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SilverSlipper

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Everything posted by SilverSlipper

  1. SilverSlipper
    Unfortunately, I think you'll have to get rid of the wooden and plastic items. I can sympathize. We had to replace all of ours.
  2. SilverSlipper
    When my oldest was diagnosed with autism, we were subjected to many hurtful comments. There was much criticism aimed at our pediatrician, which upset me because he has always been our kids best advocate. One relative asked was it caused due to my drug use (which I don't do) or because we made homemade baby food rather than store bought (thinking the store...
  3. SilverSlipper
    I agree. Time for a family meeting. With two little ones, I can understand that it may be hard to work around what little kids expect these days (goldfish, oreos, etc). And, until you do a special diet, it can be very overwhelming and I'm guessing that is why your wife hasn't moved the house gluten free. You need duplicate items like cutting boards and...
  4. SilverSlipper
    Have you looked into reflux? All of my kids have had reflux issues before, particularly my oldest. Her reflux was so bad that at one point she was throwing up six or more times a night. There are over the counter reflux medications that can be crushed up and given to children (and there are some liquids that are prescription). I started sleeping in her room...
  5. SilverSlipper
    I am so sorry for your loss. I am glad that others have gathered around you and your family during this time. You will be in my prayers.
  6. SilverSlipper
    My youngest daughter (6 yrs old) has always tested negative for celiac disease. She has numerous digestive problems, mostly chronic stomach aches and diarrhea. Stomach aches are almost daily, diarrhea is a few times a week. At home, we're mostly gluten free, so she doesn't get it often. During school time, she had gluten daily at school. We tried a gluten...
  7. SilverSlipper
    My 9 yr old has celiac disease. She does very well (for the most part) speaking with adults about her celiac disease. In our school system, there are only two children with celiac disease and the other one goes to a school across town (very small area by the way). She has two different approaches (that I've discussed with her). If she's talking with someone...
  8. SilverSlipper
    I also wanted to mention that if you have strong cramps after being glutened, your doctor can give you medicine that can help with that. It seems to shorten my daughter's overall reaction as well. All the best
  9. SilverSlipper
    Raindrop, I'm sorry you are feeling so low. My daughter (the one with celiac disease in our family) has moments of sadness with and without glutening. I think if you were surrounded by more supportive people, it would help with this, at least to some small degree. We rarely eat at restaurants. There are a few that are knowledgeable about gluten and totally...
  10. SilverSlipper
    It depends on how you cook it. We eat cornbread quite a bit, but make it without wheat flour. I also thin it a bit and cook it like pancakes (basically corn cakes). Absolutely great for soup and veggie plates! But yes, if anyone ELSE offers cornbread, run far, far away! And realize that cornmeal and cornmeal mix are very, very different.
  11. SilverSlipper
    domesticactivist, I read your blog (well a good bit of it anyway) and all I can say is, "Wow!" and I wish you all lived next door! Kudos on getting everyone in (and out) of your household on a specialized diet. I wish you all the best. And yes, I'll let you know if our gastro says anything else that might be good to test for. I'll check on a nutritional deficiency...
  12. SilverSlipper
    Thanks everyone I guess I was mostly surprised (and a bit embarrassed) that such a big deal was made of it publicly. People frequently comment about how small she is and I like to let others know casually that we are aware of her size and her pediatrician is on top of things. My facebook comment was very much low key and I thought it was perfect. For others...
  13. SilverSlipper
    I have another daughter with a significant disability and sometimes I get absolutely sick of doctors, appointments and school systems. I keep a calendar with me at all times for scheduling and a small business card book to hold business cards from all our medical people. I used to keep a small notebook with me that contained notes from appointments and school...
  14. SilverSlipper
    Yes, definitely check to see what the problem areas are for supplies and then approach with a range of things you're prepared to do to correct it. If they see that you are looking into things for them (rather than demanding they check and fix), they will be more open. You approach it from, "I've checked into the school supplies and was thrilled to see that...
  15. SilverSlipper
    My daughter is low-weight for her age. She'll be 10 yrs old in August, is about 4'2 inches and 48 lbs. She typically drops on and off the growth chart. Our pediatrician has always been comfortable with the fact that she's growing, just not a lot, but she is growing - she's physically active (plays soccer) and does well in school (straight A's). Our previous...
  16. SilverSlipper
    Thanks - the school is behind in 504 plan meetings so I'll mention it in the fall when we meet. My daughter does wash her hands but it's a bit vague as to whether other people do or not. Thankfully, she is meticulous about avoiding gluten and once she knows problem areas, she resolves them. So, I'll talk with her first.
  17. SilverSlipper
    My daughter's classroom washes their hands after going to the bathroom, but in all other circumstances (including before/after snack/lunch), sanitizer takes the place of soap and water. Am I correct in saying that sanitizer doesn't "kill" the gluten "germs"?
  18. SilverSlipper
    Interestingly, my daughter rarely throws up when glutened, it's typically massive diarrhea for about two weeks. However, when she has straight gluten (half a bagel for instance), she throws up, gets confused for about 24 hours but nothing lingers. (Horrible stomach cramps for a couple of days though). So, maybe your son will be okay. All the best to you both...
  19. SilverSlipper
    Hi DivaMomma, My daughter attends school and will be going into 4th grade. She was diagnosed in First grade. I think you will find that many parents will react negatively to the things you are asking for (parents of typical kids that is!). As much as you want to protect and cherish your child, they want to do things for their kids (like cupcakes shaped...
  20. SilverSlipper
    My daughter was completely dry during nights and then started having tummy problems (which led to the Celiac diagnosis). She started wetting the bed during that time and I've always wondered if there was a Celiac connection. Our doctor prescribed desmopressin. Within a few weeks she was completely dry all night and hasn't had problems since. We started it...
  21. SilverSlipper
    I had a few bad incidents and finally lost my temper and wrote Dear Abby. lol What we've done since then is turn our house into the 'party place'. I love to cook and I can make some great knock-off's of family favorites. Of course, there's always someone's "family recipe" that can never be duplicated, but I ask that no gluten food be brought into our...
  22. SilverSlipper
    This may not help, but our GI prescribed hyoscyamine for my daughter to take whenever she became ill from a gluten infraction. Typically, a reaction knocks her out for about 7 - 10 days. The first two are usually in bed with stomach cramps, so severe she can't walk or sit straight. She literally moans in her sleep. The diarrhea is usually the main problem...
  23. SilverSlipper
    My daughter has had significant absences as well. We have a 504 plan in place to address this and as long as it's related to celiac disease or doctor excused, the school has no problem. When we realize that she will be home for a few days, the school sends home assignments (or at least what pages to read) and we work on it. It helps that I'm a SAHM. Also...
  24. SilverSlipper
    Richard, I understand your viewpoint. I agree that medically it's not supposed to happen. But, it does. Could it be something else? Absolutely. But we only see it with products containing gluten that are also wet. I have other kids with medical conditions so tracking this down to definitively say it's gluten is not high on my priority list (nor would I...
  25. SilverSlipper
    Our middle daughter has celiac disease. Our family, for the most part, is gluten free for family meals. Our oldest and youngest still get gluten at school and occasionally at home. Our youngest has been having a lot of tummy problems this year. It's not uncommon to walk past the bathroom and see her sitting on the toilet because she's constipated, or because...
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