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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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Thanks again everyone!! You all made me feel better, I don't know how we all survived before the internet. There were times where my family was a bit rude but I think some of it (not all for sure) was just due to the fact they have never even heard of Celiac before, I guess it all takes some getting use too. But I have told my mom that I'm thinking...
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Thanks everyone for all the replies... Laura if you want to complain I'll be happy to listen, I'm feeling the same way about my family right now, sigh. I'm actually thinking of skipping Thanksgiving next year and doing it here with my daughter.... because in truth if I would have stuck to my guns I'd not have been able to eat virtually anything. Eating...
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Well, every year I go to thanksgiving at my brother's house. I've only been gluten-free for 6 weeks, well now I'm back to square one. Sigh, its depressing, I was in Florida for 5 days and the nights we ate out I did better then eating at my brothers house. I know everyone, including myself, is new with this, but I really felt a few times like it was...
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ARCHIVED Visiting Florida
pixiegirl replied to Mc'nFeedahfan's topic in Traveling with Celiac Disease
I'm in Stuart, Florida right now (just north of Palm Beach) and although there isn't a Whole Foods or Wild Oats near by I was surprised that the local Publix and Winn Dixie both had health food sections with gluten-free pastas, cereals, cookies and such, so I'm doing ok here. Susan -
ARCHIVED How Do You Handle A Bad Restaurant Experience?
pixiegirl replied to hapi2bgf's topic in Gluten-Free Restaurants
Yes I'd like the text of the restaurant cards too, I'm new to this and really need the help eating out! Thanks! Susan -
ARCHIVED A Few Questions
pixiegirl replied to onamission's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been gluten-free now for oh.... about 6 weeks and even after this short time, I would not go back to eating gluten, I feel so much better. I don't have a real diagnoses either, my original doctor hinted that it was in my head or IBS. I just changed doctors because of his attitude and my new doctor is sending me to a GI specialist and when I told her... -
ARCHIVED Fibromyalgia & Cronic Fatigue
pixiegirl replied to JUDI42MIL's topic in Related Issues & Disorders
Thanks for that info, I didn't watch the show but my daughter did. I sent the e-mail letters to Fox. I was diagnosed with CFS when my daughter was born 13 years ago. I was very lucky to be able to have as my doctor Dr. David Bell, who really was the very first to recognize that people in his local town were all ill with the same thing. He went on to be... -
ARCHIVED Ener-g Tapioca Bread
pixiegirl replied to Racheleona's topic in Gluten-Free Foods, Products, Shopping & Medications
This is so my experience not only with store bough gluten-free breads but I've been making bread with various mixes and every single time, they come out of the oven light and tasting good and the next day well its awful. I made gluten-free Pantry bread last weekend with a recipe I was told to divide the dough in half and ball it up and cook two small... -
ARCHIVED Blood Test Results Within Normal Ranges
pixiegirl replied to dbuhl79's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I can relate to your story, mine is the same, exactly. I was told 5 weeks ago that I'm fine with a touch of IBS. BS for sure! I have been Gluten free for 5 weeks and I stopped the bathroom dashes completely, I feel so much better. Just yesterday I sent in the EnteroLab stuff so I'll see what comes back there. But in my book I just feel so much better... -
ARCHIVED Teas
pixiegirl replied to maxwell1200's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow that is so funny, I'm drinking their True Blueberry tea right now!! I love the stuff! Susan -
ARCHIVED Side Effects From Going Gf?
pixiegirl replied to OhNoes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For my first week of gluten-free (i've only been gluten-free for 4 weeks now) I was exhausted but I wasn't eating any carbs then either.... now I've added back rice and potatoes and such and that seems to have upped my energy level some. I think you have to remind yourself that this is a process, most of us ate gluten for years when we shouldn't have... -
ARCHIVED Celiac Vs. Ibs
pixiegirl replied to billy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've only been diagnosed as IBS, for 8 years now.... I had some blood tests for Celiac and they came back normal. Today I sent in my genetic testing for Entero Labs so I will know more in a few weeks. However, the only thing that has helped me is going gluten-free. I tried everything else, drugs, diet changes, lactose changes but nothing helped. I went... -
ARCHIVED Dreaming About Forbidden Foods?
pixiegirl replied to deedee1022's topic in Related Issues & Disorders
Well I day dream about pizza, we have a chic chic pizza place by us and i miss their Pesto Splash pizza. susan -
Where do I get a gluten-free free card to give to these managers?? Thanks for your help, susan
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ARCHIVED Typical Daily Menu
pixiegirl replied to dbuhl79's topic in Gluten-Free Foods, Products, Shopping & Medications
Tiffany, I tried to see your recipes but it said that I was unauthorized to enter your web site. -
I'm only 4 or 5 weeks gluten-free so I can't really say yet, however I'm an eater and there are very few foods I don't like. Since going gluten-free I've started to try and eat more healthy and I have cut out all chocolate and most sweets totally. I'm eating very little refined carbs and eating more basic foods. I never ate things like potato chips...
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ARCHIVED Typical Daily Menu
pixiegirl replied to dbuhl79's topic in Gluten-Free Foods, Products, Shopping & Medications
Well since I found out I need to be gluten-free (about 4 or 5 weeks ago) I decided this was a perfect time for me to be healthier.... and initially its easier to go gluten-free if you cut your diet down to more basic stuff.... on top of that I wanted to lose about 7 pounds (my clothes are too tight and I can't afford a new wardrobe) so I started the Carbohydrates... -
I'm only 4 weeks into this and I've made one or two mistakes.... it comes with the territory we are learning a whole new thing... a totally different way to shop, eat and cook. If you were on a new job, or learning a new skill... you'd be far less hard on yourself. You wouldn't expect to be a good tennis player after one lesson or even after one year. ...
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ARCHIVED Anyone Sick Of "eat Right For Your Blood Type"?
pixiegirl replied to sashabetty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh I have a close friend that does not eat wheat, she does not have any problems with it but says its the enemy, its just bad for you and early man was a meat eater so we should be to. Anyhow she believe in the eat for your blood type thing and also food combining and she keeps telling me that I can eat wheat again or drink beer if I combine it right... -
I went to our local Outback last night... I've only been gluten-free one month but I had a nice time, they seemed to know what they were doing and I'm sure I didn't get any cross contamination because I felt great last night and this morning. I'm so glad to have somewhere to go! Susan
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ARCHIVED Things Are Going Down Hill....
pixiegirl replied to pixiegirl's topic in Coping with Celiac Disease
Thanks for the support everyone, I really needed it. I'm laying off the spinach and cabbage today, I hope that helps and I understand the 2 steps forward, one step back thing but darn, I was feeling so good. I do feel a bit better today and my belly is quiet so thats good. I actually had an early dinner at Outback Steak house and they seemed very aware... -
I'm one of those in the gray area, so far all test negative but gluten-free diet really helped me for 4 weeks.... however... for some reason the runs have come back, not as bad as they were pre gluten-free but not good either. I know for sure I have not been glutened. I have only eaten at home and mostly just fresh foods. I've been eating a lot of...
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ARCHIVED Gluten Free Cruising
pixiegirl replied to pixiegirl's topic in Traveling with Celiac Disease
Because my cruise line is small (just 3 sailing ships) I had to deal with Holland America the parent company, but I found the contact info for them on my cruise lines web site, actually I e-mailed them first and then after e-mailing back and forth a few times I asked for a phone number and they called me and we seem to have worked it out. I'm sure on... -
ARCHIVED Enterolab Question
pixiegirl replied to ADevoto's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just got my EntroLab stuff today and I sort of wondered the same thing... however I did see a couple of people post here that there results were negative. And on top of that I'm not sure why they would just diagnose every one positive for the heck of it, unless they own stock in a gluten free bread company or some such! Susan -
ARCHIVED Low Carb Diet With Celiac
pixiegirl replied to enigma's topic in Related Issues & Disorders
I don't want to start diet wars either because what I have learned over the years is that all our bodies are different and what works for me may not work for someone else, so I'm not saying that the diet I'm on it the best, the "right" one, or will even work for everyone. I've tried other diets and for me they either don't work or I can't stick to them,...