HelpinOhio

Since you have been eating gluten, if you have Celiac, the endoscopy will pick it up. (Assuming they take enough samples and the pathologist knows what he/she is doing). Since your blood tests were negative, there is a pretty good chance that any symptoms you have are caused by another disease. Continuing with the endoscopy will allow the docs to look for other diseases as well. If you have GI symptoms and with a family history of autoimmune disease, you may want to look into Crohn's and Colitis if your endoscopy comes back negative.

good luck

You should read some of the other threads I have made explaining my whole experience and all that I had to go through for years.

If I dont have Celiac Disease, Im pretty much all the way back at square 1 after having symptoms since before my 12th birthday (over 6 years now) and Ive been researching diseases for the past 1 1/2 years.

I do have GI symptoms, but its more autoimmune serious symptoms for me. I have a lot of trademarks of Celiac Disease. I have lost a lot of tooth enamel despite brushing habits that a dentist would be proud of, aching joints, muscle cramps, bloating, severe fatigue, just all over the board. Learning about Celiac Disease and then learning my mom had it, I thought I had a breakthrough because the more advanced symptoms (not just D) sounded exactly what I had. I had been searching for a long time after having my childhood and life ruined for nearly 7 years. I dont know what Ill do if its not Celiac Disease. The next disease that matched most my symptoms was Lupus, and I just got a ANA (anti-nuclear antibody) blood test and it came back normal. Ive also been tested for diabetes, thyroid, rheumatoid, other autoimmune diseases, chest x ray, abdomen x ray, ekg, 24 hr holtor monitor, other heart tests, and many other tests over the years. The only thing that has come out of it is constipation (which was already obvious), and low vitamin D, which Ive been taking tablets for 6 months now with no improvement physically. I just dont know...Im hoping its Celiac though. Whatever happens, Im going gluten free ASAP.

How accurate is an upper endoscopy in diagnosing Celiac Disease?

Im a 18 year old male, my mom was diagnosed with Celiac Disease through an upper endoscopy about 30 years ago.

Ive been eating gluten regularly for about 8 months now, and about 6 weeks ago I added 2-4 more pieces of bread per day. Im scheduled to have an upper endoscopy in about 2 weeks. I had the blood tests/labs for Celiac Disease done about 2 weeks ago and got the results back yesterday, which supposedly came back negative. This wasnt much of a surprise because it is most likely false negative. I asked for a copy of my results just in case.

About how accurate would the upper endoscopy be for me?

Your story is also very similar to mine. Im a guy and 18 years old though. You can read my other threads to see most of my story and all the things I had to go through. I started having bad problems a little before my 12th birthday and its been horrible ever since. Most of the time like living very sick in a fog, and sometimes like in a waking nightmare. Im effected by the mental and physical auto-immune response of the disease.

Im about at the same place as you as far as the diagnosis. Ive also been through many tests over the years and just about all of them came back negative. Out of the many things Ive been tested for, only thing that came out of it is Low vitamin D and constipation, which can both be symptoms of something bigger. I got blood tests done about 5 days ago and should have the results back in 2 weeks, I also have a upper endoscopy scheduled in 3 weeks. Im hoping to get a positive diagnosis, but either way Im going gluten free after the results come back.

My advice to you is this: You are an adult now and there is nothing stopping you from going on a gluten free diet. It cant hurt. However, if you want the correct diagnosis than you have to eat a good amount of gluten everyday for a few months before the tests for Celiac Disease are done. Preferably 4 pieces of wheat bread a day for 2 months. Do this before the blood tests and the upper endoscopy. Even with that a lot of times there are false negatives. Which means you have it, but it doesnt show up on the tests. In this case, the only way you can be sure is to go completely gluten free for a few months to start and see how you feel. If you have Celiac Disease or a gluten intolerance, you should start feeling better as soon as a few days or a few months. You have to make the decision whether you want the tests done properly and the diagnosis, or you just want to try and go gluten free. If you do decide to go gluten free though, make sure you really arent eating any gluten. Find the list of ingredients that contain gluten (its over 100 ingredients), and make sure you dont eat any of those.

What you describe does sound a lot like Celiac Disease to me. Try for that and whatever happens, dont give up. If you do indeed have Celiac Disease, you are lucky in finding it this early. There are many people on here who didnt find out they had it until they were 50-70+ years old. You are not alone in this, trust me. And most of all, just good luck and I hope you find whats wrong with you soon.

If you want to know my whole story look at the my other threads and the one in "coping with" discussion about losing my childhood.

Anyways, I came to the conclusion that I do have Celiac Disease. My mom has Celiac Disease and I have many symptoms of it, Ive been researching what is wrong with me for 1 1/2 years now. I got the blood test twice about a year ago, and both times I had been almost all gluten free for a few months prior. They came back negative.

I have been eating gluten normally for about 8 months now, and added a +2-4 pieces of bread a day for the past 5 weeks. I felt worse than ever. I went to the GI and got the blood test done about 5 days ago. The results should be back within 2 weeks. I also have an upper endoscopy scheduled for about 3 weeks from now.

Now, Im pretty sure that I do have Celiac Disease, but what if the diagnosis comes back negative?

Or even worse, what if I dont have Celiac Disease at all?

Then I would be all the way back at square 1 after having a mystery illness ruin my life for the past 7 years, including the majority of my school years and childhood. Im just nervous now and having my doubts. Most of all I feel like I need the positive diagnosis for anyone to believe me. If the diagnosis comes back positive and all I have is Celiac for sure, everything will be great. But if it doesnt...I dont know what I will do. Any thoughts? suggestions? comments?

I want to share with everyone what happened.

So I got there, did the paperwork, saw nurse, etc. I made sure to bring a list of my symptoms and to also talk to them about all of my symptoms. The doctor came in, we talked for a while about what was going on. Although hes an expert and all, I silently disagreed with a lot of things he said. He doesnt seem to understand me or what Im going through the least bit.

I made sure to highlight all of my stomach symptoms in hopes that he would concentrate more on Celiac Disease, and it worked, but somewhat backfired on me. He said he doesnt think its Celiac Disease, but will test for it anyways. He also wants me to get a colonoscopy, which I will refuse to do. The whole reason for that is he assumed the majority of my symptoms had to do with stomach/GI symptoms, which they dont. I have looked up a colonoscopy and all the things they test for, and none of those sound anything like what I have. I have no symptoms of what it tests for. However, I will get the upper endoscopy done, which was what I was hoping to get all along. Its scheduled for about a month from now.

He also filled out a sheet of different blood tests/labs he ordered me to get done. The 2 (maybe more) major Celiac Disease ones were included, and about 8 other ones also. I went to get the tests/labs done, and they pulled out like 10 containers I needed to fill (ouch). I got all the blood taken, and that was that. I should have those results back within 3 weeks.

I could have just gone gluten free without the positive diagnosis, but I really feel the positive diagnosis would be more beneficial to me. Whether it comes back positive or not, in 2 months Im going on a gluten free diet regardless, Im done wasting time. Anyways all in all it went pretty good. Wish me luck.

Although the noticeably bad symptoms started at age 12, and the worst at 16, Im considering that Ive had symptoms of Celiac Disease my entire life. Now that I think about it, I was never really normal or all the way healthy. There was always something just a little off about me my whole life and others noticed it. It was bearable until I was 12, but from then on my life has been completely ruined. For the last year or two Ive barely been able to leave the house.

Anyways to everybody, I have my first appointment with a GI Specialist later today. Wish me luck. If everything goes like I hope, Ill have the tests done within 2 weeks, and Ill have the results back within 1 month or so. Then within 2 months I should be on a gluten free diet. I should continuously get better until Im at near 100% in 8 months or so. Ooh this all so exciting. Im a little anxious, I havent been healthy, there, or really normal for as long as I can remember. Hopefully everything goes as I hope it will. Good luck to all of you, and again thanks for the replys. This could be a life changing point in my life and this website and people on here have really helped, thanks.

I have to remind everyone that Im still going through the bad part right now. Ive been eating +4 pieces of bread daily along with whatever gluten I normally eat for over the past month, and I feel horrible. Ive also been eating gluten regularly for the past maybe 8 months. Im still going through this, but it should be over soon enough. Ive had bad symptoms from Celiac Disease nearly 7 years, I can wait 2 months to get the diagnosis. I will say that there have been many times in the last month that I considered just doing the diet and forgetting the diagnosis because of how sick I felt mentally and physically, but Im proud of myself that Ive gotten this far.

I know that most peoples childhoods arent perfect. I also know that even if I didnt have Celiac Disease my childhood still wouldnt have been perfect. But at least I would have had a childhood, and been there to experience all of it. Thats the part Im talking about. There is nothing I can do about that though, after Im better Ill try my best to make up for all of that lost time. There have been some positives from my experience though. I know what true pain and misery is, so I have more empathy for other people who are going through it. I will also never take being healthy for granted again in my life. Healthy people dont know how good they have it. Hopefully I will be one of those healthy people soon. A few other things also, Im trying to identify all the positives from the experience.

Anyways again thanks for the replys.

Thank you all for the replys. I feel a little bit better now after hearing these.

They say the average time for having Celiac Disease before being diagnosed is 11 years, so Im actually less than that. Im glad I found it this early in my life instead of having to deal with all of this until Im a lot older. Im still a little frustrated that I didnt know about this 6 years ago, but theres nothing that I can do about that and I just have to move on.

Another thing that Ill say is Im glad that how I felt is not how your supposed to feel, and Im glad that all of this bad stuff is about to be over. Ive been living in pain for over 6 years, Im curious to see how normal feels. Anyways thanks for the replys and keem them coming. Thank you.

Im very frustrated and sad right now. Almost my entire childhood was ruined and lost because of Celiac Disease. Its like none of it ever happened. I had a mystery illness this whole time, and nobody could ever figure out what it was until I did it now. Im a guy 18 years old, and although thats young, I cant believe Im this old already. The last clear memory I have was when I was around 11 years old. For the last 7 years, if not more, I havent really been here. See, Celiac Disease has effected me badly physically and mentally. For the past 1 1/2 years Ive barely been able to leave the house. I had to leave high school and do it at home on the computer. My class is graduating in 2 months, and I wont be there with them.

Around my 12th birthday I became very sick feeling, I stopped eating for some reason. I went through a lot of tests and nothing physical came up. Supposedly I was healthy, but just thin. They couldnt find out what it was, so they put it off as depression. For the next 3 years I was in and out of counselors offices and seeing psychiatrists. I was tried on about 6 different anti-depressant/anti-anxiety medications. Everybody who knew about it assumed I was crazy and has never looked at me the same since. I was backstabbed by every member of my family. Nobody ever listened to me. This whole time I told them it wasnt depression, and I didnt need to take medication or go to counselors/psychiatrists. Through all of this I still had to go to school and do all the daily tasks. The amount of stress I experienced was ridiculous. I went to mental hospitals twice. Everyone agreed that the medication and counselors werent helping me so I stopped going. I started going to high school. Still felt very sick. Things continued to get worse. About 1 1/2 years ago I went through a series of frightening panic attacks, and all new symptoms. My whole body started hurting badly. I couldnt concentrate anymore. It was so bad I had to leave high school. 1 year ago I went through a whole new series of tests, and still nothing came up other than constipation and low vitamin D. Finally after all this time, it was finally mentioned that my mom had celiac disease. I stopped eating most gluten and started to feel better. I took the blood tests, but they came back negative. Most likely because I wasnt eating gluten. I have been researching different diseases extensively, taking it in my own hands to figure out whats wrong with me since then.

I finally came to the conclusion that it is Celiac Disease. I have an appointment in a few days. Hopefully within 2 months I should have all the tests done and started on a gluten free diet. While most people will talk about their childhood and teenage years with stories of boy/girlfriends, parties, school events, accomplishments, all I have to talk about is how horrible it was, how I dont remember much, and how sick I was. I am happy that all this bad stuff is about to be over with, but I can never get those precious years back. I lost my childhood because of something that wasnt even my fault. Now Im 18, supposedly an adult, and about to be thrown into an adult world that Im not prepared for.

Anyone with a similar story?

Anyways thanks for reading/listening. Please reply if you have the chance.

I have my 1st appointment with a GI Specialist in a few days. Im somewhat anxious about it. Anyways I have some questions about all of this for anyone that knows:

1. Can I ask the GI Specialist specifically that I want an endoscopy done, checking for damaged Villi caused by Celiac Disease? Will the GI Specialist agree to have an endoscopy done?

2. How long will it take from the GI specialist ordering the endoscopy, to getting the procedure done? Will it be the same day, next day, few days, weeks?

3. After getting the endoscopy, how long will it take to get the results back from it?

4. About the endoscopy itself. Can someone explain it to me? How uncomfortable is it? how long does it take? I have problems with blood sugar (not diabetes, probably caused by Celiac Disease), so I need to eat often, will that be a problem?

5. Can the GI Specialist also have the blood tests checking for Celiac Disease ordered?

Thanks if you can answer.

Thanks for the replys.

Im sorry that I didnt specify a few things.

I have been eating gluten for the past 8 months, and have added +4 pieces of bread daily to my diet nearly a month ago. I have an appointment with a GI in a few days. I was aware you had to eat gluten, so thats why I started doing it. I will most likely get the endoscopy done, and blood tests redone within 2 weeks. I have had blood tests for Celiac Disease done twice over a year ago, while 95% gluten free, and they came back negative. The fact that I hardly ate any gluten has me skeptical though. Since adding more gluten, I have felt even worse.

I also have used the "Pre-Diagnosis" topic a few times and made threads in there. If you want to know the whole story you can check my threads in there, I made about 4 so far. I didnt mean that I was going to take these products out right now, Im just trying to learn more now instead of later. Im 18 years old, have had a bad mystery illness for nearly 7 years, if not my whole life. It has ruined my life and the majority of my childhood. I was tested extensively for many different things in 02-03 (when I became very sick), and then again in 07-08 (even sicker). My mom never mentioned she had Celiac Disease until the end of all that, she hasnt been on the diet in over 10 years for some reason. Needless to say, I am extremely annoyed and frustrated at the whole situation. Im just hoping to get better finally and get on with my life.

Im new to Celiac Disease, and have yet to be diagnosed, but at this point Im 99% sure that I have it. Im a guy 18 years old, have had horrible symptoms for 3 years, bad symptoms for 7 years, and possibly symptoms throughout my whole life. Ive been researching whats wrong with me for the past 1 1/2 years, and long story short, everything leads right to Celiac Disease. My mom has it also.

Questions:

1. Do you have to check the ingredients of everything? I thought it was just things you had to eat or put in your mouth.

2. Which of these do you have to check (if any, or all)? Toothpaste, deodorant, shampoo, conditioner, soap, sunscreen, deodorant spray/cologne, hair dye, bottled water, shaving cream. Any other common products?

I cant remember if Ive been tested for Lupus or not. I was tested for several other auto immune diseases like Rheumatoid though, and everything came back negative.

A lot of my symptoms do sound like Lupus, thats why I was considering it. There are reasons why I doubt that I have it though. One, I have no family history of Lupus. and Two, Im a 18 year old boy. Over 9/10 people with Lupus are girls, its mostly a female disease. The facial rash was the one that got me the most worried though. It started 2 summers ago when I had been in the sun and using this face wash. My whole face was very dry and irritated, then the rash appeared. Noone else seemed to notice it, but it was obvious to me. I stopped using the face wash immediately, but the rash didnt go away. I must have had it for 3 months or so. I havent had the rash for since then, but my face is still red.

Being diagnosed with Lupus would be very bad news. Noone wants that diagnosis. Lets just hope its Celiac Disease and not that. Ive heard a lot of people with symptoms as bad or worse than mine, and it was just from Celiac Disease. Im keeping my hopes up.

Ive made several other threads in here, but I wanted everyone to see all my symptoms and what you think of them. At this point I havent had the positive diagnosis yet, but am going to get another test at the end of the month, and Im now 90% sure that I do have Celiac Disease. My mom has it and everything leads right back to Celiac Disease. When I went gluten free for a few days I already started to feel better.

My symptoms:

Physical Symptoms: severe fatigue, malaise, pallor, joint pain and grinding, stiffness, muscle aching and easy cramping, severe temperature sensitivity, skin turns white/purple/blue when cold and red when hot, also numbness, very dry skin and hair, flushed face, sunken eyes, teeth look bad yellow/clear because of loss of enamel, photosensitivity, constant colds and sinus infections, pressure in head, headache, constant ringing in ears, constipation, bloating and gas, reoccuring rash on nose and cheeks, lightheadedness, cant breathe, ocassional palpitations

, probable stunted growth, low weight with skinny bones, weakness, worsening vision and hearing, need to eat and drink constantly or I feel worse...

Mental/Emotional Symptoms: Mild Depression

, moderate anxiety, temporary psychosis, feeling of unreality, like being in a bad dream, everything is passing me by, blunted mood, possible psychic abilities, lack of emotion, lowered inteligence, school grades went from As to Ds, mental fatigue, feeling confused/disoriented, bad memory, no motivation, cant concentrate, mood swings...

From my research, Celiac is the most likely. Next after that is Lupus, but Im pretty sure its not that.

What do you think?

Im 18 years old and suspect that I have Celiac.

About a year ago my mom told me that she was diagnosed with Celiac Disease when she was younger. Possibly around 25 years ago. Her main problem was just the stereotypical Celiac Disease symptoms, Diarrhea whenever she ate gluten and stomach pains.

When my mom got older she started eating gluten again because it didnt bother her stomach anymore. Supposedly her doctor said she can stop with the gluten free diet if it doesnt cause any symptoms. Based on what I have learned about Celiac Disease, this doctor was very stupid for saying that. I heard that your supposed to go gluten free for life. Even if it doesnt cause any noticeable symptoms it can still damage your intestine and increase your risk of getting cancer a lot. My mom has problems with her tooth enamel, headaches, dry skin, her hair barely grows. She lives a normal life but is not completely together mentally. She also has hypoglycemia and thyroid disease. I believe that all of that is caused or worsened by her eating gluten. Im worried about her. Personally I think that she should not be eating any gluten at all.

What are your thoughts on this?

and what should I do?

Well its been settled now that I am getting tested again at the end of this month. Im seeing a GI for a possible Endoscopy and then Im asking to get the blood tests done again because they should come back correct now. Whether that be positive or negative. Either way after all this is done I should be going gluten free again.

I figure I might as well get the test done because Ive been eating at least some gluten daily for the past 8 months maybe. Also over a week ago I started adding +4 pieces of bread daily. By the end of the month I would have been doing that for about 30 days which is good. Ive definitely noticed that my symptoms have gotten worse since adding more gluten. Seems like this could finally be my answer after at least 6 years, if not more. And Im only 18 years old now. I wanted the diagnosis because then I will know for sure and it will be more official to me. I will have proof of it.

Will they allow me to get tested for Celiac Disease even if Ive already been tested twice?

As I mentioned in my other threads, I was 90% gluten free for a few months before both of the previous tests for Celiac Disease. Nobody told me that I had to eat additional gluten before the tests for 2-6 weeks. I hadnt eaten any before the 1st test, and only for 2 weeks before the 2nd test.

What Im worried about is if my doctor will allow it?

And will our insurance allow it?

Does anybody know? thanks.

Again, thank you for the replys.

Ill be making posts on this site occasionally for a while to keep everyone up to date and to ask any questions that I have, and I do have a lot of questions. It seems that even though Celiac Disease (or whatever I have) basically took 7+ years of my life away, it could have been a lot worse. Of course I wish I would have known about it 7 years ago, but Im glad I found it as Ive heard stories of people having it most of their lives and never knowing about it. ravenwoodglass its sad that it took that long for you to finally know for sure what was wrong with you. I hope everything is going well now.

Im still planning on going through with eating the gluten and then getting the tests done. I have had several moments in the last week where I thought it might be better to just go on the diet. It seems like this added gluten is taking a toll on me. Its proof to me that the gluten is effecting me in a negative way. Ive been pretty tired and out of it, odd feeling. Also nausea, bloating, complete lack of interest in things. I went 7 years though, 3 weeks shouldnt be that difficult. I just hope everything turns out as planned. Im looking forward to those tests coming back positive, or at least going gluten free whatever the results are. In my case I have a feeling like itll feel like waking up to a beautiful world from just a bad dream.

Thank you both for the responses, and I hope to get some more replys.

My decision as of right now is to continue eating an increased amount of gluten/wheat for the next couple weeks, then Im going to get another blood test for it, and whatever other tests they have for Celiac Disease. Ive been eating a few gluten products everyday for the past 3 months or so, and 1 week ago I started eating +4 pieces of wheat bread a day added to whatever else Im eating to make sure. After I get all the tests done, regardless of the results, Im going to go gluten free. Im almost positive that Ill feel better as the less gluten I eat it seems the better I feel, especially true when completely gluten free. I feel that I really need the proof though. I would really like for the results to come back positive for Celiac Disease, then I would go gluten free, and everything will work itself out. At least thats what Im hoping will happen.

If everything does work out this would be a huge relief to me. As Ive said Ive had some serious mystery illness for 7 years now if not more. The past 2 years have been the worst. Ive been stuck in my house most of the time for the past 8 months. Im too sick and look too sick to go anywhere. Ive been out a few times, but I always feel so bad. I have many symptoms. Im frustrated and sad because Ive missed out on the majority of my childhood. I was there, but not all the way. I didnt experience most of it fully. It was like being in a fog, or a waking bad dream. Theres no way I can get back that time, but it would be such a relief if everything turns out good, I go gluten free and I finally get on with my life. It might sound weird to some, but Im just hoping those results will come back positive.

Im a 18 year old male. Im not sure if I have Celiac Disease, but my mom does have Celiac Disease.

Ive been having a lot of problems for the past 7 years now, especially the last 2 years. I was tested for a lot of things and they all came back negative. They said I had some type of mental disorder like Depression/Anxiety. I do have mental symptoms, but that doesnt account for the 90% of other symptoms that I do have. Its a pretty long story. Anyways I realized how bad I was doing about 1 year ago and I started doing research. I went back to the doctor and got tested a few more times but they couldnt come up with anything. My mom told me that she had Celiac Disease after all this time, which she never even mentioned before. She hasnt been on the diet for over 10 years because supposedly it doesnt cause any symptoms for her. A lot of my symptoms match up perfectly with Celiac Disease, about 95% of them.

After I learned that it might be Celiac Disease, I went on a 90% gluten free diet for a few months, then I got tested for Celiac Disease for the 1st time. It came back negative and said I didnt have Celiac. I had no idea you had to eat gluten before the test. I didnt know this until right before the 2nd time I was tested. I ate bread for 2 weeks before the 2nd test and it came back negative again. Keep in mind before those 2 weeks I had still been 90% gluten free for over 4 months. Only when I was completely gluten free did I start to feel better, which I could only do for a few days. Anyways Ive been eating gluten now for a couple months and feel pretty bad. Ive been eating a lot of it because Im planning on getting tested again. Im pretty sure that I have it, but I want to have proof that I have it and everyone will know and believe me and Ill know for sure. I dont know what to do. Im very frustrated.

Do you think I should get tested again?

or should I just try the diet?

Thx for replying. I got blood tests done 2 separate times. Im not sure how I did on them, but the doctors said they showed I didnt have Celiac Disease. I was skeptical about that validity of that because I made a mistake in my eating patterns. I didnt know much about the tests until after the 2nd time. Now I hear your supposed to eat a good amount of gluten a day for over a month prior to the test, and I had not.

Yes my mom has Celiac Disease, and I have several other relatives who may have some degree of it. Like I said, its a long story. Im 18 now and realize I may have had it for the past 7 years which caused all of my problems and nobody could figure out what it was. Ive looked in books and on the internet researching what I might have for over the past 16 months, and I believe I finally know what it is, Celiac Disease. Ive had so many precious moments and years of my childhood taken from me, and all I want to do is feel better. I was forced to do home schooling, because I was too sick to go to school anymore. I now only have 4 credits left to graduate, but I cant concentrate enough to finish them plus I have no energy.

Im contemplating which I want to do. I think I would rather have solid proof so everybody will believe me and it will be settled. In that case from today I should start eating a good amount of gluten everyday and get tested again in 6 weeks or so. Im pretty sure it should come back positive after that. Then I should get a nutritionist, and it will all be settled. Or I could just go gluten free now with no tests and see how I feel. I just hate to waste any more time. I hope I feel better very soon also.

Im a 18 year old male. Ive been tested for Celiac Disease twice and supposedly tested negative both times.

This is the problem though:

I ate bread rarely for over a year prior to the 1st test, gluten yes, but like pure wheat products like bread not really. I had heard I might have Celiac Disease before this, so before I took the 1st test, I had been 95% off of all gluten for 3 months prior. I hadnt changed my diet before the test.

The 2nd test I had only started eating 4 pieces of bread 2 weeks prior to the test. This was about 3 months after the 1st test and my eating patterns had not changed. Except for 2 weeks before that, I had still been 95% gluten free.

I have many symptoms of Celiac Disease and my mom has it. Its a very long and sad story with all of my symptoms I could go on for hours here and I dont have near enough energy to say all of it. Ive said it all way too many times before and I just cant do it right now. Im not sure if I want to go through the pain and wait of getting tested again, or if I should just try to go completely gluten free without that and see how I feel. The longest I have gone completely gluten free was about 3 days. At the end of those 3 days I was already feeling better and could concentrate much better. I could already tell that I was improving. Too bad we didnt have the right food for me to keep going.

This is my question to all of you that are listening:

Should I eat a lot of gluten for over a month and then get tested again?

or should I try to go gluten free and see how I feel?