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mosaicmom

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  1. I have a couple of links I wanted to share but I need to warn anyone who reads them that they have political undertones. Even so, this effects people who choose any alternative medications to help heal the body, even supplementation... so it applies here. Ron Paul originally introduced a bill and info can be found here: Open Original Shared Link And while...
  2. I'm hoping that results will be Celiac's instead of IBD due to the constipation. Outlook regarding medication is not as bleak, that's for sure! Yes, chronic constipation and the issues that arise from such is what we're currently experiencing. Don't know from what yet.
  3. Ravenwood... If the bumps are as I described, which aren't blistered, can a biopsy even be done? Do they just scrape?
  4. Do stomach cramps come only because gluten is ingested, and only a reaction to gluten OR does gluten do enough damage to cause other foods to cause pain in the digestive process? This would be pre-diagnostic... so the damage could be there. For instance, I send my daughter with crushed fruit but the acidity in the fruit causes stomach burning b/c of...
  5. Thank you for your reply. It's a web I'm trying to untangle from... all the misinformation for almost 17 yrs. I'm so frustrated. I can't say that hers turn purple. What's funny is, I get like... one bump occasionally that ends up turning purple... but I'm not the one being tested and it surely isn't enough to go in there. I'm going to cling to the one time...
  6. My daughter has had DH once- perhaps twice (maybe as a baby in conjunction with a stomach flu- on her diaper area), most recent, 4 years ago, providing what she has now isn't DH. Like I said, it has shown up more in a classic sense without a doubt- 4 yrs ago but I'm having a hard time differentiating what is on her skin now. I thought of taking a picture...
  7. I'm so glad someone used the word "glass". This is similar to what my daughter has said in describing her pain, glass, or blades, but it isn't in swallowing, it's usually by the time it's trying to digest.
  8. Type in keywords "The Celiac Brain". There is so much out there about Celiac and behavioral problems. It's what helped the nurse practitioner (in retrospect) to immediately look for Celiacs (mental health issue). Gluten free is big in the Autism and ADHD circuits. Start typing in key words, and use learning disability (adhd is one) but if you apply the information...
  9. I'm definitely going to come back and post the results of the Celiac panel they ran on my daughter a month ago when I can get my hands on the test results (I didn't know they ran one, came across the paperwork, and was told it came back negative- despite not having known they did one in the first place) But to the OP (original poster) and to anyone else...
  10. New here too and your story is our story- my daughter s 17, and they believe it's Crohn's ALTHOUGH before being told to stay on gluten til the upper and lower scopes, I did put her immediately on a gluten free diet for 10 days and not only did we (and WE is a huge statement for a kid who fights me on every thought I have) see a marked improvement in the pain...
  11. I dont know if this sounds disgusting to others or not, but it makes a good paste, and could be faked for white pizza in place of rigotta. Mix in food processor chick peas and garlic to a paste, like hummus. Spread on pizza crust. I know it's not tangy, but it's a good paste.
  12. I visited my deli the other day and noticed the Boars Head sign that stated all meats and condiments were Gluten Free. Just thought I'd pass that along.
  13. I didn't look at the date of this post, but my daughter 17- needs to read this. All but asbergers.adhd is her.
  14. AliB Yes, he was a wise man. Now I know who I'm quoting when I told my husband to shut up and drink the aloe vera juice we had... "death begins in the gut", I kept telling him. He felt better while I had him on it. He's not the on with C issues that I can tell so far.
  15. I've been using it for about 2 weeks also. My key words were candida and crohns... what I had to go on at first. We use Spectrum organic ev coconut oil, lots of garlic, quercetin (blend it in food processor with coco oil), and a few other items that are thought to break down the tough exterior of the yeast cell wall.
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