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MarsupialMama

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MarsupialMama

  1. MarsupialMama
    I always appreciate pictures because it confirms in my mind the celiac thing (started gluten-free before diagnosing ) and it makes me realize that other people go through this too, and my child is not going to die tomorrow because of her abdominal issues. (I have been frantic over this issue) My 2 y/o daughter still looks like this (gluten-free 3 months...
  2. MarsupialMama
    In my opinion, definitely! When the body recognizes that something is a poison, it immediately goes into high-gear to eliminate it. This is why diarrhea often happens. The body is flooding water to the area to flush it out, and instead of absorbing the water in the large intestines, like normally would happen, it just quickly flushes it through to get rid...
  3. MarsupialMama
    We have just started the gluten-free journey as of about 3 months ago because of my daughter. We put her on the diet before we tested for anything because she was losing weight so fast that I didn't want to wait another day before starting something that might help - and I didn't want to damage her intestines for one more hour. Right now my two daughters...
  4. MarsupialMama
    It does sound like she has celiac symptoms. My daughter was 19 months old and 17 pounds, constipation instead of diarrhea, undigested food in her bms, and fell off the growth chart at 9 months. Large distended abdomen? 100%. Other things too (whiney, no appetite, VERY small, etc) If I were you, I would try the gluten free diet for a few months to see if...
  5. MarsupialMama
    This sounds old-fashioned, but what about PRUNES? With prune juice, you only need a few ounces a day and another way is to take some hot water and let a few prunes soak in it. When they get soft (10-15 mins) then blend them up. My girls (almost 2 y/o and almost 4 y/o) love this. I keep my littlest one on either juice or prunes because she had constipation...
  6. MarsupialMama
    I wanted to add a few things: It took between 2 and 3 weeks and we saw improvements in our daughter in appetite. We used to have to practically force feed to get any nutrients or calories in. We all hated meal time. After a few weeks gluten free my daughter went from fighting food off to having a ferocious appetite. She now goes to the drawer where we keep...
  7. MarsupialMama
    This was exactly our experience too! Our daughter (22 months now) was hospitalized for dehydration, and she had terrible constipation (like once a week or once every two weeks right before the hospital episode!) since she was born. The bloating, weight loss, irritableness...everything you mentioned! If you can get him to drink, get some prune juice in him...
  8. MarsupialMama
    At 15 I was 95 pounds and at 24 years old I still am (5'3" by the way). I was teased in high school about being anorexic, and there wasn't much I could do about it. I still get the "You are so skinny" comments even now. Am thinking I might gain weight on a gluten-free diet, but I'm not hanging my hopes on it. The only thing I can say is to be very serious...
  9. MarsupialMama
    Our two year old has chronic constipation (since born) and the weight loss issue. Constipation is a very real issue that needs to be addressed because if she is not getting the toxins out of her body, it will cause "autointoxication" or, in other words, those toxins are being reabsorbed into her blood and will make her sick in various ways. My first suggestion...
  10. MarsupialMama
    I thought that going gluten-free would be so easy since the majority of our meals consist of fruits, vegetables, nuts and only a few grains. For breakfasts and dinners we eat fruit salads and fruit smoothies and usually bread (which I though, no biggie to switch to gluten-free). Lunches are steamed vegetables, soups, salads, potatoes, etc. I make my own dressings...
  11. MarsupialMama
    My baby never had the vomiting issue, but a friend's baby who has celiac too has this response with her child. The oatmeal he got ahold of immediately came up. So, I would say, yes this is a normal response. However, it may not happen every time. The second time he was glutened was with oatmeal cookies, but he ate a LOT of them before she found him. This...
  12. MarsupialMama
    Your whole situation sounds EXACTLY like my daughter - especially the constipation thing and the appetite thing. And the "cranky-doesn't-want-to-do-anything" attitude. If you can get her to drink any substantial amount of liquid (for a baby) prune juice can't be beat for helping those little bowels move along. It might take a day or two to bust through...
  13. MarsupialMama
    Our whole family is dairy free and always has been (except husband who quit a few years ago for different health reasons). I was always allergic to it growing up (could have just been the gluten factor), so I've always used substitutes like soy milk or rice milk, or made my own oat milk. Now since we've gone gluten free, the soy and rice milk had to go...
  14. MarsupialMama
    "I say this because your problem might not be the garlic powder, which means you need to keep looking. Have you called the company?" We got the garlic powder at a Farmer's Market that deals with international products. All it says is Dekalb Farmer's Market and the price and weight (its a bulk item). So, as far as allergies go, does wheat HAVE to...
  15. MarsupialMama
    Baby was on gluten-free for 3 weeks. Saw MAJOR improvement of appetite, better sleeping, MUCH better attitude, and got a very thin layer of fat back onto her body. Constipation improved slightly. Then she got glutened by a piece of bread snatched off the table from my husbands leftover dinner. 2 bites and we started over again. *sigh* Lost the layer of...
  16. MarsupialMama
    I think you are doing exactly the right thing by keeping her off of gluten. Yes, it is not always an easy road in this gluten-filled world we live in, but having been a sick child my ENTIRE LIFE (now 25) and just now finding out about the celiac thing, I can tell you this: It is not a fun road to always have allergies, indigestion, pain, bad health, dark...
  17. MarsupialMama
    One more thing. If she is still on a formula, you might check the iron content. Usually iron supplements (in formula, or otherwise) cause constipation because they are not in a very useable form to be assimilated by the body. Also many celiac people have problems digesting dairy, so if it is dairy based, that could cause the constipation too. My children...
  18. MarsupialMama
    I totally agree with everything ShayFL said. If you want to get the biopsy done, do it as quickly as possible, then start her on gluten-free for at least 3 months, regardless of the testing. The saying of "Proof is in the diet, not the tests" is VERY TRUE. We have been on gluten free for almost one month. My daughter is around 17 pounds, and is 22 months...
  19. MarsupialMama
    I know this is an older post, but I thought I would reply, in case others out there are looking and come across it. It is not always easy to find information on babies and celiac when they are very young. The EXACT same thing happened with our baby - was almost 2 years old, but comparing with a one year old in size, weight, etc. I searched up "failure-to...
  20. MarsupialMama
    The picture of your baby helped me TREMENDOUSLY. Our baby looks exactly like that, and I haven't been able to find anything that would reassure me that, yes, we are on the right path, and yes, other children look like this at some point! Our child slipped off the growth chart at around 9 or 10 months as well. Reading posts like yours really give encouragment...
  21. MarsupialMama
    We were seeing great results with our baby gaining some fat (was extremely underweight) - she started filling out and everything after a few weeks. However, she got ahold of a few bites of wheat bread. During the first week afterwards she lost all the fat she gained and got the big belly again. Its now been 2 weeks since the incident and I"m wondering when...
  22. MarsupialMama
    That's not a bad idea - about finding another pediatrician. We like the one we have - he actually advocates for us and our choices - against the doctors at the hospital during our whole ordeal who were the ones really after us. The nurses at his office are rather condescending though, so it's not really him - just his help that I don't like. We are moving...
  23. MarsupialMama
    I haven't gotten a scale for at-home use because I knew I would drive myself nuts and be weighing her several times a day! LOL! Weight can go up and down by several ounces depending on bowel movements, drinking liquids, sweating in the sun, etc, so I didn't want to make myself neurotic. There is a really accurate scale for people to weight themselves on at...
  24. MarsupialMama
    Hi, I just started researching the whole gluten-free ordeal a few weeks ago. My baby (now about 22 months) weighs around 16-17 pounds. She has all the signs of celiac (minus the vomiting and diarreah - rather constipation since she was born). I have no problem putting her on a gluten free diet - we started 4 weeks ago. I am doing doing it too because I have...
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