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I would tell the principal everything. Bringing a big cake in without telling you is bad enough, but not letting her have ice cream is beyond horrible. The school parties and events are so tough, there is always gluten everywhere. I was room mom in my celiac sons class this past year. Then I could make the parties gluten free as much as possible. Also...

You mentioning how your son is craving milk gave me flashbacks to the weeks before my son was diagnosed at age 3 (he's now 7). He always wanted milk and yes in the middle of the night too. His main symptoms were the distended stomach and skinny legs (but that can vary so much). You aren't being paranoid, get him tested or have more gluten free days for...

I hope your appointment went well and you were able to be some answers. As for your daughters poop (yes, love the poop talk!)though I'm not strictly gluten free, if I have been sticking to the gluten-free diet well I get the same way. My gluten-free son is that way sometimes too. His non-celiac gluten eating brother has the giant poops. The only suggestion...

That is crazy - I've never heard of that either. Only annual blood tests here and siblings TTG tested every 3 years.

Just before he turned 3 he seemed to be extra tired - so I took him to the doctor thinking he was anemic. He wasn't so we went on another couple months. During that time he seemed extra irritable, wanted lots of milk and one week he would only eat yogurt! He never had diarrhea and he was pooping like clockwork normally every day. A couple weeks later...

At age 3 my son had very positive blood work and we put him gluten free right away. The two GI doctors (one who specializes in kids celiac) we saw in the weeks after that quickly agreed that a biopsy was not necessary. It is now 3 1/2 years later and I've never regretted that decision. I hope she feels better soon!

Two years ago, Aetna flat out denied a individual health insurance policy for my then 4 year son because he had celiac (with no complications). At the time they said celiac is cause for automatic denial regardless of the situation.

I was there earlier this summer for a quick day trip with family including my 6yr. old celiac son. We got him a bun-less burger at Mighty Mac Hamburgers, it was ok and fast though there are probably better burgers around if you want to try a sit down place. We got our fudge from Joann's. We stuck to the basic flavors and he didn't have a problem (though...

I highly recommend Dr. Jeffery Lewis at Children's Center for Digestive Health Care across the street from Scottish Rite Hospital. Dr. Lewis is the best there is for pediatric celiac disease. He founded the local chapter of ROCK (Raising Our Celiac Kids). Very dedicated, smart and friendly. Good Luck!