SilverSlipper
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Everything posted by SilverSlipper
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ARCHIVED How Do You Forgive Yourself?
SilverSlipper replied to newmom07's topic in Parents, Friends and Loved Ones of Celiacs
I thought H. Kisses were safe? (Or was it something like a cookies n creme type?). To answer the question, over time I learned that self-forgiveness was necessary, not just for gluten infractions but for many things in life. I try to be a better person and learn from mistakes rather than dwell on them. I try to make it up to my daughter by letting... -
ARCHIVED What's For Breakfast Today?
SilverSlipper replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips
The kids and I had pizza! (and some halloween candy - we're getting a head start). -
ARCHIVED Is It Safe To Scope When Sick?
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
We saw our gastro today and he changed her medicine for her stomach ache again (she hates the taste of the other one). He said he was struggling to accept her negative diagnosis for Celiac Disease considering our family history and wanted to try another temporary gluten free diet to see if it helps. So, he wrote notes for the school and we're back on gluten... -
ARCHIVED Is It Safe To Scope When Sick?
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
Sorry for the double-post, it won't let me edit for some reason. I wanted to add that our doctor has diagnosed her with sinus infections and things like that, but I didn't gather that this was a big deal, more of a 'catch-all' for various stuffy noses and such. She has seen an allergist though and I would think looking at her sinuses and any potential... -
ARCHIVED Is It Safe To Scope When Sick?
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
We live in Alabama. She has chest x-rays when she gets sick to see if it's progressed to pneumonia (occasionally it has, but we typically catch it quickly). The allergy tests were done about six months ago and surprised everyone. The allergist had anticipated that she would have some seasonal allergies at least, but everything came back fine. The... -
ARCHIVED Is It Safe To Scope When Sick?
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
Actually, we've looked into asthma as well. (And honestly, other than the anesthesia questions, I'm open to ANY suggestions in regards to her health). Our pediatrician thought she had asthma and when we went to the allergist, they tested her and said she didn't have asthma, just some wheezing issues during illness. During her last 'illness' that triggered... -
ARCHIVED Is It Safe To Scope When Sick?
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
She is a carrier for Cystic Fibrosis but does not have it. I confess to wondering if we have a false result for that but our pediatrician seems sure that it's negative other than as a carrier. My daughter with Celiac was tested for CF first and she is also a carrier, but does not have it. When we took my youngest for allergy testing, they wanted to test her... -
ARCHIVED Is It Safe To Scope When Sick?
SilverSlipper posted a topic in Parents, Friends and Loved Ones of Celiacs
I know this is a question best left for the doctor to answer, but we are having one of those weeks that will be tightly scheduled. We see our gastro this week and I anticipate my youngest will need to have a scope (upper/lower) soon. This is not for my daughter with Celiac, it's for my youngest (tentatively diagnosed with IBS). She has daily stomach... -
ARCHIVED Gluten Worries At The Dentist Or Paranoid?
SilverSlipper replied to sleer's topic in Gluten-Free Foods, Products, Shopping & Medications
Our dentist told us last year that she had attended a conference where Celiac Disease was brought up. She wanted us to know that she uses only gluten free items (although most are already gluten free). Having said that, my daughter went to the dentist on Monday and by that evening was throwing up with diarrhea and stomach cramps so bad she couldn't walk... -
ARCHIVED Need Help With My Daughter's Sore Throat
SilverSlipper replied to Autumn Rook's topic in Parents, Friends and Loved Ones of Celiacs
Have you checked to see if she has any reflux? The sore throat could be a burning from the reflux. There are a number of over the counter products that you could check for a couple of weeks to see if it would help. Good luck -
ARCHIVED 8-Year Old With Celiac Disease .. No Idea Where To Go Next
SilverSlipper replied to Mom2CjJaedonEthan's topic in Parents, Friends and Loved Ones of Celiacs
Hi Mom2CjJaedonEthan, Have you taken him gluten free? If so, that's great! If not, the parents here are so knowledgeable and can help you through that process. Can you get a referral to a pediatric gastroenterologist? All the best... -
ARCHIVED First Sleepover
SilverSlipper replied to Roda's topic in Parents, Friends and Loved Ones of Celiacs
We have found that bacon and eggs are okay for her. (However, one's sensitivity may vary so another person may react). I usually don't get into the pan, etc discussion unless they are using a concerning pan (colander for example). I make sure to tell them that the food can't even share a plate with gluten containing items. I usually don't send bread as I... -
ARCHIVED First Sleepover
SilverSlipper replied to Roda's topic in Parents, Friends and Loved Ones of Celiacs
When my daughter spends the night, I usually call the parents and ask what they are having. I then explain her diet and ask if I can send a gluten-free tv dinner instead. They are usually relieved. If they are making bacon and eggs for breakfast, I tell them to go ahead. Otherwise I offer to send cereal (Lucky Charms is always well received if your child... -
ARCHIVED Time To Start Packing School Lunches Again
SilverSlipper replied to Darissa's topic in Parents, Friends and Loved Ones of Celiacs
I completely agree with KarenG, however, I had a thought regarding the school. Can you have your doctor write a note that you are doing a trial of gluten free to resolve whatever issues she's having and at least have the school help out, even if it's just to microwave her food? -
ARCHIVED Time To Start Packing School Lunches Again
SilverSlipper replied to Darissa's topic in Parents, Friends and Loved Ones of Celiacs
Juliebove, my daughter had a similar problem when her lunch time changed to the latest time. She kept having stomach aches around 10:45 every day. Her school allowed her to take a small bag of trail mix into class and eat it quietly at her desk. Your school would probably allow similar. I don't think it's an unusual request at all. GOod luck. -
ARCHIVED Time To Start Packing School Lunches Again
SilverSlipper replied to Darissa's topic in Parents, Friends and Loved Ones of Celiacs
The post from this site is old, but the ideas are timeless: Open Original Shared Link They always give me great ideas when I get stuck for what to send. My daughter eats lunch mostly at school (they cook it separately and gluten-free for her), but for field trips, spend the nights and snacks, sometimes I struggle. Good luck -
ARCHIVED Hand Washing Alternatives At School
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
The school prepares her lunch so lunchmats would only be helpful at snack time, but I may do that even though she has her own desk. That's a good idea to check the baby section for washcloths. Anytime I think of school things, I take what my ideal solution would be and temper it with how it would look in practice. Then I factor in teachers, class size and... -
My daughter was diagnosed her kindergarten year and we immediately began teaching her what she could and couldn't have and how to read ingredients. I can understand wanting to remove your kids from an environment of food they cannot have, however, Celiac is a life-long condition. They won't be able to do that forever and I'm not sure that removing them is...
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ARCHIVED Hand Washing Alternatives At School
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
I think soap and water is 'old school' way of thinking. Honestly, it never occurred to me to even ask about washing hands because I simply assumed that of course the whole class does. However, the invention of hand sanitizer has done away with that in schools it seems. I'd love to hear what schools are doing elsewhere. Here, you use hand sanitizer before... -
ARCHIVED Problems With Support Groups
SilverSlipper replied to Wise's topic in Introduce Yourself / Share Stuff
Perhaps Veruca meant that she was put off by those who self-diagnose and treat the diet casually. I think we've all met people who behave in that fashion. However, I also know some medically diagnosed with celiac disease who also do this. My step-mother has DH from celiac disease and only follows the diet when the rashes are about to drive her crazy. Even... -
ARCHIVED Hand Washing Alternatives At School
SilverSlipper posted a topic in Parents, Friends and Loved Ones of Celiacs
Like many of you, I'm sorting through back to school stuff for my daughter with Celiac. I realized last year that her class didn't go wash their hands before eating lunch or snack - they simply applied hand sanitizer. I told her that she needed to wash her hands, and she would, kind of. She didn't like being the only kid that had to go wash her hands and... -
ARCHIVED Tuscaloosa, Alabama?
SilverSlipper replied to Celestial's topic in Introduce Yourself / Share Stuff
Hi Celestial, I live in the Bibb Co area so not too far away. I'm not gluten free, it's my daughter with Celiac. However, our whole family is gluten free (with occasional individual cheats) for meals, holidays, snacks, etc. If you start a support group around there, I'd love to come. -
ARCHIVED School
SilverSlipper replied to samie's topic in Parents, Friends and Loved Ones of Celiacs
Our school so far has been great to work with. The cafeteria manager understood about cross contamination and they kept a separate (new) cutting board to prepare her food on. One specific person was assigned the task to make her lunch daily after the manager prepared the menu. I was given a copy of the menu a month ahead so I could double-check questionable... -
ARCHIVED Genetic Test
SilverSlipper replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
Thank you all for your replies. I'm sorry it's taken so long to reply. When I feel completely overwhelmed, I tend to run from thinking about a situation and this one has bothered me quite a bit. To answer a few questions, my oldest is severely affected by autism and seizures are something that we've always been told to expect. However, her seizures have... -
My daughter is the one with Celiac (although I did have some emotional moments at first trying to figure out what to cook!). Top thing for us would be the support of family and friends. When my daughter first received the diagnosis, I literally cried. I wasn't scared of a serious condition, I was upset that my whole way of cooking, shopping, etc was changing...