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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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ARCHIVED Garden Of Eatin' Chips
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok thanks so much, I ate them the other day and didn't feel right that's why I thought I better look into them. I'll try the Green Mountains' if I can find them, thanks! Susan -
ARCHIVED Garden Of Eatin' Chips
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I've written the company but so far not recieved any reply yet... they list the ingredients on the bags but some say flavors so I'm not sure if they are gluten-free or not. does anyone happen to know? Susan -
ARCHIVED Whole Foods
pixiegirl replied to jaimek's topic in Gluten-Free Foods, Products, Shopping & Medications
I have written to Whole Foods 3 times now asking for their gluten-free bakery products in my MA store and as much as I love the store, they have not once written back. Sigh. Susan -
Its funny how saying allergy convinces people that its more important and real then food intolerances. If I say allergy everyone is very careful and understanding, if i say food intolerance they say, "oh you can eat it this once". So generally I stick with allergy, its easier and I prefer to talk about more interesting things then what I eat. Someone...
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Well I'm new to this... so I'm sure I haven't figured it all out yet. But here are two things that came to mind.... If you know the host really well you could speak to her before hand and explain that you have celiac or "food allergies" (people seem to understand that term better even though I know its not right explaining celiac) and ask if you could...
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ARCHIVED New Here, Awaiting Labs, Question On Symptoms
pixiegirl replied to Corihere2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ummm I'm confused here... do you mean colonosocopy or endoscopy? For celiac they usually do the endo... one. I'm just curious because I'm getting a colonosocopy in January as I'm of the right age for it as a preventative test and I sure don't have to fast for 60 some odd hours, the day before I can actually have an egg for breakfast and then I have... -
ARCHIVED Enterolab Results, Help!
pixiegirl replied to pixiegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No I've not had that and at this point I'm not going to. I'm assuming from the other levels in my test results that I don't have any damage yet, all those number were low normal, so from what I've been told the likelihood of my actually having damage yet is slim. Susan -
ARCHIVED Cast Iron And Teflon
pixiegirl replied to hapi2bgf's topic in Gluten-Free Recipes & Cooking Tips
I wish I could figure out cast iron, I've tried it a million times and seasoned it the way the directions have said and every time stuff sticks to it, I know I'm doing soemthing wrong but I don't know what. I had one cast iron pan for a good year thinking that with time it would get better but it didn't, stuff just stuck to it. Any hints. Susan -
ARCHIVED This May Well Be The Answer
pixiegirl replied to red345's topic in Related Issues & Disorders
I'm not sure I'm actually adding anything to this... its really a technical discussion and I'm a new Celiac and still learning about all of this. However you seem to imply that the beta blockers somehow caused your mom's Celiac? Is that what you are sort of saying? Why doesn't she have her DNA tested and see if she has the genes for Celiac. I happen to... -
ARCHIVED Used Braed Machine
pixiegirl replied to CindyK's topic in Gluten-Free Recipes & Cooking Tips
Well I agree, most of us can't run out and buy new appliances, pots and pans, etc when we discover that we need to be gluten-free, I haven't used my bread machine yet but I'm going to clean it well, run it thru the dishwasher and see how it goes. Susan -
ARCHIVED Enterolab Results, Help!
pixiegirl replied to pixiegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yes it does help some but I'm still amazed that I don't have any damage after so many years of symptoms (and the runs for 8 years). I'm gluten-free and plan to stay that way. Susan -
ARCHIVED Enterolab Results, Help!
pixiegirl replied to pixiegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I see people are reading this but not replying... I'll be more specific... do i have the 2 main celiac genes? Also since the rest of my values are normal or even low normal... well how could that be, I've had symptoms for at least 8-10 years? Thanks, Susan -
ARCHIVED Reintroduce Gluten
pixiegirl replied to christtheking's topic in Coping with Celiac Disease
I'm a total newbie here and new to gluten-free as well so I probably shouldn't be answering this, but if you have celiac its not an allergy so that information wouldn't apply, however if you only have a wheat allergy then perhaps it might apply to your situation. susan -
ARCHIVED Enterolab Results, Help!
pixiegirl posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok I got my results from EnteroLab and I'm not sure what they mean... I guess I have two genes for the disease? Gluten Sensitivity Stool Test Fecal Antigliadin IgA 14 Units (Normal <10 Units*) Stool Test for Autoimmune Reaction to Tissue Transglutaminase Fecal Antitissue Transglutaminase IgA 6 Units (Normal <10 Units) ... -
ARCHIVED Really Good Pizza : )
pixiegirl replied to leapingllama05's topic in Gluten-Free Recipes & Cooking Tips
Hmmm I'll have to try Amy's I like their other products. I was in Whole Foods Market yesterday and they didn't have Amy's crusts... they had finished pizza by Amy but it was gluten-free. I'll have to keep looking... do you order it or buy it in your local store? Susan -
ARCHIVED Really Good Pizza : )
pixiegirl replied to leapingllama05's topic in Gluten-Free Recipes & Cooking Tips
Well I've only been gluten-free for about 2 months and I love pizza so last night I tried to make the crust with the Gluten Free Pantry mix, it was awful, I threw it out. It was like a big sponge with pizza stuff on it. Totally Gross, I'll try some of the other options but I actually got more of a "fix" when I used corn tortilla's and made pizza quesdilla... -
ARCHIVED Traveling And Ff Restraunts
pixiegirl replied to whitelacegal's topic in Gluten-Free Restaurants
Yes I'm sure thats what happened at Wendy's, that it got contaminated at some point. I had asked the "manager" (about 19 years old) there about gluten free and he was lost, had no idea what gluten free was and was not helpful. Oh well, sometimes its what you have to do.... next time I will do their baked potato but I did notice that they serve it with... -
ARCHIVED Whole Foods
pixiegirl replied to jaimek's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh I'm so jealous, wow, how exciting. I'd love to have that in our store in MA, we are not that far away I wonder why they don't ship up here. Susan -
ARCHIVED How Long Before You Figured It Out?
pixiegirl replied to Twister2's topic in Coping with Celiac Disease
Well I'm about 8 weeks trying to gluten-free and I was doing well until Thanksgiving, but I think, generally.... I have a good idea of what is what. I'd say if it wasn't for reading this list every day I'd still be so far in the dark.... I've really gotten a good handle on how wide spread gluten is from all the posts here. I've also come to realize that... -
ARCHIVED Traveling And Ff Restraunts
pixiegirl replied to whitelacegal's topic in Gluten-Free Restaurants
When i was traveling to Florida for thanksgiving I ate Wendy's chili and I got totally sick about a half hour after. It was all I had so I felt sure there was gluten in it. Susan -
Can I eat them, the ingredients are: sugar, oil of peppermint, gum arabic, gelatin, corn syrup I looked on their web site and they don't really say. Also does anyone know of any other mints that might be gluten-free, like tic tac's or anything. Thanks, Susan
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Wow, I'm glad I started this thread, its really made me feel better to know that its just not my darn family. I'm actually considering next year to fly into my brother's house the day after thanksgiving... everyone stays for a few days after and that way I can eat good food and still see everyone. Since Thanksgiving I've spoken to my mom and sister...
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ARCHIVED Things Are Going Down Hill....
pixiegirl replied to pixiegirl's topic in Coping with Celiac Disease
Thanks for all the info, it was hard enough going gluten-free, I hate the idea of soy, milk, cabbage, yeast.. on and on, but i'm slowly going to eliminate stuff I guess. I had a McCormack spice mix last night on my chicken (Montreal chicken seasoning, I think) and I got really sick last night, the ingredient list looked ok to me but... every thing else I... -
ARCHIVED Whole Foods
pixiegirl replied to jaimek's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm on the East Coast and our Whole Foods knows about the bakery but at this point our store isn't on the short list for getting any of the products. bummer. susan -
ARCHIVED Great Experience With Legal Seafoods
pixiegirl replied to deedee1022's topic in Gluten-Free Restaurants
Oh it was me that said that and I was at the Legal at Copley Place too just a week ago and I spoke to the manager too. They are very careful about it and they have such good food, I had a great meal, I'm glad you did too! Susan