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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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ARCHIVED Your Most Favorite Gf Food?
pixiegirl replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
Manna by Anna bread mix is found here: Open Original Shared Link Susan -
ARCHIVED Tired Of The Cheaters And Skeptics
pixiegirl replied to angel-jd1's topic in Introduce Yourself / Share Stuff
When I was new to gluten-free I posted on a few different boards... I wanted as much info as I could get.... and fast! On some of those boards I got some curt answers to my questions.. I had one person tell me to do research before coming on the board so I'd know what I was talking about! Here I thought thats what I was doing by posting!! (I'm not on that... -
ARCHIVED Pamela's Cookies Are Gf But..........
pixiegirl replied to mela14's topic in Gluten-Free Foods, Products, Shopping & Medications
Right now I'm not testing her because she is mostly gluten-free at home and she has flatly told me that she is not going gluten-free right now... period. She has very few symptoms so there is no motivation for her to do so. I know people are going to say I should "make" her, she is only 13 I have the ability to "make" her but quite frankly I don't have... -
ARCHIVED Pamela's Cookies Are Gf But..........
pixiegirl replied to mela14's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't do well on Pamela's cookies either, I have bloating problems.... I'm not sure what it is in them..... but it doesn't agree with me so I just avoid them. The shortbread cookies were good too, however if I remember correctly the calorie content of them was outragous! I have Celiac and we recently found out my mom does too and I'm sort of thinking... -
ARCHIVED Ibs Vs Celiac Disease
pixiegirl replied to amiller1030's topic in Parents, Friends and Loved Ones of Celiacs
D every single day for 13 years often so bad I could not leave the house. Now... no D except when I'm accidently glutened... then I have D for a good 3 weeks. Oh also I'm lean-ish but certainly of normal weight... not skinny or heavy. Susan -
ARCHIVED Wishbone Salad Dressings
pixiegirl replied to terri's topic in Gluten-Free Foods, Products, Shopping & Medications
I've used only Annie's salad dressings for a while now... however what bothers me about this thread is that Unilever is on the list of companies that report every thing in their products, supposedly we could trust their labels. It makes me wonder who else is on that list and can't be trusted. Susan -
the only gluten-free bread I will eat is Manna by Anna, you have to make it and I do it right in my old bread machine, my mom just uses a loaf pan in the oven. It looks and tastes like wheat bread, its fantastic. susan
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ARCHIVED Make-up
pixiegirl replied to KayJay's topic in Gluten-Free Foods, Products, Shopping & Medications
I have huge problems with chemical sunscreens on my face, I just can't use them, I break out in a huge red rash every single time, regardless of the brand, I can however use them on my body its above my shoulders that is really sensitive. The only kind i can use on my face are physical blocks, zinc oxide and titanium oxide.. there are a few companies that... -
ARCHIVED Tired Of The Cheaters And Skeptics
pixiegirl replied to angel-jd1's topic in Introduce Yourself / Share Stuff
I would never cheat either, I just get too darn sick but I have glutened myself accidently a few times, its no fun! I was new to this board sometime back last fall and I asked all the typical questions but so many answered me so nicely that I felt comfortable here. In truth when I first went gluten-free I thought that maybe once a year, I would break... -
ARCHIVED Your Most Favorite Gf Food?
pixiegirl replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
Manna by Anna bread... so good. Susan -
its on their web site, fruit and walnut salad... it says it has gluten but when you look at the ingredients only the walnuts appear to have any gluten. I hope this link works: Open Original Shared Link I think its now available nationwide. Susan
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They have that new fruit salad with yogurt and I've been told the walnuts that come with it (packaged seperatly) have wheat in them... But what about the yogurt. I know their yogurt parfait is gluten-free but is this yogurt with the fruit salad the same stuff? Has anyone called them? I looked on the web site but couldn't find the info I was looking for...
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ARCHIVED What's This About Kissing Non-gf People?
pixiegirl replied to westiepaws's topic in Coping with Celiac Disease
Well my boyfriend is not Celiac and certainly does not eat gluten-free and I kiss him all the time, and I'm hugely gluten sensitive. He's a neat eater and wipes his mouth a lot and will drink something before we kiss to rinse down any gluten. I've never had a reaction. I guess I'd just suggest to hold off on French kissing during meals!!! Susan -
Hi Andrew.... Well its certainly a change when you have to go gluten-free... I try to look at it not from the standpoint of looking at how awful it is or dwelling on the things I can't eat but on how much better I feel and how healthy I'm going to be. I'm no expert but I think an elimination diet works the other way (although the name is misleading...
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ARCHIVED Stupid Questions..
pixiegirl replied to SabrinaLuvsGluten's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My blood test were totally 100% negative for Celiac. However, I went on a gluten-free diet after the test and in 3 days felt about 85% better. I then sprung for DNA testing and found I carry the 2 main genes for Celiac. Every time I've had a gluten accident I'm sick in 20 minutes for a good 2 weeks... so you have to keep in mind that the blood test is... -
ARCHIVED Why Do People Have To Be So Mean?
pixiegirl replied to Emme999's topic in Coping with Celiac Disease
I know how you feel... I've had some issues with my brother... but I don't think your family is being mean.... people often nix what they don't understand, many people just resist new ideas... a lot of people have trouble with the idea that food (which of course we all need) can cause problems. And lastly your parents are probably worried about your health... -
ARCHIVED Not Celiacs?
pixiegirl replied to prana's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can relate to your story because I was diagnosed with Chronic Fatigue Syndrome and IBS prior to finding out the gluten is my problem. I may have those other issues, I don't know, but I do know for a fact that I am Celiac. People can have a variety of allergies and sensitivities and I'm not sure if this is accurate but it seems like people with Celiac... -
ARCHIVED The Medical Community Are Clueless
pixiegirl replied to anewsprue's topic in Coping with Celiac Disease
I think we all need to remember that until recently, in the USA, this was thought to be a rare disease. Now we know its much more common then previously thought, but.... there are still so many undiagnosed people out there. When the doctors and nurses were trained, they were told this was rare and that they will hardly ever see it and that is their mind... -
I think being diagnosed as IBS is pretty common for celiac's. My former doctor told me I had IBS and lactose intolerance for 10 years... then thru a round about way and long story I decided I was celiac... I immediately go off all gluten (I was carb crazy too) and guess what, in a matter of days all my IBS symptoms go away and after about 6 weeks i get brave...
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Yes do rule out mouth/tongue cancer... my brother has no mouth cancer risk factors, has never smoked and is not and has never been a alcoholic and he is battling mouth cancer right now.... it started with just a small white spot on his tongue, its certainly not common, so don't freak out.... but rule out the bad stuff. Just as an FYI so far my brother...
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I just want to say that I've never had a problems with "plain" meat, fish, or chicken, however I almost only eat at expensive places because I've had such good luck with them (I will however do MacDonalds, Outback and PF Changs) and I can't see a restaurant such as Morton's or Ruth's Chris using steak that has anything added to it. Also I've had far better...
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ARCHIVED Curry Classics.... Ok?
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok darn... no its not by Thai Kitchens, that company I know, its called Curry Classics.... I ate it and its got some gluten in it because I'm already reacting. About an hour after I ate it I got thru to the company and they said it contains gluten... I don't know where, it must be small amounts because the word spices is the only questionable thing. Oh... -
ARCHIVED Curry Classics.... Ok?
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
When I was at Whole Foods market on Sunday I found in the frozen section some Thai frozen dinners called Curry Classics... Thai Chicken Basil. Its parent company is Arch Foods? They have a phone number on the package that I have been calling for 3 days, its always busy. I'm wondering if anyone knows if this is gluten free, the only questionable ingreident... -
ARCHIVED Newly Diagnosed Stress
pixiegirl replied to Emme999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmmm I feel like there is something wrong with me.... I didn't go thru what all of you are describing! I do agree its a big deal, its wheat world out there! And I hate the fact that eating away from home is difficult at best, but I didn't freak out (I'm generally not known too, so maybe thats it). I guess because I felt so terrible for so many years... -
Wow, without a doubt I'd give up catering halls and the like... too difficult to control where the gluten goes. I agree with whom ever said that each person has to make their own decisions about how to handle these issues. I fall into the catagory of one that refuses to let Celiac run my life... its what I've got and its not a big deal is my attitude...