BRCoats

It takes awhile but you can adjust to a low carb diet, takes about 2 weeks for most people to make the transition. The body has to switch from metabolizing glucose to using ketones for fuel and it requires switching to making different enzymes. I would advise you look into a Paleo diet, it includes fruit, nuts, veggies and meats and eggs, I feel very good on it and it is naturally starch free.

For Vitamin D ideas you might want to peruse this web site: Open Original Shared Link

There's one doctor on the Internet who says the only sort of D that works for his patients is oil-based Vit D3 (cholecaliferol) that the stuff in multis or calcium pills just doesn't work. He suggests that you take enough of it to get to at least 50 (of whatever the range is), it is at the top of the range and that is about 4000 - 6000 iu of the stuff if you're not in the sun much. He writes quite often about D3 at Open Original Shared Link

Hey, thanks for that link. I'll check it out.

I know what it's like to stop sugar/carbs. Holy cow.....if I do that again, I'll start slowly. Die off of candida can be WAY torturous! :-)

I have AS and I'm also gluten sensitive. My AS is pretty mild and has gotten much better since getting off of grains and dairy. You might want to check out Open Original Shared Link a lot of folks there have had luck with a no-starch diet, which is essentially what I follow too.

I take sulfasalazine for my AS and it works pretty well in combination with my dietary practices and getting plenty of vitamin D.

I'd suggest trying the no-starch diet and seeing if it helps you out.

I am already off of all grains. I do eat a little bit of sugar, because I can't tolerate any fruts and veggies (good carbs!) due to my stomach condition (gastroparesis). With the celiac and the gp, I'm really in a bind....which is why I have all the vitamin deficiencies. I'd love to get off the sugar, but when I can't eat any other carb, my energy level goes right in the dumper.

I'm sure getting plenty of Vit. D is essential. I am currently 10 points below what they consider a low normal for Vit. D. so I'm exploring ways to get more (stomach won't handle any supplements either). I bought a Vit. D3 cream but this is my first day using it. So far, I'm doing good with it and it actually has relieved some pain (I put it directly on my spine).

Hi, I am curious - I didn't know there was a test for AS. For years I have had a problem with my sacro/lower back and physios and chiros have told me its 'fused' in a perculiar way. One physio described it as almost spina bifida but not ( she had my xrays at the time ).Now I have pain in my rib cage area - also a perculiar restriction. What is this gene test and should I be concerned about my symptoms ? The stiffness is worse in the morning and improves with movement but not over exercise.

I would definitely get tested. The HLA-B27 is just to see if you have the gene. It's not a diagnosis. But with your symptoms and "fusing', I would say it's at least possible that you have AS. Google AS...you will find symptoms, one of which being morning stiffness. I am SO stiff in my neck and shoulders in the morning. It feels like someone stole some of my vertebraes in the night....like I don't have as much spine as when I went to sleep. It gets better with warm water and movement. I also found out that I'm real low on Vitamin D, which is probably the cause. So you might suggest testing that also.

Symptoms of AS do not improve with exercise, unless it's the right type. Such as swimming, which is easy on the joints. I can't hardly play baseball with my son because I'm sore for a week afterwards. Too jarring on the joints.

So yeah...get tested. It can't hurt anything.

Hi Guys and Gals,

Was wondering if anyone has AS and celiac both. I tested positive on the HLAB27 (gene marker) for the AS. I haven't been officially diagnosed yet, but with the positive gene marker and the symptoms I"m having, it's likely. I'm seeing a rheumatologist next week. Anyway, I was wondering if it goes along with celiac, or if any or you have any experience with it.

Thanks for any info,

BR: If modified food starch is listed, by US law, it is required to list wheat as an ingredient. Sounds like you are good for go, unless you see wheat in the allergins statement.

Hmmmm...well...that always still makes me nervous to just trust them to abide by the law. Guess I will write the company if nobody else has tried it and had good luck with it.

Thanks for all info.

Hi All,

Was wondering if any of you could tell me whether the las palmas green chile sauce is gluten-free. I looked on their website and don't see any info. It does have modified food starch in it.

Thanks in advance,

Hey everyone,

Have any of you heard of celiac axis compression syndrome? I have no idea if it is related to celiac disease, but I do know it can be related to gastroparesis (which I have -- very debilitating). I am having trouble finding much info on it, so if anyone knows anything, or knows where best to search, please respond or email me off line (brcoats72@hotmail.com).

Thanks so much!!

Hey guys,

Just wanted to say thanks for the replies. I feel pretty good about at least trying it now....as long as I have a few days of being able to be sick, just in case.

Arby's, here I come!!

does anyone know anything about del taco's ground beef? that was my favorite place to eat up until a couple of weeks ago. i figured a taco would be ok but i dont know what they add to their ground beef.

I would love to know the answer to this too. I don't see anything on their website about gluten-free items. Are their fries gluten-free??

Hi all,

I just went to Arby's website and noticed that they are listing all sorts of items as gluten free! (I thought their beef was gluten-free and that's all). Even the Arby's sauce is listed as gluten-free. Can anyone share their experience with Arbys? Is there a lot of problems with cross contamination, etc?

If you haven't visited their website lately, you should give it a try. It's an awesome way to list what is gluten-free and what is not. Click the little arrow by the item, and it will give you the specific ingredients of that item. In other words, the roast beef sandwich is listed as having gluten, but if you click the arrow, it give you ingredients of the cheese, the roast beef, and the bun....and then tells you which of those items are gluten-free.

Anyway, please advise as to whether you think I should try this or not. I'm so sick of Wendy's I could puke.

Thanks,

~Brenda

You say you have high cholestrol. Can you be a little more detalied? How high is it (total cholestrol) and more importantly, what is the ratio of the good to bad, i.e., HDL/LDL? The leukocytes are probably just a reflection of a UTI. They are common with women. My wife gets them several times a year.

Are you on an antibiotic yet for the high leukocytes in urine? Is there any way you can get some attention before your next scheduled appointment. UTI's are normally easily dispensed with by antibiotics but if you wait too long you could do damage to your kidneys or go septic. Do you have an urgent care you could go to?

Steve

Well, they said the cholesterol was at 217. I'm not sure what the normal range is. I don't know about the good vs. the bad cholesterol. I found out all this info over the phone from the receptionist.

I'm not on an antibiotic. I haven't spoken with the doctor since he got the test results back. I don't have any symptoms of a UTI, or kidney infection. Could this have to do with a yeast infection? I have been battling an intestinal yeast infection, but not vaginal. Anyway, I have an appointment with the doctor in six days. I would think that if I needed an antibiotic asap, he would have called. At least I hope so! :-)

What is your opinion on the cholesterol level? Is that WAY high, or just moderately high?

I just found out today that I have leukocytes in my urin, along with a high white blood count. I haven't been able to talk to the doc yet (not until a week from today). Soooo....I was wondering if any of you have had this and know what it means? I'm assuming I have either kidney or a urinary tract infection??? Could it mean anything else?

I also found out my cholesterol is high, and my thyroid seems to be a bit low. I know those two go hand in hand sometimes. I was shocked to find out about the cholesterol. I'm only 33. I'm five foot four, and weight 106. Doesn't seem like I fit the profile. ??

Thanks for any info you can offer. :-)

what was the name of the episode?

Oh darn. I don't know the name of the episode. But it's one where Beverly is pregnant (BIG)...and Doc has his hair cut short. I think it's one of the latest ones. I don't think Billy Cyrus is a good actor....but it is a good, clean show. It's something I can let my kids watch without being paranoid. Anyway....I'm sure they'll show it again. Or you might even be able to purchase the whole series of Docs on video, I dunno. ?

My dr. warned me that if I did have a lot of yeast in my GI tract that taking the Diflucan will make this worse in the beginning - but that means it's working. He also told me to take it every other day, unless things got bad then I should skip a day or two until I felt I was ready. Basically it gave me horrible D, pretty urgent, a lot at at time and (sorry here) it was very "foamy". BUT - it was just for the first couple days, by the end of my 20 day (10 pills) treatment, I hardly noticed I was taking it. But it didn't make me sick otherwise, I certainly could function - just kept close to the bathroom!

Did he recommend following it up with other products? I take an acidiopholus (sp) and I was using Candida Cleanse too.

Wow. That is cool that everyone has had good experiences. That certainly does ease my anxiety. I'm nearly positive I have an infection....so I am prepared for things to get worse. I just don't know HOW worse they'll get. :-)

Yes, he did recommend the follow up treatments. Acidophilus, along with some natural remedies to keep the yeast away. And he talked about doing the nystatin in between the two doses of diflucan. Basically, I'll be taking a week's worth of diflucan, then maybe nystatin, then one more week of the diflucan. Anyway, I hope it goes good. I'll be starting it within the next few days (I had to schedule in being sick - lol).

Thanks so much everyone. I really appreciate it!!

Hi again,

Thanks so much for the info and replies to my last post regarding the yeast infections. I did go to that appointment with my doc, and he feels that the intestinal yeast is a problem, but not the vaginal. If you remember, I don't have any symptoms of the vaginal infection, but my chiropractor told me I did. My doc said that if you're not symptomatic, you don't have it. DUH! Anyway, he gave me diflucan (sp?), and I'm wondering if you can tell me your experience with this drug. I'm scared to death to take it. I hear you can get pretty sick on it -- just because it's getting all those bugs destroyed. I homeschool three kids, so if I'm down too long, I feel like my life will go spinning out of control. Ok, maybe not that bad.....but I really do need to be up and functional. Anyway, can anyone tell me their experiences?

TIA!

Hey all ya'll,

Anyone ever hear of or have any experience with the LDA treatments? I won't go into great detail, but if you have any knowledge or experience, please let me know -- good or bad. I'm about to spend a lot of money on it, and really don't want to do that if it's a hoax.

Thanks so much,

Hey all,

Was watching Doc tonight with Billy Ray Cyrus. I don't know if that's a show everyone gets or not. But anywho, they had a girl on there whose parents and Doc thought had anorexia/bulemia. Nobody believed her, until she was relentless in her plea for innocence. Doc thought it would be wise to do more tests, and decided to do a biopsy. Sure enough....it was celiac sprue!!! Man, did that story ever ring true. I was accused of being anorexic, bulemic, NUTTY.....you name it. Only that period of time for me went on for nearly two years. This girl only had to wait a week. LOL.

Good, good show!!

Brenda,

When I say "remission" I technically meant asymptomatic. Yes, you are right, it doesn't ever go away. Sorry for the confusion with my loose term.

Just curious, I haven't checked other posts of yours... and this may be a personal question and you may not want to answer it...with PCOS were you able to have children? Did treatment, like glucophage help? I am not insulin-resistant and did not respond to glucophage. We were set up to do IVF and then "poof" I became pregnant on our own. And then the second time, I became pregnant on my first cycle, after seven years of trying with the first.

And, yes, I know about muscle testing...I didn't believe in my results at first when I did it in 2000. Looking back it would have saved me a LOT of troubles! What a great chiropractor! My chiropractor gave me an alignment the day before my labor and I actually enjoyed labor, don't get me wrong, it was work and painful, but I was amazed at what the human body could do!

Hi,

Ok. I understand the remission remark now. Thanks for clearing that up. I thought I had missed something BIG.

Yes, I was able to have children (3). But I don't know if I had the PCOS back then. They are 15, 14, and 9 (but I'm only 33). I don't know if that answers your question or not. I've not tried glucophage, but I tried an herbal remedy that is supposed to do the same thing as the glucophage. I felt really hyper and junky, so I got off of it. I don't know if I'm insulin resistant....I thought I was at one time...but I'm not sure. Never been tested.

Thanks for the reply!

I am definitely getting cynical in my old age. When I read that you had been diagnosed by the muslce test I just had to reply. My chiropractor did that test on me the last time that I saw him and told me that I was having problems with my gall bladder. And he had the medication in his office that he would sell me to fix it. The rub is that my gall bladder had been removed several months earlier. He tried to sell me the meds even after I told him my gall bladder wasn't there. I never saw him again.

I'm not saying all chiropractors are "quacks", but I saw one 16 years ago when I first came down with Chronic Fatigue Immune Dysfuntion Syndrome who insisted he could cure me. After nine months of staying on a special diet (supposedly based on my allergic response that day) and about $2000 of his home made homeopathic remedies, he informed that he couldn't do anymore for me. I was just as sick as the day I met him. He didn't use the muscle test. He used some type of meter that supposedly could tell what I was allergic to.

I think we are considered suckers since we are obviously sick and in need of a cure. It's unfortunate that there are so many people out there ready to prey on us.

I looked at this post because I am having the exact same problem and I was hoping to find an answer. I'm 50 and perimenapausal. And I've read that perimenopausal women can have increased vaginal discharge. And since we neither one are having the other symptoms associated with the normal yeast infection, maybe that is all it is.... marcia

marcia,

Well...I know what you mean by "quacks". I'm not sure if this guy is a quack or not....I haven't decided. He told me if I can't take this certain remedy, that there wasn't anything he could do for me. So, I walked out of the office, thinking I have this terrible intestinal infection, and there's nothing that can be done. UGH!!! What an awful feeling.

With your gall bladder experience....it sort of makes sense for him to pinpoint that, especially since it's gone. That's a weak area in you, and he could tell that something was off. I'm sure he assumed that you had one, and it was just not functioning. Interesting.

I do agree. We have to be careful and wise when we meet new doctors. Whether they're md's, or chiropractors, or whatever. There's really good ones, and there's really bad ones.

Well, I know you're supposed to have increased vaginal discharge with yeast infections.....but my problem is just the opposite. I am dry most of the time. Sorry if that's TMI.....but I've not been able to figure that out, unless I am low on estrogen. But yeah, you would think if I had an infection, I would not be dry.

Brenda,

I found some really interesting information that may help you and others. I read your post b/c since my pregnancies (which brought my celiac out of remission) I have had some resistant yeast infections.

Check out this website: www.vulvodynia/fag.htm

It covers a lot of information that seems to crossover with problems us celiacs have and I was surprised it mentioned Polycystic Ovarian Syndrome, something I have been diagnosed with.

Anyway, it talks about lots of options and I like the answer titled "some damn good alternatives to fungal creams".

Hope this helps...

Uhmmm.......your celiac was in remission? Can you explain that further? Once celiac, always celiac. Or so I thought.

I have PCOD also. I'll check out the link.

Thanks!

Brenda-

The natural tampons are worth a try. Natracare makes natural, un-chemically bleached products. So you have no symptoms? That's strange. How did you get diagnosed? At a routine OB appt ?

Well, I have irregular periods (is that a symptom?). But no....no itching, irritation, etc. Don't laugh, but I was diagnosed by a chiropractor. Ever hear of muscle testing? That's how he diagnosed me. It's really complicated. Not sure I could explain it to you. But yeah, that's how he diagnosed both my vaginal AND intestinal yeast infection.

Thanks for the info and replies!

Brenda-

What acidophilous did you take? I wonder if your reaction was to the brand or an additive, rather than to the cultures themselves.

Tampons--They can lock in bacteria and provide a breeding ground for yeast etc. to increase. They are also a source of irritation and pull on tissues. They were a source of irriation for me as I got older and I believe at least part of the cause of the infections I had. And that is regardless of how short of long they were used. I think sometimes women use them when they are actually too 'dry' or having too light of periods to do so. Make sense? I stopped using them and have no problems or any irritation or a single infection since. Its worth thinking about I think. I don't think all women can use them. So, in conclusion, I think they were one of the main if not the primary cause of my infections. Antibiotics are also a culprit...but acidophilous has always been enough to prevent those as I take with the meds. Hope that helps explain!

jenvan,

I thought the same thing about the acidophilus. So I switched to a brand with no additives at all....and I still had a problem with it. So I don't know what it is. I get very anxious and edgy, along with my stomach really burning. ??

I understand what you're saying about the tampons. Are the ones I see in the health food stores any better? They're supposed to be free of any irritants, etc. I can stop using them...but I hate to. I hate pads. Funny thing is....I don't itch or have any vaginal irritation at all. But he says I do have an infection. Hmmmmmmmmm................

Thanks for the info. Any other advice or experiences are still welcome.

Brenda-

I went thru a bad bout of those infections a while back--and it was miserable. There can be a connection b/c yeast imbalances and Celiac, but there are also many other causes. I have taken diflucan in the past with success...but that was pre gluten-free. This site lists it as gluten-free, however I would call and verify: Open Original Shared Link Also, the biggest help to me in preventing those infections and getting rid of them was taking acidophilus (with lactob. cultures). It helps keep the good bacteria in ck, which in turn keeps other bacteria and yeast at their appropriate levels. Any time I take an antibiotic or feel an infection coming on I always take it, and I have never had an infection since. Also, just to throw it out there, infections can initiated or caused by tampons, oral sex, irritation... It you have been reoccuring infections, you may want to think about what the cause could be.

Hey jenvan,

I have an appointment to get a second opinion next Tuesday. So we'll see how that goes. I was just wondering what would be the problem with usin tampons (sorry if that displays my ignorance). I do use them, but only for one or two days a month at the most. I have light periods, so I don't need them much. The chiropractor tested my husband for yeast also, but he checked out fine. So I don't think I'm getting anything from him, or visa versa.

As for acidophilus, I have a really bad reaction to it. Almost as bad as getting gluten. Maybe down the road i'll be able to better handle it.

Thanks, jenvan. I appreciate your input.

When I started this whole "what's wrong with me" quest, one of the things my Dr. suggested was a GI yeast overgrowth. He put me on Diflucan, one every other day, for 4 weeks. Wow - did I have some "die-off" - but obviously it was working. I also take an Acidophilus supplement twice a day and I take NOW brand Candida Clear (Cleanse maybe?) with dinner. You can google a lot of information (as well as products) and you may want to check out The Yeast Connection by Dr. Crook - his site has a questionaire and lots of info.

While I've been fortunate to not have yeast infections in the other area , I have heard of two natural remedies: take a bath in tea tree oil - make sure you bathe and push water up into yourself. The other someone told me (and sounds disgusting) is to soak a tampon in yogurt or Acidophilus and insert it. I have not tried either so I can not recommend or discourage - just passing along information.

I'll definitely check those supplements/books out. I need all the info I can get!

Thanks!

~Brenda

IS A YEAST INFECTION RELATED TO CELIAC?? I HAVE HAD A FEW LATELY, BUT HAD NOT THOUGHT OF A CONNECTION WITH GLUTEN. I HAVE BEEN USING THE OVER THE COUNTER STUFF FROM THE DRUG STORE.

Mary,

If you have yeast, it doesn't mean you've been ingesting gluten (was that what you were implying). It happens because of a compromised gut flora problem and because of probable overuse of antibiotics. Just thought I'd clear that up.

~Brenda

I loved diflucan. I no longer have yeast issues, but when I did I hated the whole dr route. You can now get many yeast meds including diflucan ON LINE>>>>> I've only needed to do this once in forever. But it was awesome not to HAVE to go to a dr. Just google on line pharmacies and diflucan or whatever brand you prefer. It's so easy and gets to you in two days.

Thanks! I'll check it out!!

Hi Guys and Gals,

I was diagnosed today as having both a vaginal and intestinal yeast infection. Unfortunately, the chiropractor I went to is claiming that there's only one remedy that TRULY works....and it is not gluten free. So.....I'm not sure I buy that there's only ONE remedy. I'm wondering if there's any of you that have had this problem, and have succesfully treated it. Please list the supplements, meds, and diet you used to help. I realize that this can be a very aggressive problem, and it certainly is wreaking havoc in my life. So for my chiropractor to tell me that there's nothing they can do for me if I can't take this supplement is sort of freaking me out.

Any help is appreciated!!

~Brenda

I'm contemplating drinking a little bit of wine for my stomach problems (gastroparesis, inflamed lining). I also have tension/nervousness with the stomach problems, so am wondering if the wine would help with that. Have any of you had good experiences (or bad ones!) with wine? I'm pretty sensitive to grape juice (burns the tummy), so I'm skeptical as to whether I could even handle wine.

Anybody know of a good quality wine that doesn't have a lot of additives?

Thanks for any advice. I'd love to hear your experiences with wine helping/hindering your tummy problems.

Merry Christmas everyone!

I was wondering if anyone knew if the pb cups recipe changes for Christmas or not. I read the ingredients, and didn't see anything. But had a nasty reaction. So I'm wondering if the gluten was from that, or just accidental some other way. I know companies sometimes change their recipes for holidays.

TIA for any info.

~Brenda