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ek327

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Everything posted by ek327

  1. I don't intend for my daughter to be rebiopsied unless her antibodies aren't going down or her symptoms return. she had a very mildly positive biopsy in June, and has been great since. hopefully, her antibodies will be down when we recheck in a couple of months.
  2. If the DH breaks out quickly back on gluten, you could have a derm do a skin biopsy to "prove" the diagnosis without having to be on the gluten long enough for GI to be damaged.
  3. I like Josef's graham crackers--regular and chocolate--for crusts. almost more like a nilla wafer. Glutino or glutano used to make one that I can't find anymore, it was great.
  4. authentic foods has a multi-flour blend that works really well cup for cup in most recipes--even baking cakes and cookies and stuff. I feed it to nonguten-free people all of the time. I have the recipe for it in one of my books--can't remember which. it is listed as "wendy's flour mix".
  5. you could use the rice cream base on that. I make the same casserole, and cover it with my gravy. it is yummy!! and yes, I make my gravy gluten free, of course.
  6. My husband makes a to-die-for cream soup base with NO cream. He boils rice and onion until mushy in chicken broth (or broth of choice). skip onions if you don't like onions. after it is done, he blends it, and the blended rice makes it creamy. I imagine it could be thickened with some arrowroot or sweet rice flour or cornstarch if you needed it thicker...
  7. What a thoughtful gesture. Your friend is lucky to have you. home-made soups can also be a good choice--something like chicken and rice. creamed soups can be made by making rice in chicken broth, cook with extra fluid, then blend it when it is done to a smooth consistency. this makes a nice cream broth without the cream. (though if she can do dairy...
  8. Welcome. I know it can all be overwhelming at first. just remember to keep it simple at first. As you adjust, the special things can find their way into the diet. I would recommend finding a local support group as well. ROCK--raising our celiac kids is a good place to start
  9. you can make a nice crock-pot stuffing using chebe onion breadsitcks as the bread--then use all other ingredients as normal. the flavor and texture are very nice. I feed it to my gluteny friends and family, and they love it.
  10. you can make cheese/buy cheese that is made from nut milks. I recently tried a cashew cheese that was yummy, good for crackers.
  11. ians chicken strips (come only in meals, not by themselves) are much better than the nuggets. whole foods carries another brand something farms, that is much better. the nuggets by ians have an odd texture that my daughter won't eat. and i know that texture can be a big thing with autism. schar's has a gram cracker that tastes more like a nilla wafer...
  12. my neice did goats milk when she couldn't do dairy and tolerated it well.
  13. is there a particular reason you want her to eat crackers?
  14. for evaluation, due to intestinal malabsorption (they can use celiac or the malapsorption as the diagnosis code when they order the labs) you need to have: iron studies ferritin folic acid magnesium calcium vitamin d vitamin k vitamin a you also should have a bone density done. same codes apply. don't write off your primary care provider....
  15. FYI. pepto bismol has bismuth in it which, in its natural state, is black. it turns almost everyone's stool black. quote name='yolo' date='Sep 19 2008, 12:30 PM' post='468210'] I find bromelain/papain and pancreatin enzymes really help plus enterically coated acidophilus. It also helps me and a friend of mine to go on a detox--use dandelion...
  16. I steamed them longer, and they actually came out good. I was taking them out to soon and they were just undercooked mush. I used masa harina, which is what the recipe called for. the husks were a bit of the pain, but not bad once I got the hang of it. thanks.
  17. I have had a couple of not so good tries making Tamales. Does anyone have any advice? How about Arepas? We are trying to expand our eating horizons. thanks,
  18. wow, I'm surprised by some of the answers. I guess I don't understand why anyone who could afford a nanny situation would prefer to send their child to a daycare. Even apart from the whole gluten situation. Add in the gluten situation, and I'm not sure why its even a question. Rarely, has a child sufferred from having one-on-one attention from someone...
  19. ek327

    ARCHIVED What Would You Do?

    Wow, would that all of us health care providers had patients like all of you. It is the responsibility of the provider to inform you of abnormal test results!! If he cancelled his appointment, he should have been either called, or results and literature sent. referrals to dietician should have been made as well. I am a nurse practitioner, and would...
  20. Thanks everybody. we went on a snack tasting frenzy this weekend. I have sent a couple ideas to the school. the other issue, of course, is that it has to be "healthy". no chips, cookies, etc. what we ended up with: Corn Stix (made by the veggie booty people); polenta chips; flat earth veggie chips (they do have oat flour, but we have been ok with...
  21. I do recommend you see a peds gi doc and have the endoscopy done to substantiate the diagnosis.
  22. My daughter's school has a very limited snack list due to many peanut allergies in the school. she has been diagnosed with celiac this summer. The school has agreed to expand the snack list, but it must be peanut free. they currently have cheerios, plain; goldfish, cheese-flavored only; and plain ricecakes (yuck). We need some ideas for healthy starchy...
  23. I have to say that the way your coworker said it maybe wasn't the best, but... My daughter and I are both gluten free (me for 4 years, her for 2 months). My husband is not. As much as it would be easier for me if we had no gluten in the house, it would be unfair for him. Bread, for instance, has come a long way, but it is still blah compared to real bread...
  24. The toaster will be your best friend. I find that gluten free breads are not very good unless they are toasted, then they can be pretty good. It generally takes a little longer than real bread to toast thoroughly. Kinnikinik is pretty good. If you can find Cooqi breads, they are more like real bread. but still, use the toaster.
  25. good job, Jessica. My family enjoys Tinkynada (sp?) brown rice pastas much more the the quinoa or corn pastas. I hated the bean flour pasta. (threw it away, and would not eat it). Bolles pasta is ok, too. EnerG rice spaghetti is ok (white rice). I find, that unlike regular pasta, if you rinse the pasta under water when it is cooked, it does better....
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