JRock
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Latest Celiac Disease News & Research:
Everything posted by JRock
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hi there! long time since i posted (and if i'm not at work, i don't care a bit about capitalization so i apologize) - any other celiac been diagnosed with idiopathic hypersomnia (IH)? 3.5 years ago, i was diagnosed with celiac, 1.5 years ago they added microscopic colitis to the list of my problems, then after being on entocort for the colitis (no idea...
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ARCHIVED Coping Methods With Current Pains. Help
JRock replied to jsimone's topic in Coping with Celiac Disease
Hi Joshua, Those of you who are supportive and loving with us crazy celiacs really deserve some kind of honorary title or award or something. It's not easy watching someone you love hurt, and my boyfriend tells me the worst part is being helpless. I can't take any aspirin, ibuprofen, aleve because it does tend to irritate my stomach and worsen my collagenous... -
Hi there, I've been diagnosed with Celiac for 2.5 years and I was diagnosed with microscopic colitis (collagenous) in January of this year. The doc had me on the gluten free diet (which I follow religiously) and started me on asacol, then added entocort when I was still having problems, then it was hurting to breathe and he noticed that in my endoscopy...
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ARCHIVED Celiac + 6 Weeks Of D - But Antibodies Are Low!
JRock replied to JRock's topic in Coping with Celiac Disease
Thank you - I'm going to ask my doc today about SCD - at this point I'm willing to try anything. Was awake most of the night with gas and headache (I'm sure the headache was due to not eating) - but it was a welcome break from the constant D - I know not eating isn't the best plan, but I needed a break. Wondering if anyone has experience with Crohn... -
ARCHIVED Celiac + 6 Weeks Of D - But Antibodies Are Low!
JRock posted a topic in Coping with Celiac Disease
Been diagnosed celiac for a little over 2 years now - watched my antibodies go from 100+ to 6 right now. Health has been a real issue for me - a few months ago I took a supplement with iron and wound up so constipated my intestines were literally filled to the brim (my doc showed me on the x-ray). For the past 6 weeks, it's been the opposite - D anywhere... -
Ok, I'm freaking out. I went to Carl's Jr. to get my delish gluten-free natural cut fries and an avocado burger with lettuce wrap for lunch and made sure they knew I couldn't have wheat at all and to change their gloves, etc., etc. I got back to the office and tore into my burger (usually I carefully check it first) but I was hungry and five bites in before...
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Sorry - I forgot to say that yes, I take probiotics. I have kombucha at least twice a week as well - tried enzymes but I think they were causing more harm than good and I've tried lots of natural "intestinal calmers" and the like. I have an appointment with my gastro doc today - the nurse relayed a message that since my endoscopy was clean back in Feb...
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You know, I've eliminated dairy multiple times in the past year (initially it was quite a problem, but after 3 months of going gluten and dairy-free, I seem to do fine with dairy. Obviously I've remained gluten-free - just had my first sandwich in 8 months - thank goodness for Kinnikinnick!) and I have done the elimination diet multiple times as well, but...
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I haven't been on this forum since March (I think) when I had D for a month and my gastro doc finally did the endoscopy/colonoscopy and found that after being gluten-free for 6 months my villi had grown back! Yay! The doc had been blaming my symptoms on somehow getting glutened... at any rate, I was diagnosed with IBS. I was diagnosed with Celiac disease...
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Good evening all, Another night in pain - I don't know what I'm doing wrong. My hubby thinks that sleeping with the cats on my bed may be a problem, and petting the dog. I'm very good about washing my hands. Another gluten-free day/week/month and I'm still in pain. I think Gemini is right - it must be something else. But how do you get a Dr. to test...
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Hi again, I'm relieved to report that the colonoscopy and endoscopy showed no abnormalities that the doc could see. He did take another duodenal biopsy. He definitely thinks I'm sneaking gluten. I'm happy that I don't have anything serious going on, but unhappy because the pain and all the D definitely wasn't in my head. And I already tried the elimination...
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Hi again, Wow, it's been a crazy past few days. Woke up Monday with intense abdominal pain - couldn't stand up straight. Then I had three BMs in the next 20 minutes (which is weird, I don't usually feel so terrible in the mornings) and I saw blood. I called in sick to work, took a vicodin, and waited til 9am for the gastro doc's phone lines to open ...
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ARCHIVED I Get Neurotic Every Time I Eat
JRock replied to Lovey25's topic in Coping with Celiac Disease
Skymgirl, I went through the same thing with McD's fries - I had read their website months ago that they were gluten-free, but then checked it after getting sick, and yep, wheat and dairy - in fries!!! You have to check the websites/labels on foods consistently because something always changes. On the "back to square one" thing - I decided one... -
Hi Again, I'm feeling better tonight - after making that post I called my Dad who is an RN. He said the same thing you said Cat - that it would take months if not a year for my antibodies to get to the level where the gastro doc wants them. I'm glad the base docs finally referred me off base - military docs don't really have time to listen to you, so...
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I would like to cuss out myself and everyone else right now. Since October, my tTg antibodies have gone from 100+ to 86 in late December. I got referred to a specialist for my constant intestinal pain. My test (I provided the blood Wednesday) shows antibodies of 81. Seriously... what am I doing wrong? I've stopped taking supplements (and have no energy because...
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So... I had my appointment with the doc Monday - he ordered poop cups and referred me back to the specialist who gave me the endoscopy (but didn't have the manners to call my himself with the diagnosis). The first batch of cups showed no parasites, e. coli, salmonella, or other food poisoning-type sickness. And yet I'm still in pain with D. So I saw the specialist...
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J, I know exactly what you mean - I'm supposed to attend my first out of state conference in a few weeks with people who don't know I have celiac. All day conferences, few bathroom breaks (and of course all the ladies will be in the bathroom on the few breaks) ugh... how do you tell people you work with, "hey, I can't eat there" without explaining the...
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Thank you for your support - today I only ate eggs and potatoes for my meal - honestly I don't want to eat. I wonder if a liquid fast might temporarily relieve my symptoms. I've been drinking the smart water to help with electrolytes. Today has not been good - lots of D and pain - to the point where I've been laying in bed in the fetal position with a heating...
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G F Man, Wow - that's really cool that you had a temptation right before you're about to teach kids how to resist temptation. I know for me brownies were always a favorite, luckily Bob's RM has a pretty yummy gluten free mix. I know it may not be exactly the same type of temptation as your lesson will be on, but I imagine it will help the kids relate...
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Hi again, Two weeks now of this. I'm not sure this has anything to do with it, but my husband deployed right before it started. I'm not really that stressed and I can't imagine stress over him being gone could cause it for this long, could it? My mom suggested switching to better acidophilus, which I just bought, and I've been taking the Caltrate-D and...
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Thank you for all of your suggestions - I'm going to get some Caltrate-D on my lunch break. I've been taking acidophilus for the past month, maybe I need to step it up to another type of probiotics? I'm going to make an appointment if it doesn't stop in the next two days. I can deal with it at home, but at work I'm downright humiliated. Oh well. I'm...
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I'm at a loss - for the past 1.5 weeks I've been having abdominal pain, intestinal pain, and D (sometimes every five minutes, sometimes not so often, but always D). I've tried all of the OTC anti-Ds with no luck. I've been on a diet of rice, broth (gluten free), chicken, well-cooked carrots, grape juice, and bananas for the past week (pretty much the SCD...
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ARCHIVED "Super Sensitive" Celiacs.....
JRock replied to jerseyangel's topic in Super Sensitive People
First off - do NOT eat McD's fries! When I first started my gluten free diet in Oct 08, I read that they were safe. Check out the website: Open Original Shared Link. Here are the first two ingredients in their fries: Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*). I was ill for two weeks because... -
Stacy, Wow - that stinks. I always figured chili and french fries were probably the safest things on any menu. They get some sneaky stuff in food and that can be so irritating. Just FYI - I recently (after getting glutened a few times over the past week or so) discovered that, even with a dedicated fryer, fries can be full of gluten! They used...
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ARCHIVED Confusing Doctor
JRock replied to NewNicole's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with Fiddle-Faddle - you've got to get a different doctor. Your doctor sounds flaky and you need someone dependable and honest when dealing with such a life-altering diagnosis. If you do have celiac, you do need to make sure that you remove ALL gluten from your diet (and hopefully your family will be supportive and deal with gluten-free dinners -...