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SilverSlipper

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Everything posted by SilverSlipper

  1. SilverSlipper
    If my daughter comes into contact with what I call "wet gluten" (shampoos mostly), she breaks out in a rash where the exposure happened. She's been tested for allergies and it's clean. No allergies. I understand that it's not medically possible, but if her shampoo has gluten in it, her scalp and back of her neck (part of her back also) breaks out in a blistery...
  2. SilverSlipper
    Thanks! We use Tide (which I think is gluten-free) and I use the liquid to make sure it dissolves.
  3. SilverSlipper
    Just let them know when you arrive. I believe that most dentist offices use gluten-free products, however, double check. I mentioned it to our dentist who had recently been to a conference where the topic was discussed. She said that all of their products are gluten-free. If you want, take your own toothpaste. My oldest daughter has autism and refuses their...
  4. SilverSlipper
    We use cloth napkins at our house for every meal. I was wondering if this is a bad idea for our daughter with Celiac? We wash them (cold water), regular detergent, machine or line dry. But somehow, it seems like a bad idea for her to be wiping her mouth with something that we have wiped our (gluten) mouths with (and I'll confess that the other kids sometimes...
  5. SilverSlipper
    Can you get a different gastro? The fact that he has quit growing is a huge flag for any doctor. One approach that I have found helpful when dealing with doctors is to tell them what I'd like for them to do. If I were in your shoes, I'd meet with a new gastro, hand over your copies of labwork, food diary and any other documentation and tell him that you have...
  6. SilverSlipper
    Thanks strawberrygm. When I first tried to send her lunches, I bought a laptop lunchbox ($$$'s) that she occasionally left at school, so I bought extra inserts (more $$$'s) and then tried to figure out lunch. Since we were dealing with some self-esteem issues (I guess that would be the word), I felt a lot of pressure to make her lunches look really 'cool...
  7. SilverSlipper
    Hi davidsmom, I waffle back and forth on school lunches. Last year was great, this year they have stricter rules which seem to complicate things. There was another kid with celiac at the school before we got there, so most of the hard work was done. They have a corner of the kitchen they prepare her meals and they have a dedicated cutting board just for her...
  8. SilverSlipper
    I've resigned myself that I may get a note about it and if so, I'll send in a reply detailing the fact that her medical condition makes things difficult and reinforcing that we stay on top of her schoolwork and she's otherwise healthy. I saw the vice principal today and he told me that he's going to look through her absences and if I wrote that it was due...
  9. SilverSlipper
    Our whole family eats gluten free. One exception is my oldest daughter (autism) has significant eating issues so she will eat differently than us on most nights. None of us could get used to bread, so we removed it completely from the house for three months. Upon re-introducing it to our celiac kid and our youngest daughter (6), they loved it. I baked it...
  10. SilverSlipper
    I feel completely alone and just a smidgen like a bad parent. I have three kids - my middle daughter has celiac. Our school allows 10 absences per school year that are excused by a parent's note. One of those is used each year when we go to the beach (yes, I know, bad me, but hey, the in-laws pay for the whole week-end, even the food!) - that's our only...
  11. SilverSlipper
    Yeah, I posted about it somewhere on here - perhaps under the Parents of Children forum? My Dad had called me right after the column on vegans came out to tell me that he would no longer accomodate my daughter's Celiac. I was upset and Dear Abby was one of the 'victims' of my temper. My main point was that one can be a gracious host and accomodate just about...
  12. SilverSlipper
    Thanks so much everyone!
  13. SilverSlipper
    Gotcha, I completely mis-read your post. I thought you were saying that if she were diagnosed with celiac disease you would still have her eating gluten. Sorry!
  14. SilverSlipper
    Hello CeliacKidMom - It took around three months for my daughter to start looking healthier and begin to gain weight. Probably six months into the diet was when we started seeing significant gains (significant for her age that is - about six lbs). She's still a very small child for her age, barely on the 'chart' that pediatricians love to show you. I do...
  15. SilverSlipper
    Lunabell, I'm so sorry, but I think I'm going to come across as critical and I don't mean it that way. I can tell that you already have a lot on your plate with your oldest child. I, too, have an oldest child with significant problems and I can also sympathize with the thought of squeezing in all you can before the end of the year. I wanted to clarify...
  16. SilverSlipper
    emaegf - No, he hasn't recently been tested for Celiac. He said that he was tested for it at the time of his diagnosis of Crohn's. When my daughter's bloodwork came back originally, we thought she would have Crohn's rather than Celiac simply because of family history. (Her original bloodwork tested positive for Crohn's, Celiac and IBS but the biopsy came...
  17. SilverSlipper
    I probably won't be of much help I'm afraid. My daughter's original blood work came back as positive for Crohn's, celiac disease and IBS. When the biopsy came back with celiac disease (not Crohn's), I asked about IBS. I was told that IBS pretty much goes hand in hand with these types of diagnoses but doesn't require extra worry on my part. Of course, I might...
  18. SilverSlipper
    I live in a very rural area. There are three grocery stores - a discount store, a wal mart and a piggly wiggly. The Wal Mart is the only one to carry gluten-free stuff. They carry Pamela's choc chip cookies, one type of rice cracker (that I think is 'accidentally' gluten-free rather than deliberately purchased as a gluten-free item) and the Betty Crocker...
  19. SilverSlipper
    When is the biopsy scheduled? Our experience is that they are done fairly quickly (within a week) of a positive diagnosis. If my child were that miserable, I'd call the doctor doing the biopsy and tell him that I wasn't going to put her in that much pain any longer and I was putting her on a gluten-free diet. My guess is that the doc will either try to...
  20. SilverSlipper
    Thanks Roda - after our middle daughter tested positive, we tested the others but neither had symptoms at the time. My youngest had a bad bout with a chest/cough virus thing about a month ago that caused her to miss 9 days of school (and was then followed by an ear infection). She has had stomach aches ever since (we used probiotics with the antibiotics)...
  21. SilverSlipper
    All three of mine are girls btw. Dixiebell - sorry I should have mentioned that my other two kids have had recurring issues with reflux throughout their lives - not constant but it's a reasonable thing to try. So far, we've had great luck with the school system making a gluten free lunch. I go in once a month and look over labels and talk with the lunchroom...
  22. SilverSlipper
    I have a 9 yr old with celiac disease. I have two other children - both have been tested for celiac disease and tested negative. My oldest (due to numerous GI issues) has had two upper/lower GI's done and both came back negative for celiac disease. My youngest (6 yrs old next week) was tested a couple of years ago and it was negative (blood test). Lately...
  23. SilverSlipper
    Cheese, I was going to suggest fruit and veggie trays (but then I saw the pre-packaged comment). Pretzels? (Subbing with a gluten free pretzel). Fun yogurt cups (probably too expensive depending on class size).
  24. SilverSlipper
    I have visions of (not sugarplums) but chaos dancing in my head...Really, a classroom of second graders mixing things? I predict a food fight. lol Although I'm not sure if there is only one bowl of batter - if so, I probably wouldn't be too worried, but if each child has their own thing to mix, that's too much for my comfort zone. I'd explain that flour...
  25. SilverSlipper
    My sweet little girl is going to be a Who from Whoville in the Children's Theatre play of Seussical in our town. I don't see any problem with the make-up since I can find products that are fine for her. To save me the trouble of looking through hair products and tearing my own hair out trying to decipher the ingredients, does anyone have any suggestions for...
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