declan
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About Me
I�m now 65. I always remember having DH. At 17 i was diagnosed by a Doctor in Concord, New Hampshire. Then i was treated by 12 Sulphapyridine tablets a day. Moved back to Europe.
When they stopped making Sulphapyridine i started on Dapsone. Mistakenly given a very high of dapsone for several years, no severe effects except on the pocket. In 2000, i reduced the dose myself to 50 mg a day.
I moved to Spain in 2004, no problem getting dapsone till April this year. In July a specialist told me to go to this specific pharmacist in M�laga (about an hour away from where i live), saved, got the tablets i need. Now i seem to be able to get by on 100 mg a week.
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ARCHIVED Can Dh Disappear For Years And Then Come Back?
declan replied to lizk's topic in Dermatitis Herpetiformis
I will follow these replies with great interest. The same thing has happened to me. I have had DH since i was a child but it was only diagnosed on a stay in the US and treated with sulphapiridine and then dapsone. When i could not get dapsone (They stopped making it in Spain where i live now.) i stayed clear of rash for nearly three years. But recently... -
I could not get dapsone here in Spain (after 15 years on Dapsone). I was panicking. Eventually i was prescribed "colchicine houde" but this made me very, very ill. So i stopped taking it! It has been four months now since i took dapsone, the skin rash has not come back and i feel well. I am still worried that it will return, but so far so good. I am...
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Yes, one of the worse memories of my childhood was having blisters on my tongue and inside my lower lip. A child cannot explain what it is like to teachers who said that it was eating too many sweets and just a "softy." My parents tried to help, but they were not given any diagnosis so there was little they could do. declan
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No, does not look like mind did either, but not everyone is the same. declan
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I am so glad for you Very many of us know the joy of finding out what is wrong and finding a solution. Good luck. declan
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What a clear and detailed description you give! I have DH; until now, this year, i have always reacted when i don
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I don
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ARCHIVED Is Dapsone Discontinued In Some Places?
declan replied to declan's topic in Dermatitis Herpetiformis
Thank you. At the very least you made me realize how lucky i am, i have a very very mild form of DH. I will look into a GFD, but am not looking forward to it. However my partner says that we can do it, so we -
I have had itching since i was a small child, horrible time, i don