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Sharon C.

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Everything posted by Sharon C.

  1. Sharon C.
    Not sure about this and can't seem to find info on their site. Anyone know if 43 Cuarenta Y Tres is safe? Thanks! It is is a vanilla like flavored dessert liquor served often with dessert as a cordial or in coffee.
  2. Sharon C.
    Hi! They biopsied a little red speck and an area near the red speck. I wish they would have taken it from a location that was more affected by the rash, though. They took it from a place that was not as affected. I have it mostly on my calves and ankles, outer elbows and forearms, wrists all symmetric, and also some scattered on my back and a couple...
  3. Sharon C.
    Hi- Thanks for all replies. I am a little confused now. I keep my son STRICTLY gluten free because I was told and also believe that even one molecule of gluten would release an entire army of antibodies that would then harm his intestines. I was told and believe that even one tiny crumb of contamination would release an entire army of antibodies....
  4. Sharon C.
    I have a definite reaction of some kind to tomatos- my face turns bright red like a sunburn and my eyebrows can even swell. I really liked tomoatos. When I make a pizza, I use the gluten free crust, and I take olive oil and rub it on the crust. Then I cut up some roasted red peppers and grate mozzerella cheese over that, add a little more olive oil and...
  5. Sharon C.
    After breaking out with a rash that I think could be dermatitis herpetiformis, I went to a dermatologist that couldn't diagnose it even with a skin biopsy. The rash has calmed down alot, but I still break out mildly. I found another doctor willing to screen me for gluten intolerance with a blood test, but I have now been strictly gluten free for 4 months...
  6. Sharon C.
    I called around town looking for gluten free beer. A liquor store near me happened to have this beer. It says right on the cap "gluten free". I had to steam clean my kitchen floor yesterday because it needed a good cleaning and I felt like having a beer while working. This is the first time since going gluten free last October that I've had beer. Not...
  7. Sharon C.
    A blood test now should show no antibodies if you've been gluten free 18 months. Going back to gluten knowing it causes bloody mucus seems like a bad choice.
  8. Sharon C.
    Yes, I just ate some of those! I think I found them at Whole Foods.
  9. Sharon C.
    I have been gluten free since October 21st and although the rash has definitely improved, it's not gone. Also, without the help of Dapsone, I understand it might take longer for my skin to clear up- possibly up to a year or more. When I eat salty foods (potato chips, corn chips) I definitely see the rash act up. I will probably have to go to some university...
  10. Sharon C.
    My dermatologist doesn't believe I have DH even though the skin biopsy was inconclusive. His reason was because the rash I have does not have obvious fluid filled blisters. It does, however, seem to linger on my elbows and knees, calves, and ankles mostly. And it leaves scars. I occasionally get a spot on my back or butt, but the main places are elbows...
  11. Sharon C.
    For my son I use Ener-G Tapioca Lite bread (softest and most like regular bread that I can find) and make him sandwiches. Tuna, lunchmeat (Thumann's is gluten-free, and Hormel, and Oscar Meyer), or Soynut Butter and jelly sandwiches (he is allergic to peanuts and the soynut butter is tasty.) Eggsalad is another, chicken salad, or shrimp salad. To give...
  12. Sharon C.
    Although my dermatologist reached inconclusive skin biopsy results, I strongly believe I have DH. Where these spots begin to heal and eventually go away, I have dark purplish scars. Is there anything at all that can help them fade or go away faster? I am using pure coco butter. BEfore I came to the DH conclusion, I used pure Vitamin E oil (from wheat...
  13. Sharon C.
    I have researched some websites on these cheeses and I never see any bread mentioned in their making, even on step by step do-it-yourself websites. Why is it widely believed these cheeses contain bread? Thanks!
  14. Sharon C.
    I guess my questions are: Can I really consider this negative when I do have symptoms of Celiac? Should I go to a different dotor and get another biopsy? If the biopsy was done when I already went on the gluten free diet for a few weeks, would that matter? Can you get one or two flea bites and break out all over your body with a dermatitisherpitiformis...
  15. Sharon C.
    When my son was disgnosed with celiac a few years ago, I asked my doctor for a blood scan. They didn't even know what blood test to order because in the 40 years of his career, this doctor had never diagnosed anyone with celiac. They called the lab to ask them what test I should get. So I had a blood test, and they said it was negative. In the meantime...
  16. Sharon C.
    Hi- My son is going back for a follow up after being diagnosed last October with Celiac. They are testing him with this same test. They are not doing a Gliadin/IgG-IgA. Just a tTG, and also thyroid function and also CBC/platlet. Is this a normal way to check to see if levels have gone down? Also, when my son was diagnosed, I asked my doctor to screen...
  17. Sharon C.
    Hi- My son is going back for a follow up after being diagnosed last October with Celiac. They are testing him with this same test. They are not doing a Gliadin/IgG-IgA. Just a tTG, and also thyroid function and also CBC/platlet. Is this a normal way to check to see if levels have gone down? Also, when my son was diagnosed, I asked my doctor to...
  18. Sharon C.
    Hi- I can definitely relate to what you are going through. My son is 8 and was diagnosed last September with Celiac. He is also allergic to peanuts. Part of my problem is that I do a minimal amount of cooking- my dinners are pretty basic and was the easiest part of our meals to make gluten free. Breakfast, snacks, and lunchtime at school were my...
  19. Sharon C.

    ARCHIVED Test For Gluten In Food

    Sharon C. replied to foodphobic's topic in Doctors

    I was just wishing for the same type of thing this morning. I had a box of corn cereal that seemed perfectly safe for my son in my shopping cart this morning, but then I put it back because although NOTHING was unsafe on the list, I worried about trace amounts of contaminants from the conveyor. Also, for example, on Lays plain baked chips it says, "This...
  20. Sharon C.
    I breast-fed my son for his entire first year, but it didn't stop him from getting Celiac. Also, what angers me is that I followed the advice written in a baby book, that recommended spiking your infant's cereal with wheat germ for some extra nutrition. Recently there was a radio talk show featuring celiac and I learned that in a country where Celiac...
  21. Sharon C.
    Hi- Well, I have my results, only, they are not plus's or minus's like the chart above. My IGA is 6, my IGG is 15. What does that sound like? My doctor will not likely run any further tests because in his opinion, these blood tests are negative. If I do the entero lab, do I need to eat large amounts of gluten first, or can I take it anytime? Thanks...
  22. Sharon C.
    Hi- My son was diagnosed last Septmeber with Celiac Disease. Since I also have issues with food, I am trying to determine whether I may also have a gluten intolerance. I discussed it with my doctor who seemed to not have a lot of knowledge about the subject. I asked for the gluten IgA antibody test. The nurses in the office never had to write up...
  23. Sharon C.
    Thanks all! They say that the valentines candy is gluten-free, and the truffles. Here's the link: Open Original Shared Link You guys hit the nail on th head, alot of it is learning to trust. After what I've been through with peanut and now gluten, I don't have a whole lotta faith in the competence of others to understand. I just start out expecting...
  24. Sharon C.
    I did that, but you know how it is. You have to hope they understand what you mean when you say gluten. Haven't you read about restaurants offering gluten free salad and then putting croutons on it? I need someone who knows the answer to this to please respond. Is caramel by itself, uncontaminated, ok? Or is caramel itself not ok. Thanks.
  25. Sharon C.
    Is caramel alone by itself, uncontaminated considered unsafe? Or is caramel COLORING what is considered unsafe? Vermont Nut Free has Valentine candy that my peanut allergic son can eat, but now that he has Celiac, I'm unsure of the caramel ingredients.
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