
Shanmegjilal
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Everything posted by Shanmegjilal
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ARCHIVED Not Wanting To Attend Any Social Functions Involving Food
Shanmegjilal replied to Shanmegjilal's topic in Coping with Celiac Disease
Thank you so much for all of the input.I'm trying so hard to not let this ruin my life but instead of getting better at dealing I feel like it's getting harder.I just feel like EVERYTHING involves food.I go and pretend I'm fine but inside I'm so upset...It's definitely the psychological part of this disease that's wearing on me.I guess somedays are better... -
ARCHIVED Not Wanting To Attend Any Social Functions Involving Food
Shanmegjilal posted a topic in Coping with Celiac Disease
Hello, I have been going to parties,BBQ's,etc for the last few years since being dx'd but now I have started to decline invitations because I find it so hard to go and watch everyone else eat and comment on how good everything tastes and having to pretend it doesn't bother me. I find it's easier to eat at home first rather than bring my own food to events... -
ARCHIVED Eating At A Restaurant That Says They Have No Gluten Free Options
Shanmegjilal replied to DoogiePCT's topic in Gluten-Free Restaurants
Thank so much.That's a good idea.Do you call the restaurant and ask them if it's ok first?Have you ever had a restaurant not allow it? -
ARCHIVED Eating At A Restaurant That Says They Have No Gluten Free Options
Shanmegjilal replied to DoogiePCT's topic in Gluten-Free Restaurants
I am in a similar dilemma and so worried about how to handle it.A large group is meeting at a Sports Pub and when I called they said they can do grilled chicken and "we have vegetables".The girl on the phone didn't sound that confident leading me to believe they may not do this too much.I usually only go where they offer a gluten-free menu or where I feel... -
ARCHIVED Eating Less Healthy On Gluten Free Diet
Shanmegjilal replied to Shanmegjilal's topic in Related Issues & Disorders
Thank you for your help.I definitely need to cut back on the breads!!!I just find this diet so hard as I was always a bread lover!A lot of vegetables bother me such as spinach,broccoli,summer squash and zucchini.Also, different types of lettuce.The gluten free bread type products have just been easy but I'm paying the price.I do exercise but will try increasing... -
ARCHIVED Eating Less Healthy On Gluten Free Diet
Shanmegjilal replied to Shanmegjilal's topic in Related Issues & Disorders
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ARCHIVED Eating Less Healthy On Gluten Free Diet
Shanmegjilal posted a topic in Related Issues & Disorders
Hello,I was dx about 1 yr. ago.I crave breads,muffins,cookies(I eat the gluten-free ones) and chocolate.I find that I like a a couple glasses of wine at night now as my "treat" from being "deprived"!I've been gaining weight.I'm always hungry and find that a sandwich with udi's bread doesn't fill me at lunch so I snack on peanut m&m's in the afternoon... -
ARCHIVED gluten-free Options At Foxwoods Or Mohegan Sun In Connecticut
Shanmegjilal posted a topic in Traveling with Celiac Disease
Has anyone had any positive experiences in dining at either of these places?I wrote to both but didn't get any specific recommendations except Cedar Steakhouse at Foxwoods .I've dined there and found them to be very knowledgeable and helpful but expensive!I was wondering if anyone else has tried any of the other restaurants at either of these places.I'm going... -
I've been going to the 99 restaurant because they have a gluten free menu.I always get the gluten free hamburger roll so I know exactly what it looks like.The other day I received a different roll and questioned it.The server said he had verified it was gluten free with the chef before he brought it out.He offered to recheck because I said it looked totally...
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ARCHIVED gluten-free Still Having Symptoms
Shanmegjilal replied to Mrs. Smith's topic in Coping with Celiac Disease
I've been getting worried,too.I've been gluten free for 5 weeks and my symptoms of numbness and tingling in my extremities hasn't changed at all.In fact my back has gotten even itchier!!!Is this normal?People who had these symptoms, it's months for them to clear sometimes??????????????I've begun to worry that something else is going on???? -
ARCHIVED Good Gluten Free Bagels Or English Muffins...
Shanmegjilal replied to mindiloo's topic in Gluten-Free Recipes & Cooking Tips
I just tried Trader Joe's English Muffins Gluten/Dairy free.They are VERY good but as I'm finding they HAVE to be toasted which you do with English muffins anyways.I've been making sandwiches with them as they are pretty good sized....I was so happy to find these!!!! -
ARCHIVED Neuromuscular Disease
Shanmegjilal replied to billy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My symptoms prior to diagnosis were only neuro symptoms.I've had and still do (dx 1 mnth ago by bx) have toe numbness and pins/needles in my feet.For a couple mnths I had vibrating from my feet up.My left hand has less sensation than my right and in fact my left foot seems worse than my right!Very weird.My Dr. never thought of celiac and had been going through... -
ARCHIVED How Celiac Disease Has Changed My Life
Shanmegjilal replied to cgilsing's topic in Coping with Celiac Disease
I just started the diet 1 mnth ago and am finding it very difficult and discouraging right now.What a HUGE lifestyle change.I have a husband and children who eat "regular" food and I'm trying to keep it normal for them and gluten free for myself.I end up skipping meals sometimes because it's too much of a pain to look everything up,etc.We used to love to... -
ARCHIVED Gluten Free Calcium Supplements
Shanmegjilal posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I just had the Bone density test and was told I had osteopenia and need to start 1200 mg of calcium w/ vit. d per day.Does anyone know if there is a certain brand that is safe?I know it's over the counter.Thank you. -
ARCHIVED Post Diagnosis Blood Tests/tests?
Shanmegjilal posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi , I found out by bx that I have celiac about 1 mnth ago.The GI nurse called to tell me and said to do the diet and the Dr. wants to do another endoscopy in 4 mnths.Thats it???!!!My health insurance doesn't cover a nutritionist consult which my Dr. ordered.I'm figuring it out but don't even know when my numbness/pins and needles in my feet will/should go... -
ARCHIVED Greasy Hair?
Shanmegjilal replied to purple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I'm new to this forum.I was dx with celiac by bx 1 mnth ago.My hair started to get VERY greasy last October!It was definitely something totally different for me.My B 12 level was very low.I received B12 inj and now my level is up.My hair doesn't seem as bad but I think it takes some time.I think greasy hair could be related to vitamin deficiencies, maybe... -
ARCHIVED Greasy Hair?
Shanmegjilal replied to purple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Itchy Back Without A Rash And Pins/needles In Feet
Shanmegjilal replied to Shanmegjilal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for all your info.I really appreciate the help.I had been receiving B 12 inj. for 3mnths prior to dx of celiac due to a low level and was also taking B-complex supplements and now my level is >1500!!So, now I'm off the supplements of course but I hadn't thought of Mg and Zinc....Should my Dr. check these levels? This sounds crazy but if I... -
ARCHIVED Itchy Back Without A Rash And Pins/needles In Feet
Shanmegjilal replied to Shanmegjilal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Dont Know If I Could Go Through With A Biopsy
Shanmegjilal replied to KristinNicole's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Itchy Back Without A Rash And Pins/needles In Feet
Shanmegjilal posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, I was diagnosed 4 weeks ago by biopsy and my main sx are pins and needles in both feet and a numb toe.I also have decreased sensation in my left hand and a very itchy back!Anyone else with this?How long on the gluten-free diet until symptoms resolved?I'm trying not to worry but read that these sx can be present in lymphoma and I know celiacs are at a... -