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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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ARCHIVED Peanut/nut Free And Gf - Impossible
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
My daugher has a life threaten allergy to peanuts and tree nuts and wants to try gluten-free (having some digestive issues) and we can't really. She's a kid and wants snacks, cereal, breads, cookies, crackers. I've been making a ton of calls over the past few days and I'm at the point where its really getting hard. All Gluten free pantry and Bob's... -
ARCHIVED Altoids
pixiegirl replied to jams's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh dear, I eat a ton of wintergreen altoids and I just assumed (stupid i know) that they are gluten-free. (because I read that Altoids were so I thought it meant all altoids) I guess I better go read the label. Susan -
ARCHIVED My Dad Has Cd, But Won't Go Gluten Free
pixiegirl replied to Amanda76's topic in Parents, Friends and Loved Ones of Celiacs
The simple answer is you can't "make him" or even convince him. My mother has celiac disease and only does gluten-free "sometimes" which really means hardly ever..... only when her runs get bad otherwise she's eating anything she wants too. I've given her the books on Celiac, sent her to web sites, etc. She doesn't want to. So thats that. My... -
ARCHIVED What Comfort Food Do You Eat, To Feel Better?
pixiegirl replied to SandyShoes's topic in Coping with Celiac Disease
Yes to mashed potatos! My major comfort food. Susan -
I use to take various meds for my runs but now I'm totally off them (the gluten-free diet helped but not totally) and I take Citracil every day. They make a new flavor, chocolate that you mix with milk and its like a shake. (well you have to drink it right away otherwise it starts to thicken) I drink it once a day and I have no more runs. It tastes good...
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ARCHIVED Finding A Boyfriend
pixiegirl replied to joemoe003's topic in Introduce Yourself / Share Stuff
My boyfriend does not have celiac disease and he's so considerate of my celiac disease, its how love is, or should be. Honestly I don't think the celiac disease thing makes a bit of difference.. its hard enough to find someone you love to limit your search to those who have the same disease as you, well, thats pretty limiting. Not to mention that yes... -
ARCHIVED It Was Frightening Last Night...
pixiegirl replied to lorka150's topic in Coping with Celiac Disease
In my opinion there is something toxic about all farm raised salmon, just just the coloring. I only eat wild salmon, yes its hugely expensive, but I eat way smaller amounts. Susan -
What a beautiful happy little girl! Many best wishes for you both. When I read about people having a baby I always get choked up and reflect on the day my daughter was born, almost 14 years ago. She has been the single most wonderful gift of my life. I'm sure your daughter will fill that niche for you! Enjoy, try and get some rest and accept offers of...
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ARCHIVED Woman's Day September 13,2005 Issue
pixiegirl replied to brdbntL's topic in Publications & Publicity
Lately it really does seem like we are getting a lot of press, I'm so happy about that! Susan -
ARCHIVED Leap Testing
pixiegirl replied to liljules5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know someone that had this sort of testing done.. and it turns out according to the testing that they are allergic to virtually everything. For years they are eating a diet of meat fish and rice, very few fruits and veggies as the testing showed they were "allergic" to them. Well after a few years of such restrictive eating they tired of it and started... -
I eat at Outback and PF Changs regularly (both are owned by the same company) and I've never had a problem regardless of where they are (I've been in them all over the country. I'm really careful, however (overly so). When I walk up to the front desk I ask there for a gluten-free menu because they often keep them behind the desk. I also ask that hostess...
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I think it might be to your advantage to have the tests done. But I agree with everyone here, it takes a good long while for some people to feel better. When I first went gluten-free I did get improvment the first week but I wasn't "all better" just not feeling like I was run over by a truck. However I was glutened on a trip to the Florida panhandle...
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ARCHIVED Living Without--newest Issue
pixiegirl replied to celiac3270's topic in Publications & Publicity
Has everyone gotten their new issue of Living Without... I've been hearing about it here and I didn't get mine. I guess i better get in touch with the publisher. Susan -
ARCHIVED I Have The World's Best Friend :)
pixiegirl replied to skoki-mom's topic in Coping with Celiac Disease
My best friend and my sister in law are very careful with my gluten issues and I love that they are. Susan -
Victoria's secret and I think a lot of the less expensive companies now sell all cotton "boy shorts" for girls in nice colors too. Do you know for sure the rash is DH or could it be something else? I'd see a dermatologist and see if they can figure that part out. Susan (who has a lot of skin issues and none are DH but gets a lot of rashes)
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ARCHIVED Updated Silly Yaks Restaurant List
pixiegirl replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi celiac3270, I can't even get to the web page (url) supplied here the one that starts with f2.. blah blah. I get the page not found thingy. I can't understand why this happens, I've spoken to the owner of the yahoo group, I do get all their mail and can go to the start page of the silly yaks yahoo group but when I click on the link my adobe opens... -
ARCHIVED Gluten Free Online Food
pixiegirl replied to swittenauer's topic in Gluten-Free Recipes & Cooking Tips
I too love the gluten-free Whole Foods products, they are good but... I love this bread even more: Manna by Anna (google it) its a mix and it works best with a dough enhancer but when made it is soooo good. It doesn't crumble and it tastes great even without toasting. I make mine in an old bread machine and it comes out just right each time on the regular... -
ARCHIVED Updated Silly Yaks Restaurant List
pixiegirl replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
The URL comes back for me as not found. Can I have a copy too, I'm a member of that list but can't ever get any of their lists and such to open for me. Susan -
Yes forward me the info about the meeting... are you going to go?? Susan
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ARCHIVED Newman's Own Organics
pixiegirl replied to KaitiUSA's topic in Gluten-Free Foods, Products, Shopping & Medications
Wait a minute..... I thought Newmans Own had a lot more gluten free stuff then that! What happened? Susan -
ARCHIVED Eating Out? Is It Impossible?
pixiegirl replied to Lanai's topic in Gluten-Free Restaurants
I come from a family of eater outers.... my daughter went to her first restaurant at 4 days old, LOL. I've been gluten-free for a year now and doing well with eating out. In the past 2 weeks I've been to upstate NY and to Birmingham, Michigan and have not been glutened once, I've eaten out virtually 3 meals a day. I'm getting good at picking restaurants... -
Hi I just got back from vacation and am catching up.... I'm not sure if I have the info about the cape celiac group but I'm sure I can find it on line some place... I'll see what I can find for you. They meet in Mashpee I believe. I'm curious what GI doctor you found on the cape. My internist is Dr. Rosa Moncholi in Hyannis but I don't think she is...
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I still think even with a gluten-free menu that in any restaurant you need to reinerate it over and over. I was at Outback a couple of days ago, they do have a special gluten-free menu, it does however look like the regular menu but with gluten-free stamped near the things that are gluten-free. However when the server comes to the table I ask them if...
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Someone mentioned Risotto and said isn't it gluten-free, the answer to that is usually not. It is almost always made with chicken broth and unless they make the broth at the restaurant they probably won't know if the broth is gluten-free. I just spent a week on the road in upstate NY and wasn't glutened once, I was in the finger lake area and syracuse...
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Since yesterday the board is working differently for me. I go to my assistant and it tells me how many new posts I have and normally when I click on it it goes to the board and the topics with new posts are in dark bold headings and the ones not in bold are older topics that do not have new posts. Now nothing is in bold, its just all the topics so...