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lizajane

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Everything posted by lizajane

  1. lizajane
    i take 2 mylan medications and one more med that may or may not be from mylan. did they happen to say that ALL their meds are made without gluten ingredients? i am trying to locate my phone to call, but can't find it (cell phone.) i have been feeling "off" for the past month or two and was blaming it on thyroid. but i am feeling some mild gluten-y symptoms...
  2. lizajane
    YES i think you should try gluten free for you both. as long as you are willing to accept the response to the diet as evidence that you and your child do or do not need to live gluten free, then you really don't have to be tested. your symptoms sound a LOT like mine. and i am 100% different now that i am gluten free. it is THE BEST THING that has ever happened...
  3. lizajane
    i have celiac and i had negative blood test results. and i had my blood test at 33.
  4. lizajane
    please try gluten free for her. one can be gluten intolerant without having celiac. so even if the negative tests are accurate, and i hear they are unreliable in children, she could still be intolerant. my 5 year old didn't sleep. he had a negative blood test, but i decided to try him gluten free anyway. my blood test was negative, too. (my diagnosis...
  5. lizajane
    My husband is very, very supportive of the diet and lifestyle. he is totally on board with how to be gluten free. it is the science that sends him into a panic. if a scientist- a doctor- says that the data isn't complete, he jumps on board. he wants hard facts. he wants to know exactly how much gluten one would have to have before becoming symptomatic, including...
  6. lizajane
    Here is the brief history: my GP did a celiac blood test in aug 2008. negative. went to a GI in March 2009 and had an endoscopy after vomiting everything i ate for 2 weeks. biopsy was positive for excessive lymphocytes, but did not show damage. went gluten free and IMMEDIATELY stopped vomiting and felt better (fatigue, constipation, foggy brain) within...
  7. lizajane
    I can't find the ingredient list on their website, it has worn off my packaging, and I can't call on Saturday. Something glutened me, but not too terribly. The lip gloss that i pulled out the back of the drawer is the only thing i can think of. anyone know about loreal infalliable lip gloss? thanks.
  8. lizajane
    EXACTLY. removing the junk from your diet removed the gluten. and removing the gluten allowed you to heal. before removing the gluten, your body was trying to build immunity to gluten, as though it were a germ. so you didn't notice the symptoms. but they were probably there. it may be why you carried extra weight- i gained 30lbs after my 2nd pregnancy...
  9. lizajane
    you have a lot of the symptoms i had. i think you need to try it for longer than a week. and make sure you are REALLY not getting any gluten AT ALL. you may also need to give up dairy- others know more about this than i do. i had no issue with dairy. your body can go through a lot of changes when you are healing and you may just need more time to adjust.
  10. lizajane
    deleted.
  11. lizajane
    LIE TO THEM!!! tell them you spoke to a doctor who confirmed your suspicions that she does have a serious gluten intolerance and it is imperative that you keep her off gluten 100% ALL THE TIME or she has the risk of developing serious auto-immune side effects or even lymphoma. i tell my friends that we self-diagnosed my 4 year old, but i was diagnosed...
  12. lizajane
    whoo hoo! so glad to see the yellow cake review. i am making it for my first gluten free birthday tomorrow!!! can someone confirm that you can use dunkin hines frosting?
  13. lizajane
    while my son is not abnormally small, he is smaller than his peers and WAY smaller than his brother. so i can't offer you answers, but i do commiserate. dylan is 4 and he is one inch shorter than his brother was at age 3. i measured him just about the time he went gluten free and i am already dying to measure him again even though it has been only a month...
  14. lizajane
    we took my 4 year old so off gluten simply based on symptoms and his family history. i have celiac and my father in law does, too. we had excellent results. we have no intention of pursing a "diagnosis" because we already have one. it came from response to diet, not a doctor, but it was clear that he is better off without gluten. so it counts for us.
  15. lizajane
    yes- i started getting a weird heartburn/reflux type pressure in my chest that kept me up for HOURS after a recent accidental exposure. i have never had that symptom! and my son, who is 4, is gluten free and has amazing behavior now. BUT when he gets glutened by accident, he turns into a little monster (And doesn't sleep!). at first, it only lasted one...
  16. lizajane
    my son became a new child in 3 days. he started to sleep all night for the first time in his life. he is never irritable for no reason anymore (he is still a normal 4 year old when tired!!) he is super sweet all day! he is SO FUN to be with, i can hardly stand to think about how much time we wasted feeling bad. i think it was my pregnancy with him that triggered...
  17. lizajane
    gluten free cereal bars are very expensive, but i keep a box on hand for when i need to grab something fast. enjoy life is a brand you can find on (Company Name Removed - They Spammed This Forum and are Banned) or at whole foods. we found some awesome gluten free animal crackers at whole foods- the brand that starts with K... kinnesomething. cut up...
  18. lizajane
    gluten is a protein that is found in wheat, malt, barley and rye. it is part of those 4 things. so a person WITH celiac cannot EAT gluten. so a person with celiac cannot eat wheat, malt, barley or rye or anything that contains them as ingredients. gluten can be hidden in ingredients. it is not always labeled as wheat, malt, barley and rye. so it is best to...
  19. lizajane
    i would really follow your instincts on this one. if she vomits when she eats gluten and does not vomit when she does not, i think it is already extremely clear what you need to do. my blood work was negative, but i ended up vomiting everything i ate for 2 weeks. it stopped immediately upon going gluten free. i started gluten-free before i got my biopsy results...
  20. lizajane
    my blood work was also negative- my endoscopy showed the celiac. my son had negative blood work years ago, but he has become a whole new person now that he is gluten free. i did not retest him because i had the proof i needed that gluten hurts him. he is not "small" he is average- 50th percentile. but while my older son was born 9.5lbs, his lowest weight...
  21. lizajane
    i don't know if this will help, as I am the one diagnosed with celiac and THEN i took my kid off gluten. he had some classic signs of celiac in children and they ALL went away when i took him off gluten and they all come back when he is accidentally glutened. BUT... i will say... you may not have noticed your own symptoms because you may have attributed...
  22. lizajane
    you may be surprised at how many symptoms you DO have that you just didn't realize were related to gluten. i have been gluten free for 2.5 months. i didn't ever realize that i had more gas than normal people until i stopped eating gluten and then was glutened by accident. i also started getting a weird version of heartburn when i get glutened- terrible pressure...
  23. lizajane
    honestly, it sounds like you already know what is causing the rash. if he feels better gluten free, the stay gluten free. you don't need a diagnosis to eat a certain way. if he feels good that way, then it is best for him regardless of test results.
  24. lizajane
    my sons also tested negative when we did the blood test several years ago. he is 4. he did not sleep all night, he was very irritable, his tummy stuck straight out and he had a lot of gas. within 3 days of going gluten free, he slept all night, stayed pleasant all day and was just generally more full of joy. i did not want to put him through an endoscopy...
  25. lizajane
    well, my pre-diagnosis issue was constipation... but to me, it sounds like contamination because i just took too many risks and ended up in a similar spot as you describe. just with constipation instead of frequent visits to the bathroom. the good news is that after only 2 days of being very careful, the gas has let up. i was super foggy and sleepy on monday...
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