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caek-is-a-lie

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Everything posted by caek-is-a-lie

  1. caek-is-a-lie

    Happy birthday and may God bless you today!

  2. caek-is-a-lie
    Well, see, that was my problem. The label has none of those things on it. No gluten info, no allergen info, no contact number to call to check. So I gave up and let him have some and he seemed fine so I guess it's gluten free. But I'm not happy with Walmart for making it so hard to ask a simple question.
  3. caek-is-a-lie
    My boyfriend got some Sam's Choice Pink Lemonade and regular lemonade at Walmart as a treat for our son who just went gluten free. I read the ingredients and it has "natural flavors". But there's no phone number and the walmart website doesn't have any gluten info on any of their products. So how can I find out if it's ok besides simply trying it? I can...
  4. caek-is-a-lie
    I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl
  5. caek-is-a-lie
    There are no official stats on it, which is something I'd like to do myself in grad school, but from what I've seen on forums and from an informal poll I did, there are a lot of people with Narcolepsy that could benefit. The Narcolepsy genes have also been found to be Celiac genes. IMHO it would be beneficial to screen all Narcolepsy patients for Celiac...
  6. caek-is-a-lie
    Wait until at least 6 months of age. It takes babies a few months to grow a proper lining in the gut and introducing gluten before then could increase her risk of getting Celiac later.
  7. caek-is-a-lie
    Well, I do believe there is evidence that desensitization works in some cases. And this group found positive results in doing this treatment in mice. Of course, mice aren't humans, so we'll see how the human trials go. They indicate the treatment takes months to complete. My issue with the whole thing is in calling it a "vaccine". It's not a vaccine...
  8. caek-is-a-lie
    Cool! It's grain-free. Very awesome! I will have to try it when it comes out.
  9. caek-is-a-lie
    I'm sorry, I just can't get excited about the prospects of injecting myself with gluten to make me not sensitive to gluten. If it was any other type of cure I'd be thrilled, but this just seems like certain death, in a way. I'm just too sensitive to gluten...how could injecting it into my body for months and months be a good thing? I spend so much time...
  10. caek-is-a-lie
    They were being extremely insensitive to your daughter. There is nothing ruder and more hurtful than your teacher forcing you to watch the whole class eat in front of you and announcing to everyone that you're left out on purpose because your mom forgot you. Of course you didn't forget your daughter. It was irresponsible of them to pass all the accountability...
  11. caek-is-a-lie
    My consumption went down, too. I was always starving even when I ate. It seems like after my body could finally start digesting, I didn't need as much food and I digested it longer. The weight loss hasn't been as much as I'd have hoped, but it feels like there was quite a bit of damage done, so maybe there's still hope for me once I've healed more.
  12. caek-is-a-lie
    Yeah, I'd get a copy of that report. Even doctors misread lab results. Mine sure did with my thyroid. "You're right in the middle of normal" was in actuality hypothyroidism!
  13. caek-is-a-lie
    I get puffy fingers, neck, torso, and sometimes feet. It can get really bad. Many years ago it was so bad my skin hurt because it was so tight. I haven't noticed a direct relation to salt...for me it's more related to gluten and sugar consumption. It definitely gets bad if I eat wheat bread. People talk about getting bloated belly from gluten, but for...
  14. caek-is-a-lie
    It's here! It finally made it to my local grocery store! I just had a big bowl. It was wonderful. I have loved this cereal for years and couldn't figure out why it made me sick until I learned about gluten. But now it's gluten-free!! Finally I can get big boxes of regular cereal like the rest of the family! Not overpriced dinky boxes of Glutino O's...
  15. caek-is-a-lie
    UR my HERO! My mom has a good chocolate cheesecake recipe. I should find it and convert it. It's really quite good. If only I could remember where I put the recipe....hmmmm....
  16. caek-is-a-lie
    Heinz Tomato Ketchup is gluten free. Heinz 57 is not. I think it's the vinegar they use. Open Original Shared Link
  17. caek-is-a-lie
    Sounds like Celiac to me, but if he has a GI appt, keep him on gluten until after the blood tests and biopsy. If his small intestines start to heal, they might not find any villi atrophy and it will complicate diagnosis. If your docs are obsessed with numbers on paper more than the symptoms of your child, you'll want to make sure they get those numbers...
  18. caek-is-a-lie
    Just a thought, but I get temporary muscle paralysis from eating gluten. Celiac caused my Narcolepsy and I get episodes of Cataplexy (temporary muscle tone loss.) It's the same thing that keeps you immobile when you're dreaming so you don't act out your dreams, but my brain misfires and it happens when I'm awake because some of the cells in my hypothalamus...
  19. caek-is-a-lie
    I wish they had a website. I hope they have some products that aren't rice-based, anyway. If that is the same crust Garlic Jim's uses, you'll love it. It's really good! Too bad I can't eat it more often.
  20. caek-is-a-lie
    Heinz 57 is not gluten free, but Heinz Tomato Ketchup is. Weird, I know. But that's what Heinz says. Safeway Tomato Ketchup is gluten-free, too. Then my boyfriend goes out and buys Hunt's Ketchup. NOT gluten-free. Ugh. I told him to get his money back. Dork. PS: YAY for A-1 sauce! I love that stuff! I'm totally buying that now!! Woo hoo...
  21. caek-is-a-lie
    Haha! I don't watch 90210 but that was a great quote!
  22. caek-is-a-lie
    Oh I LOOOOOVE Corn Thins! I eat them all the time. They are a life saver because I can't eat rice (and I've never seen or felt any CC from eating them.) My favorite way to eat them is to put tuna salad with tomatoes & onions on top. I have that for lunch a lot. Is absolutely delicious!!!
  23. caek-is-a-lie
    I don't. Not anymore. Not after 10 years of them screwing around with my health and sanity for the sake of their own egos, then when I figure out the answers for them they say "oh that's great you figured it out." yeah whatever. Jaded much? But I'm glad you're working your way through the system to get your son help. I hope he starts feeling better...
  24. caek-is-a-lie
    IMHO just do it! I mean, you don't need a Rx to take him off gluten. You can just try it and see if it works. If you still want the biopsy, I'd find another doctor. You have WAY too many positives staring you in the face to put up with their BS. There's lots of references on this site to good doctors, maybe you can find one in your area. I mean why...
  25. caek-is-a-lie
    Really? DQB1*0602 is a gluten sensitivity gene too? That's the main Narcolepsy gene everyone looks for in Narcolepsy patients. A large portion of the population has it, but if you have Narcolepsy, odds are you have that one. It's responsible for they hypocretin cell loss in the hypothalamus...I had no idea it was considered a gluten sensitivity gene....
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