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Lori T.

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About Me

41 years old

Born Upstate NY-still reside Upstate near birth home.

Overweight all my life-unable to ever feel full-doc say lack of nutrition absorbtion from Celiac

Cardiac Ablation surgery 12/01/05-still struggling with residual effects

3 Gastroenterologists, 2 Cardiologists, l Internist, l Endocrinologist, 1 Allergist, several E.R. md's,

5 endoscopies, hundreds of blood tests, several MRI's and CT's, brain tests, dopplers, multiple gastric tests, allergy testing and too many other doctor visits and tests to count before diagnosis of Celiac by biopsy 10/06.

Diabetes, Rheumatoid Arthritis, Asthma, Peripheral nerve damage from combo diabetes/lack of B12 before diagnosis , suspected Dermatitis Herpetaformis, Acid Reflux

Grandmother died age 92- ate Alka-Seltzer to survive the stomach pain-never diagnosed to my knowledge.

Mother still alive-gastric issues-81- tested by unwilling doctor-alleged negative biopsy-same doc did mine twice and was wrong.

1 sister-very skinny-56 years old and weighs about 90 lbs/5'8 1/2"-eats all with no pain, but never gains.

Son-19-smelly, large bowel movmt. for years. docs refuse to test. not skinnny though

Irish on most sides with a little English and Dutch thrown in too.

  1. Lori T.

    ARCHIVED Pain.

    Lori T. replied to DreamWalker's topic in Coping with Celiac Disease

    I do know of something that will cause this pain and I got it out of my body after 6 years of excruciation:my gallbladder. I got to a point like you where anything but water just about killed me. Then it came to a head one night when I had nothing because I was trying to calm my stomach down. I tried to drink a glass of water and thought I was on my way to...
  2. Lori T.
    I can hear your frustration and I feel for you. Had a host of little issues for years when I was younger and thought it was just life. Keep up the party life!! Hung out with my friends and had beer and pizza night regularly. The next day I used to think " I know that 3 beers did not do this to me" because I could not go to the bathroom. Just seemed like,...
  3. Lori T.
    left a post for someone else with this advice too: get checked for liver issues and if you still have your gallbladder, that too. I do not have mine and have just found a site that helped with the pain I was having.Thought I had been glutened but it did not go away. You need a specific diet for this area of digestion. Check out the site: gallbladderattack...
  4. Lori T.
    Hi. Wanted to reply to your thread. Cannot eat shared equipment stuff either. In fact, found that the gluten-free products so starchy that they bind me. Not so much the cereals and crackers, but the bread, pizza, pasta. Told someone else on another blog that that stuff could plug an elephant. Had the panic attacks back to back to back for a long time. Alot...
  5. Lori T.
    Wish I could say my experience was any better, BUTTTT!! Had a nutritionist who was supposed to be the best as well as a GI with the same accreditations who both blew it. Both said they did not know what was up with me, but they were stumped. The nutritionist was telling me to up my fiber, EAT MORE WHEAT BREAD. She was killing me. Found another specialist...
  6. Lori T.
  7. Lori T.
    Hope that things are going to continue getting better. An allergist can help you to find other sources of stomach upset and body aches and fatigue. Thought the cure all was the gluten-free diet for a bit then realized something else was going on. Found out about 30 other things I am either intolerant of or just simply cannot be near or ingest including molds...
  8. Lori T.
    I was stressed with that one too for the longest time. Found that if I checked the website to many of the fast food places, was lucky enough to get the answer to what was in the stuff and even if something looked suspicious, if you e-mail them, you do get responses. As for the finer restaurants, I have found that 2 things work, depending on where I am: Make...
  9. Lori T.
    Have been gluten-free for 2 years now, WOW, and still have trouble with large amts. Have to go completely without, even powdered form in some gluten-free products will bother me. If I do that for long periods,usually several weeks to a month or more,I am able to go back to small amts. and I mean small. A piece of cheese here and there or a gluten-free cookie...
  10. Lori T.
    Did you eat out??? Big problems start there. Even the most innocent looking/prepared food could have been contaminated, even in your own home if you share it with non-gfs. My son has mixed serving spoons from their spaghetti to mine and for me that is enough to do it. Still very sensitive. If I eat something contaminated, I get sort of the same thing. Will...
  11. Lori T.
    Just noticed something in your reply to the woman with the seasonal issues. I get them too with the change of season. Seasonal Affective Disorder is the name given to me for it. Get in the sun, with SPF on to protect of course, up the D with doctors o.k. and check the B vitamins. B12 was lacking so severely in my body, I thought I was having a nervous breakdown...
  12. Lori T.
    Food is the toughest. Am still struggling too after 2 years but getting better at dealing with this part of the diet. Just wrote to another member with some of the same advice to you. Bring your own or look up stores too that are in the area and find gluten-free guaranteed safe prepared foods to take. I also have asked the hostess, especially family, what...
  13. Lori T.
    know how you feel. Diagnosed X2 yrs and still get question after question, which is not so bad, but then I get the ever helpful "but I am sure a little taste won't kill you". Oh, yeah, it will!! At least it will feel that way. Usually understanding family members who just choose to ignore my problems for theirs, become the ever knowledgable ones during times...
  14. Lori T.
    Avoiding all of the list that I mentioned. In the beginning, before final diagnosis and an allergists diagnosis as well, I was eating small amounts of things thinking that it would go away, but live and learn I did!! Just wrote a reply to one of the other members telling her my story as well that the Toprol has been stopped since surgery 12/05, but the damage...
  15. Lori T.
    Should have stated that I have not been on the Toprol since the surgery 12/05. But the little I have been able to read in depth about the drug, it has the nasty side effect of doing stomach damage!! As soon as I took the first pill, I did not feel right. Loss of sensation in limbs, dizzy. Told the doctor and got changed to something else, but I think the...
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