Jump to content

rgeelan

Advanced Members
 View Profile  See their activity

  • Posts

    68

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by rgeelan

  1. rgeelan
    Hmmmmm.... That is interesting... For about 2 years now I have had chroinc sinus infections. I have been on mega antibiotics and nothing every helps I have just had to live with it! I never thought sinus problems could b a sign of celiac though... I wonder if this will improve when I am on the diet for a while?
  2. rgeelan
    Ursula... They didn't have damage to their intestines, but they did have lukeocytes in their intestines which the GI said is a sign of intollerance and could be the first sign of celiac for them... However we have put them on the gluten-free diet in the past but it hasn't changed their symptoms which is why the GI said to wait till their next scope. Part...
  3. rgeelan
    I have a lot of gluten-free 'snack' foods for my kids but just am being stubborn about giving up MY foods. lol! I think unfortunatly it is going to come down to our entire house being gluten-free eventually. My girls GI wants me to wait till after their next biopsy to put them gluten-free. Their first biopsy showed some possibility of food intollerance...
  4. rgeelan
    Thanks Angie... We normally try to be very careful and even the girls that work at the bowling alley are helpful and careful when preparing our food. I have read all the packaging and they let me know if any of their products change or anything like that. They get the hotdogs strait from the back and wrap them in a paper towel and microwave them, so they...
  5. rgeelan
    That list looks almost exactly like my symptoms and I am so sick of feeling this way! I know there are many possible reasons for these symptoms but it never hurts to rule out Celiac as one of them... I am unsure what the celiac panel being low means. With my son's diagnosis his levels were high... Have you considered asking to have a biopsy done...
  6. rgeelan
    Ok for almost a year now my health has been going down hill. I have been getting more and more tired and forgetfull and my stomach is often upset. I had a Hystorectomy in August and since then have gotten severly worse. They thought I was anemic at first, but they tested and I was fine, they suspected my Thyroid was too low by the tests though so they...
  7. rgeelan
    Ok that is a point I had not thought about till just now. I think keeping her gluten-free is just the best idea anyway. Really I see the difference when we take it out of her diet so I know it has some sort of effect... My DH refuses to believe me though! Thanks. See I figured age may still have a play in the testing but knowing that...
  8. rgeelan
    kaiti she was tested at 25 mo, so over 2 yes but not by much. lol
  9. rgeelan
    She is 2 years 2 months... Ugh that much gluten would be hard because she does not like bread and wont even eat regular cereal! That would mean lots of cookies and crackers. lol... And 3 months before testing would put us in the middle of moving which would mean another month or more after we get to our next base to get the Ped there to realize they need...
  10. rgeelan
    See I would like to have some sort of official diagnosis largly so we know if she can occasionally cheat (if it is just an intollerance) or if she has to be as strict as my DS. She does not have the severe immediate reaction he has, but then again he didn't have it when he was her age either! Now he can lick a cookie and will throw up, she has to eat gluten...
  11. rgeelan
    Ok when my son was diagnosed with celiac disease a year ago it was the TTG IgA that came back pos at 40 (a very strong pos) The IgG were neg though. The specialist we saw for the biopsy said with just the blood tests alone he was 99% positive William had Celiac because the one he was pos to was the most accurate for it. Well we had our DD tested at the...
  12. rgeelan
    With my older 2, once I got them completely gluten-free they had no problem learning to potty train. William was fully potty trained day and night shortly after diagnosed with celiac disease at 3 yr 3 mo. He was mostly potty trained except for the diarrhea we couldn't figure out (DUH) way before he was 3 though! Emma is 2 years and is potty training...
  13. rgeelan
    Seriously I would look at her growth chart and see if she is on the same curve as always or if she has dropped. It wasn't until my son stopped growing and lost weigh that his doctors took me seriously about him being sick and finally ran tests. He was always 90% or above in height and weight and had dropped to 90% in height but 75% in weight just after...
  14. rgeelan
    generally the tests are inconclusive before age 2 and could easily give a false -. i would have her retested. we also had our daughter tested at 15 months and it was -, but by 21 months she was really showing the signs our son had started with and i recently challenged her and got + results from removing gluten (and dairy but that is a seperate issue...
  15. rgeelan
    Our son is 4 now and he has learned the hard way that he does not want to cheat on his diet!! He proudly announces to anyone who offers him food that he can't have wheat! He learned the hard way what cheating does to him and at a bad time. The night my water broke with Sarah (I was 33 weeks) we had the neighbors watch the kids for us while my DH and I...
  16. rgeelan
    Thanks... I actually found that board a few days ago. A lot of good information there! Currently we are going to stick with the Nutramagin. They tested the mucus that is still in Sarah's poop and it no longer has blood in it. We are thinking maybe the mucus is caused by what is left in her system and hoping it will go away in another week or so. Since...
  17. rgeelan
    Thanks laurie. That is what our doctor is suspecting also... I know Emma would get sick if I had even the tinest bit of hidden dairy when she was nursing she was very allergic. We're suspecting Sarah may be the same way and it just took a few days for her body to recognize that the dairy is still there even though it is highly processed.. I am waiting...
  18. rgeelan
    I'm glad to know I am not alone. I had never heard of anyone else reacting like I did either. I tried to eat as many calories as I could on that diet but it didn't seem to matter. I just know I can't do that again. So far it seems that Sarah is not tollerating Nutramagin either. She started out doing great then at 4pm yesterday we started taking steps...
  19. rgeelan
    Allergies show as soon as enough protien has built up in their system to cause a reaction. Emma was severly allergic to Dairy by the time she was 2 months. Sarah started showing signs before 2 months but we thought it was reflux caused by prematurity and I kept ignoring that it could be an allergy till now.. If you eat enough of a food that your child...
  20. rgeelan
    I don't know why I got so sick. I was 100% dairy and all major soy free, I also had to limit my egg and wheat cause Emma would react if I had to much of either of those. The first month I felt great! I lost a little weight but since I was still about 175 (25 pounds over my ideal weight for height/age) I didn't worry. After a few months I was started...
  21. rgeelan
    I have quite a few of the 'common misdiagnosis' but when I had myself tested it was negative. My DH has no symptoms so he refuses to be tested. I realize that one of us at least carries the gene but we don't really know who... I guess it's all denial for me at this point. I should have seen the signs earlier and challenged Emma's diet. But I didn't...
  22. rgeelan
    Well switching Sarah to nutramagin has made a world of difference. She really is a totally different baby now. So we at least know the Dairy is an issue for sure. She seemed to be reacting to wheat when I ate it but I won't be able to test that till she is a few months older and we start solids. I guess at that point we will see a reaction for sure if...
  23. rgeelan
    We do the lil critters gummy vites. The bears and the worms are both gluten-free and our kids love them! I get them at Walmart!
  24. rgeelan
    Emma, our 2 year old, has had allergies her whole life. As a baby she had severe MSPI (dairy and soy allergy) and I went dairy and soy free for a year because she wouldn't take a bottle. Well her symptoms that clued us in on that was diarrhea with mucus and blood in it. We reintroduced dairy at 13 months and she has had ups and downs but always bounced...
  25. rgeelan
    I wrote a detailed letter to his school explaining the disease and what it does and what he can and can not have. I even offered to loan my copy of Raising your Celiac Kids to my son's teachers. They didn't take me up on reading it but never hesitate to ask before giving him anything I didn't provide.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.