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nutbutters

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Everything posted by nutbutters

  1. nutbutters
    He wants to diagnose via biopsy, so he's asking me to do it again. A pain, a really big pain.
  2. nutbutters
    Hello, I was previously diagnosed with celiac disease based on mild indicators on blood tests. My doctor asked me to immediately start the diet since I wasn't absorbing any of the food I was eating and he did not want to risk it. I was severely underweight. Anyway, I went to a gastroenterologist this year who requested, begged, that I get the biopsy done...
  3. nutbutters
    You just have to learn to advocate for yourself and you will get the treatment you deserve. I am lucky to have an understanding college Dining staff.
  4. nutbutters
    We are special despite this legislation. Not everyone is gluten-free. I do not think so. Also, just because we are covered by the ADA does not mean we get "benefits." On the contrary, we have to advocate for ourselves in order to get basic things from our schools - meals that are good for us, a healthy lifestyle.
  5. nutbutters
    No, I live in a dorm. I do nothing of the sort. Dining Hall staff washes my dishes. I don't take up anything... space-wise. Sometimes, I do feel like I am taking up the staff's time, but then I remember I'm not the only one. The dining hall prepares ALL of my meals. They are required to since I am paying for room and board and people with food allergies and...
  6. nutbutters
    I eat Rice Chex or Gorilla Munch with Soy Milk. I prefer almond milk actually, but the school doesn't have any. They have Rice Dream, but as far as I know that contains a small amount of barley, and I think it tastes really bad, anyway. I also can have gluten-free pancakes; the dining hall will make those for me sometimes. They have the Trader Joe's mix,...
  7. nutbutters
    Salut! I suggest looking into going to New York; there are a good number of celiacs and it is a great place for someone who is just arriving from abroad. There is a good French population as well, which would make your journey that much easier. Gluten Free New York often has meet-ups, so asking them for help would be in your best interest. Bon voyage...
  8. nutbutters
    My college requires that we tell them ahead of time. I have never told a professor, lest I have had to miss class for a doctor's appointment, but even then I don't tell them why I need to go to the doctor. As for the last part, I find that so weird and I am so grateful I go to my school! Our exams are never proctored; we take our finals on our own time and...
  9. nutbutters
    I love Gorilla Munch!! With almond milk, they're perfect (I'm casein sensitive - perhaps intolerant...). It tastes like Kix. I spent a long time just eating Rice Chex over the past few months since it's "the special cereal" my school ordered for me. I went to the local supermarket, discovered Gorilla Munch and I like it a lot. Granted, these are the only...
  10. nutbutters
    Hi all, I've heard complaints of gluten-free college dining in the past. I'm curious about other's experiences at their respective colleges. My school is very good and cooks special meals for me whenever I need them, the benefit of a small school with several dining halls. I made the transition while in college (during the summer, which made it easier...
  11. nutbutters
    There was an article in Discover last year about another "Real Doctor House." Nice to see that there is more than one "real Doctor House" out there! It gives me faith in the medical profession.
  12. nutbutters
    No, I was gluten free for five months, and I was preparing for the biopsy for one month on a heavy gluten-diet. I have not yet had the barium test (that is the next step). Sorry, that was very unclear.
  13. nutbutters
    I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now,...
  14. nutbutters
    I go to one of the five colleges (inc) in western Mass., and there is really a lot for us gluten-free people here. It's amazing.
  15. nutbutters
    Hi, welcome!!! I am from New York City as well, but to be honest with you, I don't eat out much, and I go to school in Massachusetts, so I am unfamiliar with much of the NYCGF world. I was just diagnosed this summer, so I hope to explore more of it when I have more time at home!
  16. nutbutters
    You have a wonderful attitude for someone who is newly diagnosed!
  17. nutbutters
    double post sorry
  18. nutbutters
    I am relatively new to this myself. I am a junior in college, but I was just diagnosed this summer. As funny as it sounds, there was never a better time! This is the first year the school started offering gluten-free students options about where they can eat (granted, it is one consistent place). I really prepared myself before I came to school to understand...
  19. nutbutters
    Hi, I was diagnosed my a doctor in New York (top in his field!) by way of an intestinal permeability test, but I was told that I need a positive biopsy to confirm his diagnosis. So, I went to a gastroenterologist yesterday, and I was scheduled for an upper endoscopy since I do exhibit all of the typical celiac symptoms. Initially, it was scheduled for...
  20. nutbutters
    I've lost twelve pounds in 2 months, and I was already underweight... so, it's good because it means I can eat fattening food now to make me bigger again.
  21. nutbutters
    Thanks for all your suggestions!! I'm scheduling an appointment with a gastroenterologist in the area for next week, so that I can have the intestinal permeability test run as well as several other tests for parasites and more conclusive tests for celiac. All of my gastrointestinal symptoms are pretty recent developments; they only started within the last...
  22. nutbutters
    I do avoid soy and dairy per my doctor's suggestion! I have been gluten-free, dairy-free, soy-free for the same amount of time. Yes, I only had an intestinal permeability test run on me (nothing else), and my symptoms are seizure-like spasms, joint pain, terrible indigestion (no matter what I eat), headaches, nausea. The intestinal permeability test was the...
  23. nutbutters
    I went on a gluten free diet on the basis of an intestinal permeability test, which proved I was suffering from terrible malabsorption. I am still on this diet and have been for almost two months now; the school has even given me a personal chef, and I am feeling ill. I'm sure her food is safe, and I know she is cooking it right, and with dedicated pots and...
  24. nutbutters
    I bought the macaroons from Whole Foods yesterday- they were amazing. I could not believe they were gluten free!!!
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