skyyblues

I had both procedures in May. I was not able to eat gluten for the test as they had wanted. I made it 4 days and broke out so bad the doc said to stop eating it. The drink itself could have been better....some of the gluten free stuff I have had made it seem ok! LOL Most of the people I had spoken with said how bad the bathroom part was...I laughed as...

I feel your "itch"!! I have been called a freak by more than one Dr. I have been gluten free for about 5 weeks now. My stomach problems got better within a couple of days. My skin is another issue.... I have noticed though that the blistering on my hands is not as bad as it was. My arms and legs have cleared up pretty much. It seems from what I have...

Did you try pasting the link in your address bar? That is how I got it to work for me just now. I am not familiar with Sjogerns... Does it have rashes?

It can be very itchy!! Yes it can flare up very bad in a couple of hours. I can not tell you what or how but it does. I am still trying to figure it out. It seems as if since I have been gluten free when I do flare it is much worse than before. I am guessing that my body was so used to being poisoned that it did not react as noticably. I am very sorry...

I understand how you feel... I love it when someone offers me a "bite". I also love it when someone tells me well it will be better when they figure out what is wrong... HELLO I know what is wrong!! I can't take a pill and fix it. This is my life. I don't want their sympathy either. If I hear "I don't know how you do it" one more time I think I will...

I started to feel better within days. I could eat without running for a bathroom. I wasn't having stomach pains. It was like WOW.... I stopped after my doc did a blood test which came back negative. I had done alot of reading and when we talked I told him I thought it was Celiac. He told me to try gluten free and I couldn't believe how much better...

I use Desert Essence Organics. They make shampoo, conditioner, and lotions that I love. They are wheat and gluten free, no petroluem, and nothing artificial. The lotion I use all over including my face. It costs about $9 a tube but it lasts a long time. A little goes a long way. I recently saw it at my local grocery store for the same price I pay anywhere...

I am still "undiagnosed" officially. I went to the GI doc and he scheduled a endoscopy and colonoscopy for the 12th of May. I met with him on a Tues after I had been gluten-free for 2 weeks. I was scared but agreed to go back to eating it for the test. I went out to dinner that night to a favoriet Mexican restuarant. Within 2 hrs of eating I started...

I say good for you! Someone has to stand up for those who come behind. I am sure this will not be an easy task for you but it is a good one!! My boys are grown but I have 3 grandsons, who still have to be tested. I shudder at the thought that they would not be safe at school. I understand feeding us is more difficult but with the proper planning and...

Hello and Welcome! I am new too. I understand what you mean about being obsessed. I have gone so far as I will not eat anything right now that I do not make myself or is clearly labeled. It seems that since I have been off gluten my reactions are worse also. Thought it was just my imagination.... I got poisoned yesterday and have no clue. The only...

I guess I am shocked by this. I am not sure why...I wouldn't think anything would suprise me anymore.... If I understand you correctly (which I hope I don't) my drugs are not screened for my listed allergens when I have my prescription filled at a local pharmacy? I know they don't have to list all ingredients under the guise of patented formulas etc.....

I can't drink wine either. I am not a big drinker but once in a while it is nice to have one. I have also noticed that when I have a drink I seem to flush so should probably put that on the back burner for now too... Anything else I can give up...I am starting to feel like a Catholic stuck in Lent forever....

I understand what you mean. He thinks some doc will just give me a special shot and I will be fine. He doesn't get that this is now my life. I went through cupboards today and gave myself a little corner where I now keep my stuff. I don't like having to look through everything to find something I can eat. He just kind of rolls his eyes... I don't care...

I really like your reference...That is how I am looking at everything these days. My family looks at me strange and I think they think I'm paranoid but they don't have the issues I have been dealing everyday. "I think they think" I am paranoid aren't I! LOL That is ok as it beats the heck out of getting sicker and not being able to point to "one" thing...

Is posting a link to flckr to show DH pics OK. If not I sincerely apologize and will not do it again. I am just hoping to find "THANK YOU" to all of your behind the scenes work!!! Your site is extremely helpful and understanding....