when the doctor started...
  21. OBXMom
    I am so sorry you had this result, to do so much, and find it may not be enough. We will be doing a follow up blood test for my son in a month or so and I am already nervous about it. Another thing to check is medications. I was shocked to find that there was gluten in tums. Pre-diagnosis, every time my little guy complained, I gave him one. There are...
  22. OBXMom
    Nancy, I found some great information through the link you posted, and am posting Dr. Lewey's response to this question below in case anyone else is ever searching for the same answer. Lisa, thank you, too, it is good to hear that regular GERD can cause that same stuck-food in the throat. Hope you continue to feel better. From article by Dr. Lewey...
  23. OBXMom
    My 8 year old with celiac disease has been having a tough time with a nauseous feeling in this throat after eating, and a feeling that food is getting stuck. This started after he was taken off of the prevacid he took for years for reflux and also his zyrtec to better track allergic symptoms during his elimination diet. The problem began when we added soy...
  24. OBXMom
    Thank you all - I didn't know about washing grains, and I'll start doing that. The corn is an excellent point, since we are still working on identifying other food sensitivities. I appreciate the help- Jane
  25. OBXMom
    My son is home from school for the third day, after throwing up after eating a bowl of plain Mahatma Jasmine rice for breakfast. Has anyone ever had a problem with this? I wondered another time if it had made him sick, but it just seems so unlikely. Could it be that the guidelines in Thailand, where this rice was processed, are not as strict? Or is it...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.