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flutterby

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by flutterby

  1. flutterby
    I have heard several people mention that their Celiac manifested itself 'after getting the flu'. This was my case ... I had been having problems for months, but it wasn't until after I had a 3-Day fever/flu that I got so sick I was eventually diagnosed with gluten intolerance. Could this be the Flu acting as a trigger? Or could a high fever/flu-like symptoms...
  2. flutterby
    Agreed. See this video for more info: A lot of the times I have different reactions, depending on what else I've eaten. Even 1.5 years after going 'gluten' free, I felt great but had an episode of getting suddenly sick and having to go to the doctor, who told me ... be more careful with your diet! I was getting a lot of CC, apparently.
  3. flutterby
    I have had these problems too. They got substantially better after going gluten free, but only after a long time, due to the learning curve. Memory/concentration problems are one of my first symptoms of a gluten reaction. However, my doctor also told me that it's important to be careful as Celiac is suspected to be linked to M.S. HOWEVER: Some amount...
  4. flutterby
    Quakers has been known to have cross contamination issues. Also, Quinoa that is not listed as gluten-free may also have cross-contamination. Also, if you have had serious damage from celiac, I think (someone correct me if I'm wrong) that you can feel sick even if you are not 'glutened', because your body is still recuperating. Also, other things can still...
  5. flutterby
    That's exactly what I went through! My doctor was at a loss, and either didn't know to test or thought that it wasn't necesary since I improved on the diet. Two years later I am seeing a specialist, who wants to test and make sure and rule out anything else. But I absolutely failed trying to introduce gluten into my diet again, so that's as much proof as...
  6. flutterby
    I've had the same experience. My favorite was a vegan acquaintance who said "Oh yeah, dude. Cheer up!!! I TOTALLY know how you feel. I'm vegan, after all." I explained to him as politely as possible that the difference was that he has a CHOICE. The best advice I heard was during my initial diagnosis. A close friend told me about her Celiac friend...
  7. flutterby
    Thanks for sharing Shauna, and everyone else! This is one of the things that I was hoping to find out. It's an obvious problem that doctors don't know to look, or won't listen. With 1/133 people having Celiac, you would think it would be the FIRST THING they'd check.
  8. flutterby
    You know, I was thinking about putting a genetic test AND blood or biopsy option, but they only let us have so many. This is one thing I have noticed ... we are all so different! I feel very fortunate that I have had doctors that listened to me, possibly because they were at a loss for what to do.
  9. flutterby
    With so much talk about the big Diagnosis, I am curious what category people fall under here on the forums! Or, what category do your family members fall under?
  10. flutterby
    Hey Folks, This remind me of something I have had doctors tell me before. Keep in mind that, although it's important to know what's causing your symptoms, a diagnosis of Celiac is not necessarily a good thing, as it may cause insurance premiums to go up or for you to get denied insurance altogether. What's most important in not self-diagnosing, I believe...
  11. flutterby
    Thanks, Sophie. Basically, at this point, eating a lot of gluten for weeks or months isn't really an option. I'm not willing to be miserable just to get a positive diagnosis. I've already noticed some symptoms like problem with short term memory ... something I REALLY don't want to mess with. I brought this up with my doctor and he said we'll do the tests...
  12. flutterby
    Hey folks, I started introducing gluten again after the doctor said I could 'cheat' a little before my blood tests. Like everyone else, what this made me realize is that even with negative tests I will remain gluten-free! Anyway, I was wondering if anyone else has experienced the following sensation after getting glutened. I refer to it as 'internal...
  13. flutterby
    I used to have problems with this all the time, and still do even after going gluten-free. I had thought it was reactive hypoglycemia because it would always happen an hour or two after eating, for example, a breakfast with carbohydrates (read: bread). I would get irritable, confused, unable to think properly, unable to make simple decisions. This weekend...
  14. flutterby
    I used to have this problem when I was younger ... my hands would get so dry and red and itchy that they would crack open and bleed. It turned out I was allergic to the lanolin in the lotion I was using, so yes, double check ingredients!
  15. flutterby
    I had a similar reaction to a Swiss Miss hot chocolate brand. Caused severe joint pain and some other things. Must be the dairy, but I do have the experience that dairy in other forms doesn't cause the same reaction! You might check to see if there are other ingredients like corn or soy that might be causing a reaction.
  16. flutterby
    My doctor's going straight for the biopsy without even getting the blood work back yet, so I figure go for it, if you can afford it. He also wants to test for some other things, too, so that might be why. I am kinda curious to see how my tests wind up because I've been trying to keep gluten-free for quite a while now.
  17. flutterby
    Thanks for the reply! Spoke to the celiac specialist today ... he ordered IgA and IgG blood tests and endoscopy and is also going to test for some other things besides Celiac. He said that he thought putting me on a gluten challenge would do more harm than good, but that I should "feel the inclination to cheat once in a while" before doing the tests. I...
  18. flutterby
    Hey folks, I wanted to hear some opinions about a case that I imagine is somewhat common. Two years ago, my family doctor put me on a gluten-free diet without doing any tests, after I got extremely sick, lost weight, had many celiac disease symptoms, and had been told that if we didn't find the cause I would have to take medicine of my life in order to...
  19. flutterby
    Does anyone know if Swiss Miss Indulgent Collection Dark Chocolate Sensation is gluten free? I have had Swiss Miss before with no problem and it is supposedly gluten free. However, I got a box of the Dark Chocolate Sensation because they were out of the plain kind, and have been experiencing pain and swelling in my arms, hands, and legs all this week....
  20. flutterby
    I'll look into that, thanks!
  21. flutterby
    Thanks for the replies. One of the problems is that I live in Central America peanut butter is really expensive here. And gluten free bars don't exist!
  22. flutterby
    So I've been gluten-free for about 2 years now, and I also have problems with low blood-sugar so I have to eat fairly frequently. But I'm really having a hard time coping. My friends at first were super good and helpful, so in a way I kind of got used to having people help me out when there was nothing I could eat and was feeling icky and lightheaded because...
  23. flutterby
    Goodness!!! Thank you so much for all of these lovely suggestions!!! For the first time in a long time I'm not terrified of going to the grociery store My main problem is protein, but I think hardboiled eggs will work well for now until I can figure out something else.
  24. flutterby
    I've been afraid to eat lunch meat beause of possible gluten ... doesn't a lot of it contain it? I'll have to check down here to see if I can get any responses from the companies about whether it has gluten or not. Sadly they're not always responsive. Thanks!
  25. flutterby
    Hi All: Does anyone have any tips for simple gluten-free packed lunches? I live in central america, which means I can't get any kind of gluten free breads, cookies, health bards, snacks, etc. A lot of canned tuna has a warning that it is processed on things that also process wheat, and besides that it is expensive. But I've been getting sick a lot, which...
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