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Nicole H.

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  • Gender
    Female
  • Location
    Connecticut

Nicole H.'s Achievements

  1. I am just wondering how often everyone checks their numbers to see how they are doing. Should it be often? every 3 months? or once a year? How often does everyone think they got glutened even though they are very careful? Is it true that every time you get glutened you reverse all the work that you've done since going gluten free? Does getting glutened cause cancer? I am sooooooooo careful and every once and a while I feel like I was glutened :( Like right now I have a sharp pain in my upper abdomen. what is that?! thanks

  2. I have been 7 months gluten free. The past 7 months have had its up and downs. The occasional "whoops!" or the " Im not feeling right" But for the past 2 weeks I have been feeling off in my stomach. And to top it off this morning I had Diarreah. I never get that. It wasnt even a symptom of mine before I was diagnosed. A month ago my gastro told me to go lactose free for 2 weeks because I was complaining that I felt off again. Since my ttg numbers were 4, he said it couldnt be gluten so he told me to go dairy free. I never did because I didnt think that dairy ever affected me at all. Could I have become lactose intolerant this late after going gluten free? Or maybe I just have a stomach bug? This is what I ate yesterday.

    Breakfast:

    gluten-free corn flakes, milk, banana

    Snack:

    Black grapes

    Lunch:

    Homemade Sweet potato-peanut bisque(sweet potatos, peanut butter, extra virgin olive oil, onions, ginger, garlic, gluten free veggie broth and gluten free veggie juice)

    Fresh spinach with Kraft balsamic.

    orange.

    Dinner:

    small piece of plain chicken with pepper, small peice of steak, carrots

    Dessert:

    gluten-free Coconut macaroons with milk.

    Now I ususally have milk everyday so to get diarreah this monring is weird. Could it have been something else? I cant think of anything else that I introduced into my diet that would be different. Maybe Im just crazy!

  3.   Gfresh404 said:
    I used to think I was getting glutened a lot of the time (when I really wasn't) when I first started out. Turned out I was just bloated because I wasn't properly digesting/absorbing fats. I have found that if you're pretty sure it's not gluten, it's always something else.

    How long have you been gluten free? If it hasn't been that long then it's probably safe to say the gluten is messing you up. It really does effect virtually every other organ. I would definitely cut out dairy for a while, especially any lactose and casein. These can cause symptoms very similar to that of ingesting gluten. Casein has a very similar protein structure as to that of gluten and temporary lactose intolerance with Celiac is very common.

    If you did have another food allergy, it is very unlikely that it too would damage your small intestine like Celiac does. If anything it would probably cause inflammation and/or irritation somewhere else in the body.

    You could try keeping a food diary and try to notice when you feel like crap. I did that for a while and found out I have to take it easy on fats and no whole grains or cruciferous vegetables.

    Thanks, Ive been gluten free since February...So Im not sure if thats long or not. I know my numbers for my ttg are really low (4)...so my doctor said Im def. staying away from gluten. As for the dairy, it doesnt seem to bother me(at least I dont think!) haha maybe I dont want it to. I love milk, yogurt, cheese! so who knows. I did do the food diary for a while and then stopped, maybe ill try it again!

  4. Does anyone ever experience getting glutened and not knowing where it came from?!? I wish we had a self blood tester so we could see if our numbers are up after we feel glutened so that we can narrow down what the culprit was! Anyway, I have had a headache for days and I dont know if I was glutened or Im just sick! Thats another thing I get frustrated about. Everytime I feel off I blame it on gluten but Im not even sure if thats what it is. If I had an allergy or intolerance to something else, like corn, soy, dairy, casein...whatever it may be...what it do damage like celiac, or would it just be something that happens and its my decision whether I want to deal with the side affects? Thanks for the help.

  5.   Nicole H. said:
    So I bought Orgran(The Australian company) buckwheat pancake mix. I was very excited and they tasted great. But I felt sick a couple hours after I ate them. I let it go because quite frankly Im getting sick of freaking out about getting glutened. I had some for breakfast the next morning and a couple hours later again felt sick. So im thinking it was them?! The only other thing could be some quinoa pasta salad my mom made for me. Everything in it was gluten free. But the next day she said she wasnt sure if she used the same spoon to mix the pasta's. (she was making non gluten free pasta salad as well and used a wooden spoon for both, but she wasnt 100% sure if she did that or not.) So, ironically I had my 6 month doctors appt with my gastro yesterday for blood work to check my numbers. I explained everything to him and now hes doing a stool study on me. He always says hes not worried about me because of what he saw in my colonoscopy and endoscopy. He said everything looked perfect except for the fact that my villi were somewhat damaged to show evidence of celiac. So, sorry for all the info but im thinking, what else could it be?! grr, a little frustrated...thanks for listening!

    So good news! my Ttg came back 4! and my stool study came back normal! :) yay...so now I will have to keep it up!

  6. So I bought Orgran(The Australian company) buckwheat pancake mix. I was very excited and they tasted great. But I felt sick a couple hours after I ate them. I let it go because quite frankly Im getting sick of freaking out about getting glutened. I had some for breakfast the next morning and a couple hours later again felt sick. So im thinking it was them?! The only other thing could be some quinoa pasta salad my mom made for me. Everything in it was gluten free. But the next day she said she wasnt sure if she used the same spoon to mix the pasta's. (she was making non gluten free pasta salad as well and used a wooden spoon for both, but she wasnt 100% sure if she did that or not.) So, ironically I had my 6 month doctors appt with my gastro yesterday for blood work to check my numbers. I explained everything to him and now hes doing a stool study on me. He always says hes not worried about me because of what he saw in my colonoscopy and endoscopy. He said everything looked perfect except for the fact that my villi were somewhat damaged to show evidence of celiac. So, sorry for all the info but im thinking, what else could it be?! grr, a little frustrated...thanks for listening!

  7.   tarnalberry said:
    Exactly this! :)

    Thank you all for your responses...Maybe I was a bit hard on myself, but I got nervous lol. My husband said the same thing as you guys and he doesnt even have celiac. I was just nervous that if I make too many mistakes that it will hurt me in the long run. But I do appreciate everyones responses. So I slapped myself on the forehead and I will try not to do it again!

  8. So, As a rule I just dont drink. I dont like the taste of alcohol so I figure why drink something that I think tastes bad. So I was over a friends house last night and she made a mixed drink of some kind. And she asked me to taste it. Me not thinking at all took a little sip. I said mmm it tastes like a jolly rancer! Then I found out it had beer in it. How bad is this? you can tell me the truth I can handle it lol. I know it was irresponsible of me totally. I dont know what I was thinking. So...whats the verdict?

  9.   psawyer said:
    :o Thanks, Tiffany, for clarifying that. We have discussed this at great length here. I should have expanded for the benefit of a relative newcomer.

    And, given the hypothetical choice I cited, I would probably choose the one tested for 5 ppm. As Tiffany noted, 5 ppm is a very low test threshold for a commercially available food item.

    Nicole, I would happily continue using the chips. :)

    haha, thank you both! I will eat the chips with love now! thanks for the responses and now I know about 5 ppm!

  10.   happygirl said:
    Nicole,

    Did you eat anything different today than normal? Did you eat anything not prepared by yourself?

    Is the fiber a new addition?

    I hope you feel better soon.

    Everything I ate I had made myself. And theres NO gluten in this house! haha...The fiber is a once and a while thing Like when Im feeling like I cant go...So im guessing it was that(but it was only 5 grams thats why I was confused) It has let up and I am fine today so I do feel better! thank you guys!

  11. Ok so in short, I was diagnosed in Feb. with celiac. My blood test results of the Tga? or Tgg?, I cant remember what its called but anyway the results were 100. So I had a endoscopy to see and it was confirmed. 3 months later and had another blood test and it came out 19. So my doctor said he was encouraged and we will check again in 3 months. Right away after I went gluten free my symptoms went away! Especially the loud gas and being gassy all the time. So today I am experiencing the loud gas again. Just since 4:00. And I had already had gone to the bathroom(#2) twice once in the morning and then in the afternoon and the third time when I got home there was an awful lot in the toilet. I cannot understand because I dont eat that much! but anyway, could this be a cross contamination issue? Or could it have been the 5g of fiber I added to my milk this morning(with FiberSure), and I also had broccoli with my lunch. Am I crazy for looking into this too much?!

  12. So I went out to eat with my friends and I was planning on not eating. I ask them if they had a gluten-free menu. The waitress said no but she had a list of everything on the menu that contains any kind of allergy type thing. So I saw that they had "naked" chicken tenders which were just grilled chicken tenders with seasoning. I asked her if I could have it without seasoning and where it would be grilled(i.e if it is grilled with things that would have any kind of flour, wheat...gluten...ya know?!) she said it would only be grilled on the same grill as the burgers. SOOOOO I got it. Now im not a sensitive celiac, I dont even know if Im ever "glutened"...but for my overall health of not getting diabetes or cancer, do you think it was a wise decision or should I just stay away from things like this?

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