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jmjsmomma

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jmjsmomma

  1. jmjsmomma
    My 6 yo was dx celiac in Jan 09. His only symptom was that he literally stopped growing. He wasn't even close to BEING on the growth chart. By Oct 09, he had grown 5 inches...yes, in 10 months! He seems to have tapered off a bit now and is still VERY small for his age. The weight gain took longer.....even after going gluten-free he stayed 39 lbs until...
  2. jmjsmomma
    Hi there, My 6 year old was dx Celiac in Jan 09. He had basically stopped growing, and at 5 1/2 he was the size of a just turned 4 year old. Other than that, not many symptoms. Anyway....can't lie...the first 3 months were hard (he was 5, and at the time I had a 3 & 2 year old). Almost immediately though, we started telling our son, his siblings...
  3. jmjsmomma
    Wow....I hear crickets chirping....I'll keep researching )
  4. jmjsmomma
    We use the Glutino brand cheddar crackers in lieu of goldfish.
  5. jmjsmomma
    My son did not like any of the breads. He would occassionally eat the Kinnickinnick white sandwich bread. Last week, we discovered UDI'S brand of frozen sandwich bread. It is SO GOOD. It is actually spongy, like "real" bread. My 6 year old is sooooo happy that he can have gluten-free bread that actually tastes good again!
  6. jmjsmomma
    I have a physical at the end of this month with a doctor that knows about Celiac Disease, so I don't want to go gluten-free until I have the panel done to prevent a false negative. Just curious about other abdominal issues in the meantime...
  7. jmjsmomma
    Hello, I am new to this board but not to the forum, I post on the Parents of Celiac Kids board. My now six year old was dx with Celiac via bloodwork and scope in January. My husband and 4 yo tested negatvie, and my 2 yo had the gene test as she was IGA deficient and she came back "no chance". I tried to have my doctor do the panel on me and she screwed...
  8. jmjsmomma
    My celiac six year old just had his six year check up. His pediatrician told us to not panic about swine flu (which I wasn't, anyway). He said that he would not even take the vaccine for himself or his family and would certainly not recommend it for his patients. He said it's been rushed and it is the squalene (sp?) that he is concerned about. Anyway...
  9. jmjsmomma
    After my 6 yo was diagnosed Celiac, I had my two younger children tested. My 2 yo daughter came back as "IGA deficient". My sons GI wanted to see her. He said that the celiac panel was useless since she was IGA deficient (I think her number was 15). He suggested two things....either test her again in six months (she is completely asympomatic), or do genetic...
  10. jmjsmomma
    We did. We were under the care of an endocrinologist for my son's growth issues before the Celiac was caught. He was tested for growth hormone deficiency and it came back normal. It wasn't until we were under her care for about a year that he started complaining of belly aches and had a very distended belly. Other than that he was not symptomatic. His...
  11. jmjsmomma
    Hi and welcome. My ds was diagnosed in Jan 09 at the age of 5. His only true symptoms were a distended belly and short stature. Then he started complaining of belly aches so that triggered his endocrinologist to do a celiac panel which was off the charts positive. Even six months into it, while he is doing SO much better, he is only 40 inches and 3...
  12. jmjsmomma
    My son had his bloodwork done last week, six months after his celiac dx. I am thrilled with the results! IgA: Jan = 62.8 June = 1.3 (Norm 0.0-10.0) IgG: Jan = 74.2 June = 6.1 (Norm 0.0-10.0) tTG IgA Jan = >100 June = 8!!!! (Norm 0.0-0.3) tTG IgA Jan = 58 June = 14 (Negative <9) I can't believe...
  13. jmjsmomma
    Welcome. My son is six months into being gluten free and still complains weekly of belly aches. We were told that it would take a year or so for his intestines to heal. I am also in the Dallas area, we see Dr. Kendall Brown (pedi GI) in Dallas. Not sure if he takes payments or not. I hope that you are able to get help for your son soon.
  14. jmjsmomma
    I certainly wouldn't let Celiac Disease stop me from having another baby if that is your hearts desire. My 5 year old was diagnosed six months ago. My 4 year old tested negative and has no symptoms at all. My 2 year old had to have the gene test because of her age and something weird popping up on her celiac panel and she is all clear and will never develop...
  15. jmjsmomma
    This month marks six months since my son's Celiac diagnosis. He seems to be doing very well. His distended belly is gone, his belly aches are (almost) gone, his leg pains have decreased significantly. He went in to his GI for a repeat Celiac panel yesterday. His tTg in January were "more than 100", the scope that followed showed a torn up little intestine...
  16. jmjsmomma
    I just requested to join too!
  17. jmjsmomma
    We have a gluten-free camp in Texas and I can't wait. It starts at age 7 and my ds is 5 so we have a bit to go, but I know that he will love it when the time comes.
  18. jmjsmomma
    boysmom I wondered the exact same thing.....the gene is either present or not, regardless of gluten consumption, right?
  19. jmjsmomma
    Our son's belly was huge. People always commented on his "pregnant belly". Within 3 weeks of going gluten-free we definitely noticed a difference (althought others didn't) but by 6 weeks it was almost completely gone and obvious to everyone.
  20. jmjsmomma
    Our son's dx came out of the blue. His bloodwork came back "off the charts" positive. We chose to do the biopsy based on his bloodwork, we wanted a clear understanding of what damage had been done to his intestines. It was the right decision for our family as other than failure to grow he was asymptomatic. It is a very personal family choice with no right...
  21. jmjsmomma
    We just got back from our first successful gluten free vacation!! I was a nervous wreck, but we did it! We were VERY well taken care of by the hotel manager, but the Food/Restaurant Manager was AWESOME and I promised to spread the word. My 5 yo was dx Celiac in Jan 09. We have been to this hotel 5 times, this was the 3rd time with the kids. A lot...
  22. jmjsmomma
    My son was dx Celiac in Jan 09 and we've been totally gluten free since then. His belly aches/joint aches went away and he's been doing great. Last Friday night, he got glutened by eating a ton of french fries from a festival (long story but we weren't with him). Sat, Sun, Mon, Tues he was miserable with "gluten belly". He cried with belly aches "Momma...
  23. jmjsmomma
    The fearful stage is SO hard!!! My 5 year old was dx in Jan. My 4 & 2 year olds are negative, as are my husband and I. At first, I just had my son gluten-free. Now that we are 4 months into it, our home is about 95% gluten-free because we have found alternatives to just about everything. Granted, I live in Dallas where options are abundant, but all...
  24. jmjsmomma
    Fortunately I did not get it till about 24 hours after our return home, but I think I'll be packing some of this just in case! I lost 4 lbs in 9 hours of throwing up which is a lot on my frame. I don't care to repeat it but am not going to lose out on a fabulous vacation either
  25. jmjsmomma
    Thank you Janet! We never leave our all-inclusive resort but the baggies for ice is such an excellent tip for any future travels. I figured from past visits that Mexico was celiac friendly so I am not too worried. My son loves all meats, all fruits, veggies, rice....so I am very fortunate there in that as long as the grill is clean he will be okay. He...
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