Jump to content

Amy Joe

Advanced Members
 View Profile  See their activity

  • Posts

    19

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Amy Joe

  1. Amy Joe

    Happy birthday and may God bless you today!

  2. Amy Joe
    I have had 3 B12 shots now and the increase in Thyroid meds....Finally after more then 6 months of awful bone and muscle pain.....it is gone! Plus my sex drive is back, been in hiding for a very long time! Oh and the ant-acid med....No more side pain under my rib. This is awesome. My grill and I have really been getting to know eachother...Thankfully...
  3. Amy Joe
    So all seems to be going well. Had my Thyroid med increased again, started weekly B12 shots and the diet I am getting used to. My fatigue has dropped 50%....thank heavens. GI: I will have new blood work every 3 months and yearly scopings. Start taking the medication for Barretts which I did not even know I had....no real bad symptoms. Plus I need...
  4. Amy Joe
    Lisa, I did shop at Market Basket first. Thank goodness I did....was no need to go to Framingaham! I was so surprises to find not 1 but 3 Chex's cereals!! They also had the bread mixes on sales 2 for $6.00..not bad either! Would still love to go to a cooking class. When I go for my follow up the 15th I will ask if there is one at Umass. Amy Joe
  5. Amy Joe
    So far I like Dr Wassef at Umass in Worcester. He did my biopsy and seems pretty kind. He has answered all my questions so far. I go back on May 15th so I will update more on him then. Amy Joe
  6. Amy Joe
    I am also NEW, did my first grocery trip this week. I stuck to the outer isles first....fresh foods! Then wandered down the cereal and found 3 chex's that are gluten-free. Bought a couple gluten-free flour mixes and made my own bread, have it in the fridge and will last me a week. I found ALL corn soft taco shells in the dairy section and they make great...
  7. Amy Joe
    I am new to Celiac! Would love to go to a meeting of cooking class. I am in the North Central about 25 minuets north of Worcester......in Fitchburg. Is there anything near me!??? From what I can see looks like I would have to shop in Framingham. Hoping to find something closer to me. Thanks Amy Joe
  8. Amy Joe
    I have my medical alert ID bracelet. It is important for me with the brain surgery. My ????? do any of you feel it is important to list Celiac Disease? Mine needs updating and before I do, I want to know if I should be adding Celiac. Thanks Amy Joe
  9. Amy Joe
    I am fairly new to all of this so I don't have a lot of advice. Something you said TUCK with me as I was reading. About what your GP said....IBS and Acid Reflux.....live with it! WOW I thought I was the only person to win the lottery of a bad GP!! I was on Nexium when it first came out, Prilosac before that. The Nexium I had to take 2 times per day and...
  10. Amy Joe
    Thank you Patti! Everyone has really made me feel welcome. I am sure as I move along I am gonna have ???????'s. Amy Joe
  11. Amy Joe
    It's official! I started today. Doc asked if I need to visit with a dietitian before I go gluten free or wait till the 15th, see how I do....take notes and we can talk. I am gonna go at it and see how it goes then see him on the 15th. This will give me a chance to feel my way around and keep a log of questions for him. I did go online and found all...
  12. Amy Joe

    ARCHIVED 1 In 133

    Amy Joe replied to miles2go's topic in Doctors

    It's like any profession. There are good and bad. EXCEPT we hold Dr's of any field to a much higher level of expectation and Dr's are much more reserved because of lawsuit's. Sad when you really think about it. I have noticed that a Dr in private practice is much more likely to want to try all kinds of NEW and IMPROVED drugs then those that are not...
  13. Amy Joe
    I found this site which lists ALL the colors. I would need a lot of them. . Open Original Shared Link Amy Joe
  14. Amy Joe
    Is there a symbol for Celiac such as the pink ribbon for breast cancer? I have not been able to find what it is.... Thanks Amy Joe
  15. Amy Joe

    ARCHIVED 1 In 133

    Amy Joe replied to miles2go's topic in Doctors

    Wow are there some powerful statements on this post. I am new to having a GI. But I can really relate about Dr's and not believing what we have to say about our own bodies. Took me 35 months of declining neurological health before my surgery and even at that I had to do 90% of the dx myself. My last NL Dr read my MRI and argued with me over the phone...
  16. Amy Joe
    No. The GI did when I had my consult. Said he'd do the biopsy but was then concerned about Chron's. Was going on school vacation last week with his kids. Did not want me to change anything till he got back and read the pathology reports. He would then decide if I needed the PillCam. Amy Joe
  17. Amy Joe
    So sorry to hear of your struggles. So much of what you wrote sounded like my daughter. She to is so sick of dr.'s. I am closing in on 7 months recovery from brain surgery myself, nothing such as yours....WOW! My question is this: Have you had your Thyroid tested Vitamin D tested B12 tested...
  18. Amy Joe
    Thank you Lisa. I really don't care what tests need to be done. I just gotta start something to feel better. I have spent 6 month's recovering from Brain Surgery to have this come out of left field. It all started because of my Vitamin D levels not going up. I guess I got a good Endo whom is on top of stuff but man......all I want to do is go golfing...
  19. Amy Joe
    I am hoping to get some help. Here are all my results. I am told NOT to start diet till after I hear from GI in case he wants me to do the pillcam. Blood: Apr 8, B12 @ 187 Apr 13, B12 @ 191 Apr 08, IgA 208.....Transglut IgA 44 I have Hashimoto's and Vitamin D Deficiency, taking 100,000IU per week since 11/08 Biopsy: Duodenum: Chronic...
  20. Amy Joe
    Well I had the biopsy done. Should get the results late next week. They did find stuff while in there but not sure what it means. 1. Location: Duodenum Findings: Normal 2. Location: Stomach Findings: Erythematous (Hyperemic) 3. Location: Stomach Findings: Normal 4. Location: Esophagus Findings: Hiatus hernia (nurse told me LARGE) 5. Location...
  21. Amy Joe

    ARCHIVED Neuro Appt

    Amy Joe replied to SGWhiskers's topic in Doctors

    An EMG is a very good place to start with. It will help determine any small or large fiber/nerve damage. I have had many years and many NL's. To have one at the first appointment order an EMG is a good sign that he IS listening to you. I had 1 done last summer. Not for Celiac but for Chiari Malformation and Autonomic disorders of the Sympathetic Nervous...
  22. Amy Joe
    Good after noon. I was hoping that when my Endo called with lab results, it was to say we need to keep checking.....checking to see why after 100,000IU of Vitamin D per week my levels were still low. She called to tell me that indeed my levels are now up to 41, my Thyroid level is good after the adjustment BUT and there always seems to be a but. My blood...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.