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rgeelan

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Latest Celiac Disease News & Research:

Everything posted by rgeelan

  1. rgeelan
    I wrote up a little letter for my son's preschool and explained briefly what celiac disease is, what it can do to him, etc. I put a list of example foods he can have and can't have. Basically I send his lunch every day he goes and if they eat something *mon is movie theater day they have popcorn and soda, wed is ice cream day durring the summer* they always...
  2. rgeelan
    thanks for the info. william (my oldest) was diagnosed a year ago, so i know how sick it can make a kid but didnt know if it will show in babies also. William had chronic diarhea his whole life than around the time he turned 3 he started vomiting randomly. By the time he was tested in Aug 04 he had been vomiting almost daily for over 3 months. It wasn...
  3. rgeelan
    Sarah has severe reflux and I am trying to figure out what is causing it. I am pretty positive it is an allergy to something at this point and am thinking either MSPI or Gluten... Can a baby this young have a gluten allergy or Celiac Disease? She hasn't had any gluten outside of breastmilk or formula...
  4. rgeelan
    My son was introduced at 3 months and was diagnosed with celiac disease at 3 years. My daughter wasn't introduced till 5 months and hasn't been diagnosed yet (but I may test her again now that she is over 2 years) I plan on waiting till about 5 months to introduce gluten to our youngest just to give her a better chance. My theory is why push my luck. ...
  5. rgeelan
    It sounds to me like you did the right thing. My son is only 3 but we talked with him and I explained what was going on and why he had been so sick and what we needed to do to make him feel better. I couldn't lie to him and I feel better explaining it to him even though he doesn't fully comprehend it yet at least I know I am being truthfull with him and...
  6. rgeelan
    Ok dont mind me but I am going to be blunt here. How old is your son now? And why did you try feeding him cereal at 4 months old... Now this is in a way the pot calling the kettle black, but you should probably wait till 6 months to start solids... A lot of the time it is not so much an allergy as the childs body just is not developed enough to handle...
  7. rgeelan
    I would never let my kid cheat... It's just not worth the price to us... Especially not once a week. Then I spend the next 2 or 3 days (depending on how much gluten he got) dealing with a total grouch and cleaning up vomit... I have found that food is much more expensive but it's not bad tasting and if you can make some stuff it really is easier....
  8. rgeelan
    it sounds possible that it could be celiac disease or a milk allergy. but at such a young age son't be surprised if nothing comes back positive... Really your best bet would be to put him on a gluten-free diet and see if that cures the problem... Our specialist said that it is rare for a child to show positive for celiac disease under 18 months of age...
  9. rgeelan
    I thought I didn't need new pots and pans? I have the coated kind and they get washed very well in our dishwasher... And I do have a wisk...
  10. rgeelan
    I have gone out and bought a duplicate of all the following items to really try to cut down on cross contamination. My DH is going to think I am insane but I would rather have 2 of things than a sick child... Collander Cutting board Wooden Spoons Rubber Spatula (because I am nutorious for melting them and food is hard to get out of melted rubber) Flour...
  11. rgeelan
    I poisoned William last night with dinner. It was either the Ragu spagetti sauce or the spices i added... I called Ragu and they said that they would specifiy if it had wheat in it but I explained to the lady how Gluten is more than just wheat... She couldn't help me past wheat though... I am just tossing the leftovers... Taking no chances... And...
  12. rgeelan
    We got William's 2nd blood tests back today and it was TTG IGA 9.6 which is a strong positive again from a different 'more reliable' lab according to the specialist. He said he is 100% certain that William has Celiac. The biopsy showed damage but they didnt think it was to the point of Celiac yet but his blood tests have come back strongly positive twice...
  13. rgeelan
    TTG IGA was 40 (strong positive) TTG IGG was <20 (negative) Gliadin IGA was <20 (negative) Someone help me inturprit these. Still waiting on the 2nd blood tests but just curious other peoples take on the first test.
  14. rgeelan
    You know I was so sad this morning when he wanted to go get donuts... That used to be our special treat and I had to tell him we couldn't do that because they would make him sick and he just didn't want to believe it.
  15. rgeelan
    We have had William gluten-free for almost a week and the last 2 days he has been AWFUL! So grumpy and talking back. He doesn't like anything. He just threw a fit because we are making him a special pizza all for him... Is this just because his body is going through like a withdrawl or something? He has his moments usually and he used to have a bad bit...
  16. rgeelan
    Rachel, good luck... We are going gluten-free with him for sure because he is responding great to not having any. I just hope it is something he will eventually outgrow...
  17. rgeelan
    I just got a call back from the specialist in Denver. Williams biopsy did show damage and inflamation in his small intestine, but at this point the do NOT think he has Celiac Disease!!! It is just being called a severe allergy to Gluten at this point. We are waiting on the 2nd blood tests results because they can't rule out if he is a carrier untill those...
  18. rgeelan
    Kirsten... Dont be so hard on yourself!!! He is eating just FINE! Hell, remind yourself that he is EATING! Ok! I never worry about if the food my kids eat is bad or good I only worry that they are getting it in them! We have gone through days where my son hasn't eaten more than 2 or 3 bites of food and that is very stressfull, I would rather him eat...
  19. rgeelan
    Well I HATE to throw up... With my son I was nausious for most of the pregnancy but only threw up a few times. With my daughter I was very sick throwing up almost daily and that lasted untill I was a good 6 months prego.... I have not been diagnosed with celiac disease yet but will be tested since my son is suspected to have it and I have a lot of the...
  20. rgeelan
    William does that same thing with not wanting to eat. Our doctors just kept telling us it was 3 year old wilpower and that nothing was wrong with him... Of course when they said that they also said to seriously limit what we gave him to drink and force him to eat. Then he got sicker... I now firmly believe that maybe they know what theya re talkng about...
  21. rgeelan
    Good luck!!!
  22. rgeelan
    Thanks guys... I laughed when I started reading my book that I bought and the lady who wrote it said how her first trip to the regular grocery store looking for food she left with a bunch of Fritos. LMAO! I did the same thing. I went looking for what I could buy and left with Fritos as the only "non specailty" food. The store I went to had a lot of natural...
  23. rgeelan
    I will have to buy new kitchen stuff??? If William comes back + for celiac disease I keep hearing that I will have to go get new thigns like a new toaster for his gluten-free bread only and I won't be able to cook his gluten-free food in the same containers that I use for regular food unless I wash them very well first... So I will have to make his food...
  24. rgeelan
    I would also suggest that the baby might be allergic to Dairy... I had that problem with my daughter and son. Both reacted strongly to any dairy that I ate... Of course they both reacted to soy also and my son was never diagnosed as a baby, but my daughter had problems like bloody diarhea and apnea and they finally pinpointed it to dairywith a mild allergy...
  25. rgeelan
    I will have to look for some of those when we go out again... We got the Envirokids rice bars and William likes those, but can' live off them. LOL!
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