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Quasior

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Quasior

  1. Quasior
    Thanks Nora, I hope we have the Enterolab test here! That would be good, I know they are very sensitive to cow's milk, only two of my children seem to be able to use it regularly - and even they have been known to miss it for a couple of weeks here and there. If we gave my youngest daughter any at all she would be sore and blistering all of the time instead...
  2. Quasior
    The tests do not seem as definitive as they could be, do they? Nothing seems 100%, and yet the symptoms are there and causing issues. There is obviously much more to the condition than the medical profession knows yet, its a grey area. Its obvious too that some doctors have more of a clue than others too. The more into it you get, the more confusing...
  3. Quasior
    I don't pretend to understand the DNA or the sequencing but I thank you Nora, and Midwifemama for attempting to explain. Maybe genesists don't really know either, it is relatively a new thing isn't it? For this reason I doubt the doctors have any real idea either, as they go on these journals and theories too. That does make it difficult for everyone else...
  4. Quasior
    Ok, you have helped in your reply... The reason why we wanted a diagnosis for my 4yo was really for his father's sake (and his future teenage self), if we had the positive proof my son wouldn't rebel later on and say "oh I'm not eating gluten-free anymore no one even knows if I am or not?" plus my husband is reluctant, but of course he sees the positive outcome...
  5. Quasior
    Thanks for the reply Nora, I wasn't aware of the other tests I could ask for so I will definately be asking for those. the IgG one, as for the copies of DNA strands, I'll check out Wiki because that is a bit confusing.. I have one gene that is positive but the children have both - at least all that have been tested, and my husband has been tested but I'm...
  6. Quasior
    I don't know where the poll part is but... I was very recently diagnosed with sleep apnea. Whether directly caused by celiacs or because I am overweight so indirect cause I'm not sure... but I do have the other neuralogical probls a lot of celiacs have like mind fog, memory loss etc.
  7. Quasior
    But a colonoscopy isn't a biopsy it it? It is a different test altogether and they are looking for different things arent they?
  8. Quasior
    My children aren't diagnosed yet, but I'm pretty certain at least three of five have it! My eldest girl is 10, she's the size of a 6 yo in height, but she wieghs 45 kg My eldest son is 8, above average height and extremely thin, he's not breached 30 kg yet My middle boy is 7, he is hovering around the 25%ile, but he is also thin (not extemely - he could...
  9. Quasior
    I was having symptoms even though I was on a strict gluten-free diet, then I took a closer look at what I was consuming: Toothpaste/hair care products/medication - they all had gluten in them!! It's in a lot of make up too, but since I don't even use it no worries there. It might be sneaking in from lots of different sources, so my advice is to really...
  10. Quasior
    Hi, trying so hard to get some sense out of my doctors! I finally just asked them for the results so I could post here I've been told by one doctor there is positive results and another said negative!! I should also say I do have Celiac's but my bloods have been tested Iga ones, one time came back positive, another time negative.? confusing, anyways, all...
  11. Quasior
    There was a similar post here. But this is completely different too. My partner is always undermining my pov when we are talking to other people about ceoliac disease. It is just that I haven't got the biopsy, but the tests other than that have all been done and come back positive including the DNA test, which is more recent. I went gluten-free when I...
  12. Quasior
    This is close to me and my children it's not funny. OK, well, we went dairy free but we were tolerating sheeps fetta and occasional goats cheese. After periods of non-dairy I slowly introduced small amounts of cheese or yogurt or ice cream, but no milk. When the symptoms returned it was taken out again. Oddly enough though, we began to tolerate small...
  13. Quasior
    I might be going against the flow here... BUT this is what I've decided, for better or worse. My son who is 4 took the genetic test and while his bloods were being taken they had to literally push the blood out and it was nasty. It ends up he has both genetic markers so it was a good thing he got tested. He is a different boy now he's gluten free...
  14. Quasior
    So weird! I have Coeliac's and my pnky on my left hand is slightly below the ring fingers final joint, and on the other side it's over the line slightly. My son who has suspected Coeliac's (pretty sure he has) his pinkys are just below the line or right at the line of my other two children they are slightly above.
  15. Quasior
    Theres like 5% of Coeliacs who never show positive bloods, or only show it some of the time. I'm one too. Go with the doctors results, you are coeliac!
  16. Quasior
    Hey, what a huge thread! I'm new here, but I've been gluten-free since January. I've posted in a few different areas. I have the (mis)fortune to be Tasmanian too - which means I don't have as much access to things like donuts. Anyways, I got positive DNA results about 3 weeks ago. I've had symptoms for over a decade now (possibly up to 15 years...
  17. Quasior
    Hey, thanks for the replies OBXMom and taweavmo3. I have two sons on the diet now, one requested to be (but he didn't realise how restrictive it was going to be - even so he says he feels heaps better and won't go back on gluten). My son I posted about earlier though shows little signs of improvement, so I'm going to further restrict his diet and cut...
  18. Quasior
    Now, we're Australian, so our system's different to many of you, so if anyone has a clue about it in Australia, let me know. I'm keen for everyone to give me advice though... My son, Raven, is 4. He's been sick since he was very young with various ailments, nothing *serious* per say, things like breathing problems, very early asthma, worst 'growing pains...
  19. Quasior
    Unfortunately it took extensive internet research and countless medical oppostion and screw ups to get this far... yep, gotta keep plugging away Good luck to you too...
  20. Quasior
    my son is dropping even lower on percentiles too.. this is what prompted doctor to say he needs to go see the ped at the hospital. now I finally get diagnosed myself with coeliacs (I was diagnosed with IBS over a decade ago and told the doctor after one positive and one negative blood screen I'm going gluten free after being lactose i free (and by god did...
  21. Quasior

    ARCHIVED Brain Fog

    Quasior replied to a topic in Coping with Celiac Disease

    It's frustrating when you KNOW you're smart and your brain fog gets you. I used to call it my little black cloud. Now I know what it is. I feel for anyone with this problem! My sister has it worse than I do...
  22. Quasior
    yes, i've tried this product too I screwed it up though. I was trying to make a healthy pizza base, seeing as it was a 'batter'and my pizza trays have these holes I put it on grease proof paper. BIG mistake. I had to try and eat it off this paper and it was horrid. The bread where I could get some was YUMMY though. I'd recommend it but say its the...
  23. Quasior
    If you mean cow free that's easier again. Goats and Sheep cheese are OK for people with a dairy allergy (like me) usually in the form of fetta, can be found at Woollies... however there is a little sheeps cheese/ice-cream/wine maker who sends aound the country located in southern Tas called Grandvewe which caters for the lactose intolerant. You might...
  24. Quasior
    Hi, I'm an Australian, homeschooling, coeliac, and waiting to find out about my children to see if they are too.... I live in Tassie. I have been recently diagnosed, I was wrongly diagnosed about 10 years ago as IBS. Now I have been living gluten-free for the last 6 weeks. I was accidently glutened on the weekend and only just recovered from that...
  25. Quasior
    Hey thanks Crimson, I agree but I don't really want to put him on the diet just yet. It is mostly because of my parner who doesn't really want to accept it. On the other hand if he were to be diagnosed then he'd be OK with switching all of our children over. And the other part is I think if it is wrong, and I doubt I am, considering I've now been...
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