Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

BRCoats

Celiac Axis Compression Syndrome?

Recommended Posts

Hey everyone,

Have any of you heard of celiac axis compression syndrome? I have no idea if it is related to celiac disease, but I do know it can be related to gastroparesis (which I have -- very debilitating). I am having trouble finding much info on it, so if anyone knows anything, or knows where best to search, please respond or email me off line (brcoats72@hotmail.com).

Thanks so much!!


~Brenda

Celiac, gastroparesis, PCOD, heart problems, pacemaker.

Diagnosed 7-12-04 via bloodwork. Never had a biopsy, doc didn't think it was necessary (said I would know just by going gluten-free).

gluten-free two weeks after diagnosis (and my last bag of Oreos). :-)

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


I am not familiar with that. Is there any information that you can post?


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Share this post


Link to post
Share on other sites

Wow I would like some information on it as well...do you know what exactly it is? Because I think i may possibly have it...I have this unexplained stomach blockage sort of thing...it's hard to explain and the doctors don't even know what it is or what caused it. Is this a blockage that you are talking about?

Share this post


Link to post
Share on other sites

i don't think it is related to celiac disease. there is an internal structure in the body that goes by the name "celiac something-or-other". someone posted about it last year because they thought it was funny that they had a problem with this (?) body part that was labeled celiac but was not connected to celiac disease.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

Share this post


Link to post
Share on other sites

Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites