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caek-is-a-lie

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Everything posted by caek-is-a-lie

  1. caek-is-a-lie
    I hear ya. I've actually been there, myself, many years ago, but lately I find myself longing to go back for a change. It may not be healthy for me to think that way, but I did actually enjoy shopping in the juniors section for awhile. At least clothes felt comfortable back then, no matter what I wore. And I'm tall and was living in LA so people just...
  2. caek-is-a-lie
    Good for you! Keep up the good work! I think it's normal to be angry for a time about this. I mean, it's not fair, is it? And it's all up to us to eat right but the world makes it so hard to do a good job at staying gluten-free. I used to get angry at myself for accidental glutenings, but I think I'm starting to accept that I'll have no control over...
  3. caek-is-a-lie
    I've had a lot of luck with the NCNM Community Clinics in Portland, OR. It's relatively inexpensive and they listen and really work with me: National College of Natural Medicine Open Original Shared Link For appointments: (503) 552-1515
  4. caek-is-a-lie
    Do you think there's a good substitute for the rice flour? I can't do rice either, but I can do sorghum. Boy would I love to try this treat! It's been years since I've had any bread of any kind. [/drool]
  5. caek-is-a-lie
    Look, I posted the original article because the YouTube video was gone and some of us wanted to know what the white lines look like. It helps us all know if we're talking about the same thing or not. I'm not saying this is how you diagnose Celiac. Of course not. Sure there's a good debate here about how valid the results are, although I doubt this thread...
  6. caek-is-a-lie
    Man, I wish I had this problem. I have the opposite...overweight and can't lose no matter what I do.
  7. caek-is-a-lie
    Open Original Shared Link Open Original Shared Link Both support using fingerprints as a diagnostic clue in Celiac patients. Plus I found 7 additional papers from the 1970's that discovered the same thing as the newer studies. That was just one basic PubMed search that took me 10 seconds. I believe the scientific method was the same then as it is now...
  8. caek-is-a-lie
    Can you expand on this in more detail? I can't eat rice, either, but can't figure out why, and am currently experimenting with coffee, which gives me minor problems, but I don't know if it's the brand, the coffee in general, or just the caffeine. I do get stomach pain from coffee, as well as some abdominal cramping right afterwards, and it makes my esophagus...
  9. caek-is-a-lie
    Ummm...I believe the link to the scientific paper that I provided was real science, not pseudoscience. I think there would be a few ticked off PhD's if they heard you calling their legitimate work 'pseudoscience.' I also believe their conclusion was that the fingerprints can be used in conjunction with other methods to accurately assess the improvement...
  10. caek-is-a-lie
    I recently read that Celiac is known to cause secondary autoimmune disorders and allergies. I have Narcolepsy that is triggered by gluten, but I also have some lingering Narcolepsy symptoms on a gluten-free diet that seem to be from permanent damage. I found out I have a Celiac haplotype DRB1*07-DQB1*0202 and I also have a Narcolepsy/Celiac gene DQB...
  11. caek-is-a-lie
    Here's the results! HLA-DQB1 Molecular analysis, Allele 1 0202 HLA-DQB1 Molecular analysis, Allele 2 0301 Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7) I've done some research and 0301 is implicated in Narcolepsy, too, which I have. This totally validates everything I've hypothesized about my own health. Gluten triggers...
  12. caek-is-a-lie
    LOL! I did the same thing. I agreed to do a full week of psychological testing if the doc I went to would just refill the prescription I was taking at the time. They must've run every test imaginable trying to find some hidden trauma in my past to explain my symptoms. Their conclusion? PTSD from seeing doctors! rotfl I wish I could have seen the doc...
  13. caek-is-a-lie
    Dang, sounds like Scottsdale is really going gluten-free...I hear about so many places that just happen to be in Scottsdale. My parents live in AZ, so I always take notice of gluten-free restaurants there in case I visit again and need to eat.
  14. caek-is-a-lie
    It would have been an antibody test specifically for gluten. You can find a basic list of things to avoid here Open Original Shared Link scroll down and there's a handy chart. ND's can be expensive but my local ND college has community clinics that are cheaper than my insurance co-pay, and they discount supplements, too. It's a huge relief since...
  15. caek-is-a-lie
    Huh, the vomiting has peaked my interest...my son has always been underweight...5th-10th percentile (and freaked WIC out for years but they never figured out what was 'wrong' with him, although I think they liked making me miss work for appointments and making me cry a lot because of course it's because I'm a bad mother and give him too much or not enough...
  16. caek-is-a-lie
    I have tons of horizontal creases on my fingertips, but I don't know if that's what you're talking about. The YouTube video has been removed but I found this article that may be of interest Open Original Shared Link So, I'm not a diagnosed Celiac, formally, because I wouldn't be able to stand a gluten challenge, but could this point to the possibility...
  17. caek-is-a-lie
    Oh my goodness! Well you don't need a diagnosis of anything to stop eating gluten! I say try it now! But make sure you memorize all those lists of tricky places gluten hides, or you'll be like me, thinking you're doing it right and kicking yourself for still being sick! Keeping a food diary might help, too, because if you discover something later that...
  18. caek-is-a-lie
    One of my local grocery stores puts all the gluten-free cereals right next to the 'organic' health food gluteny ones. They really don't care. Same with flours...the gluten-free flours are on the same shelf with the organic whole wheat health-nut expensive flours. For some reason that manager or that district seems to think that gluten-free is just a lifestyle...
  19. caek-is-a-lie
    OMG ROTFL!! That was hillarious! Thanks for posting.
  20. caek-is-a-lie
    Yes, I agree, because the disease doesn't just attack your intestines and increase your chance of certain cancers...it can attack other organs like your skin or brain. I'm pretty sure my Narcolepsy and gluten intolerance are inseparably linked...especially since when I eat gluten I get bad neurological symptoms. If you tested positive for the antibodies...
  21. caek-is-a-lie
    What if we could just look at something and it would glow a weird color if it had gluten? Then we could be invincible!!
  22. caek-is-a-lie
    Yup. I agree. Tests are fallible and if the diet works, do it!
  23. caek-is-a-lie
    Tallforagirl is right. Plain distilled spirits are supposed to be gluten free, but just be careful of blended whiskeys & scotches. They sometimes use carmel coloring to make all the batches have the same color (because they vary when they're blended.) Sometimes that coloring contains gluten. Same goes for rum...you have to pick the right brand. But...
  24. caek-is-a-lie
    If it was my son and I had the positive blood test and knew the battle with the insurance company would lose me precious time, I'd just take him off gluten. You have a positive blood test...that should be enough proof that he has Celiac when he gets to be school age and needs special accommodations at school...but I don't know for sure since I haven't been...
  25. caek-is-a-lie
    I was looking for them in Safeway in Oregon but so far no luck. One of the employees wanted to know what I was looking for but I got a disappointed blank stare when I told him. Oh well. Hopefully they'll get some in one of my local stores soon. If anyone in Portland's seen them, let me know!
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