Jump to content

OBXMom

Advanced Members
 View Profile  See their activity

  • Posts

    134

  • Joined

  • Last visited

  • Days Won

    2

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by OBXMom

  1. OBXMom
    It is great that your little fellow is doing so well. After my son was diagnosed with celiac, our immediate family has all done the bloodwork - why not, it's so easy. My daughter and I were negative, but I am still going a step further and finding out what enterolab can tell us, to be sure. My daughter is seeming so much happier since we have altered...
  2. OBXMom
    Letting go of guilt . . . you're right, I'll try. And the CDF sounds awesome, but as an east coaster, unfortunately not a possibility for me. Please post anything interesting you hear and reviews of any great samples - I'll be watching. Hope its great.
  3. OBXMom
  4. OBXMom
  5. OBXMom
    Thank you for posting this information, it is good to learn. What I am wondering, though, is whether the same statement could be made for "gluten sensitivity" as for celiac disease in relation to the tests. In other words, maybe a positive stool test doesn't correlate to a strict celiac diagnosis, but indicates other problems with gluten. (Or maybe I...
  6. OBXMom
    Patty & Christine, Thank you for sharing your feelings and stories, they really do help. Especially in the last couple of days, when my little guy has been very sick, and I've been wondering how he could possibly have gotten any gluten, or if that is even what is going on. I hope you and your children have a good week- Jane
  7. OBXMom
    My son is a bit older (8) but after 4 months on a gluten free diet I found myself asking the same questions. My son's energy level was good, and he did have a growth spurt, but his stomach still hurt lots of the time. We have been on an elimination diet to see what other foods are harming my son. First an allergist tested him for many foods, and he only...
  8. OBXMom
    I am feeling very guilty all of a sudden, as I read more and more posts and see how much I have been missing. I feel so guilty about all of the times I didn't pay enough attention to my son before his celiac diagnosis (for a morning tummyache - "Just eat something, sweetie, you're probably just hungry") and I don't want to make any more mistakes. We are...
  9. OBXMom
    I am not experienced in reviewing lab results, but I do remember a startling moment with our GI pediatrician. He had told me that the only definitive diagnosis for celiac comes from the biopsy, and then in the hospital waiting room following my son's biopsy told me that he had never, never once in his whole career had a patient with positive blood results...
  10. OBXMom
    Although I have nothing in the way of tests and results to offer, I do understand the great feeling of having a responsive doc. I'm happy your doc is listening & working with you, and hope you feel much better soon.
  11. OBXMom
    You are doing a great job advocating for your child, and I hope your school is very responsive. One day I forgot to send a lunch in for my child (had packed it ahead and left it in the refrigerator) and found it just in time to rush it to the school for lunch. My second grader was standing in the cafeteria line when I took it to him, looking panic striken...
  12. OBXMom
    That's a good idea - and my insurance would pay for a biopsy, but not the enterolab, too. BTW, your picture with your adorable little ones is very sweet.
  13. OBXMom
    Boy, do I wish I had discovered all of you 4 months ago. (Actually maybe I did but I felt too flustered to take the time to read anything . . .) Thank you all for the thoughts. I am definitely going to order the book, it is a subject I need to learn more about. My daughter has keratosis pilaris, not DH, at least her pediatrician seems pretty sure. I...
  14. OBXMom
    Thank you so much for letting us know how things have worked out. It is great for us to hear such a terrrific outcome, as we are the beginning of our celiac journey. My son has always been around 25% in height and weight, which honestly never bothered us, but it has been amazing that in his few gluten free months he has jumped to 45%. Can't wait to pass...
  15. OBXMom
    I am hesitant to admit that I have no idea how one goes about a gene test. . .Would I start with my doctor? Or is there some helpful mail in lab? Thanks for the idea.
  16. OBXMom
    Thank you, Ursa, and may I ask another question, since you are obviously well informed? How long would I need to put my daughter on a strict gluten-free diet? She has already told me that there is no way she would do a biopsy (remember the anxiety) and the diet would be a hard sell, too. I might be able to pull it off with some very major bribes, though...
  17. OBXMom
    Thank you all for the suggestions and for the encouragement. I had not really considered that it is truly a blessing that my son is not tempted to try things that will hurt him. It is a very good thing to keep in mind. Hoping all of our little ones someday enjoy a wide range of healthy foods- Jane
  18. OBXMom
    Joanna, thank you so much for sharing with me about your son. It sounds like he went through a really tough time. It must have been encouraging to find that he only was allergic to eggs, in addition of course to the wheat issues. Do you remember if he had an immediate response to the eggs, or did it take a while to figure out? Also, how is your son doing...
  19. OBXMom
    Four months ago my son was diagnosed with celiac disease, and although he is the only one on a strict gluten free diet, when our family is together we all show support by only eating what he can eat. During this time, his older sister has had dramatic improvements in her behavior and outlook on life. She has received counseling for years and is on medication...
  20. OBXMom
    Are any of your children desperately afraid of trying new foods? Before he was diagnosed with celiac disease, we thought my 8 year old son was just the world's pickiest eater, but now we understand that he was in great pain all the time, and that his fears are the result of that pain. However, I am concerned now that his fears are so deeply entrenched...
  21. OBXMom
    My 8 year old son with celiac disease was not showing enough improvement of his GI symptoms after 4 months on a gluten free diet. Under the guidance of a children's hospital feeding clinic we have begun an elimination diet to explore additional food allergies and sensitivities. My son tests positive on blood and skin prick tests to many foods. I am interested...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.