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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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ARCHIVED Boyfriend/ Fiance With Celiac
pixiegirl replied to fuzzelfluff-04's topic in Parents, Friends and Loved Ones of Celiacs
I don't live with my boyfriend (yet) but we spend a lot of time together and travel a lot too. He isn't gluten-free and it certainly doesn't bother me. If we are out to lunch and his meal comes with bread/flour of some sort thats fine, I don't have a problem with that. Most of my cooking is gluten-free but I do make him and my daughter wheat pasta. He... -
ARCHIVED Kraft Mac N' Cheese Powder Cheese Packet
pixiegirl replied to jkmunchkin's topic in Gluten-Free Foods, Products, Shopping & Medications
I've read in many different places that the Kraft cheese powder is gluten-free and Kraft is a company that doesn't hide ingredients. The powder comes in a sealed packet so you don't have to worry about contamination but I'd wipe it off first. I've also heard that you can buy just the powder in some stores but I've never been able to find it, if someone... -
ARCHIVED Total Gut Inflamation!
pixiegirl replied to mela14's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know about Phayzme but Rolaids makes a antiacid and anti-gas called Rolaids Multi Symptom and they told me it was gluten-free it works wonders for me. Susan -
ARCHIVED People That Know Better
pixiegirl replied to stef-the-kicking-cuty's topic in Coping with Celiac Disease
Oh I have mixed feelings about this... of course we all know its not a wheat allergy and totally different. I certainly try and teach people who say its an allergy that it is totally different. However, when I get the people like the woman that you ran into, I tell them once and move on. For me its not worth the aggravation of getting so pissed off. The... -
ARCHIVED Boyfriend/ Fiance With Celiac
pixiegirl replied to fuzzelfluff-04's topic in Parents, Friends and Loved Ones of Celiacs
I don't have much new to add to the great replies above but I can say that my boyfriend is so very supportive of me and I can tell you how much that helps. If your boyfriend follows a gluten free diet very carefully you won't have to worry about future health issues caused by Celiac. My boyfriend learned about Celiac and read all the info I sent him... -
ARCHIVED Why Do We Need To Check Shampoo, Soap, Etc?
pixiegirl replied to tasha's topic in Gluten-Free Foods, Products, Shopping & Medications
Well I felt like you in the beginning too and I still use some shampoo's that may contain wheat in them (my Bumble and Bumble.... but I have very fine fly away hair and it really adds body and bounce) but I use a hand held shower sprayer and make sure I rinse it down my back not near my face or mouth. However that being said, since even a little gluten... -
ARCHIVED Fda Announces Public Meeting To Solicit . . .
pixiegirl replied to lbsteenwyk's topic in Gluten-Free Foods, Products, Shopping & Medications
I submitted a long comment, the more of us that do the better. I had to search to find it there are pages of "dockets" and I think the gluten one is on the 4th page at the top. Susan -
I'm not familiar with Joe's ..... is it a chain? I really understand with the poster that said, when I go out I want food I can't/won't cook at home. Me too! I've found here on Cape Cod that in our better restaurants... one of my favorite being Grill 16 in Hyannis, first off the chef makes most of his sauces by the reduction method, he does not thicken...
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I like the idea of a newbie being directed to a page just for them... with links and maybe common quesstions. I know when I first got here the whole message board concept was fairly new to me and like speaking greek, I didn't know how to do it, so I couldn't have searched even if I had known you could do that. It took me months to see the "My Assistant...
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ARCHIVED Discrimination - Glutein-free
pixiegirl replied to Dittenheim's topic in Gluten-Free Restaurants
This is a private business that to the best of my knowledge can do this. I can tell you one thing for sure... to pursue this in the legal system will cost you a huge pile of money. Now if you are willing to pay for it on your own then thats your business but I don't think you have any chance of changing their policy. They can serve what they want to serve... -
ARCHIVED Putting Pressure On Spot In Ear
pixiegirl replied to lockett's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ohh I didn't read about the sex part, I'm going to go try it now. Susan -
ARCHIVED More Single Sized Serving Quesstions....
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Ok great I found the Annie's thanks so much, now how about a gluten-free soy sauce in an individual packet? I went to the website Open Original Shared Link that sells small stuff but I'm not sure if the items there are gluten-free... I know A1 Sauce is, but how about Tabasco sauce? Does anyone have any other travel suggestions for single sized stuff... -
ARCHIVED Annie's Salad Dressing
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I think someone posted where I can get these small individual travel packets of gluten-free salad dressing.... I saved the link and now in my gluten-free folder there are over 200 links and I can't find it.... Can someone help me. Thanks, Susan -
ARCHIVED Going On A Cruise Saturday!
pixiegirl replied to LqrMan's topic in Traveling with Celiac Disease
I'm a cruiser too and even though I've only been diagnosed with Celiac for less then a year I've cruised twice since then. Also prior to that, I've cruised 7 times and my daughter has a life threatening peanut/tree nut allergy so I know about how some other cruise lines handle food issues. We have had great help from: Royal Caribbean, Norweigian and... -
ARCHIVED Top Three Worst Gf Products
pixiegirl replied to anerissara's topic in Gluten-Free Foods, Products, Shopping & Medications
Best Bread: Manna by Anna it waaaaay better then the Kinnikinnick in my book. Second choice are the breads that are made in the Whole Foods Bakery. Susan -
ARCHIVED Snacks
pixiegirl replied to melhopkins02's topic in Gluten-Free Foods, Products, Shopping & Medications
I can tell you every McD's in Hyannis, MA have totally gluten-free fries and so does every McD in Boston that I've been too. I don't just ask the person behind the register, I ask the store manager. I'm a fast and huge reactor and I've never reacted at McD. But you do have to ask if the fryers are dedicated and I go further to quiz them.... nothing else... -
ARCHIVED Putting Pressure On Spot In Ear
pixiegirl replied to lockett's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes I'm going to be gluten-free for the rest of my life and for me, its not that difficult (well eating out is not easy but at home its a breeze). For the first time in my life I feel good and am happy. I happen to travel a lot and for the first time I'm seeing the sights instead of the bathrooms, what a joy! It use to be the only foreign phrase I... -
ARCHIVED How Did You Tell Your Friends/family?
pixiegirl replied to Suezboss's topic in Coping with Celiac Disease
Oh I'm not sure its about how you explain it but to whom you are explaining it. I think they fall into a few groups: Those that listen and understand. Those that listen and for whatever reason, just don't/can't get it. Those that don't care. In my experience I have 3 in the first group (my mom, my boyfriend, and my best friend) ... -
Does anyone know of any gluten-free places in upstate NY, for a week I'm touring the finger lakes area, Rochester, Syracuse, area... any info would be very helpful. Thanks, Susan!
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ARCHIVED Bacterial Enzyme Renders Gluten Harmless
pixiegirl replied to Emme999's topic in Related Issues & Disorders
Yes we know its not proven... I think that was said but the question was... if it was proven would you eat gluten regularly and take the "pill" or would you mostly avoid it and use it occasionally. Personally as I said, my diet it healthier this way but I'd certainly use it when I go out to dinner. Susan -
ARCHIVED Any Gluten Free Bread Suggestions?
pixiegirl replied to GFG's topic in Gluten-Free Foods, Products, Shopping & Medications
I've tried them all and for my taste buds there is nothing like Manna by Anna, I make it in my bread machine and its wonderful, never crumbles, is never dry, can be eatedn without being toasted and tastes like a real baked country wheat bread. To order just google it. Susan -
I've been to St. Martin for about 3 years in a row now... I really do love it there. I happen to be a topless person so I also love that its french (well half of it) and I can go topless. If that bothers you certainly don't go to Orient Beach where there is a lot of topless and some bottomless as well going on. However on Orient beach there are a lot of...
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ARCHIVED Do You Think Of Yourself As A "sick" Person?
pixiegirl replied to frenchiemama's topic in Coping with Celiac Disease
I feel just like celiac3270... I felt like a sick person before I knew what was wrong with me.. because I was sick, all the time. Now after 10 months of gluten-free I feel great, healthy. However when I do get accidently glutened I do feel sick (again because I react so severly to being glutened). I think I'm as healthy as I've ever been too. Susan -
ARCHIVED My Diet Is Not Like Most Of Yours
pixiegirl replied to coin-op's topic in Coping with Celiac Disease
Just a few comments here... almost any veggie tastes great if you saute it in a pan with olive oil... do it over a fairly high heat so the veggie stays a bit crispy and it gets slightly browned on the outside. When its almost done add the garlic... it you add it earlier overcooked garlic doesn't taste all that good. Then eat... sometimes I deglaze the pan... -
ARCHIVED Summer Salad Ingredients
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
thanks Richard... I do that usually, try to find Kraft's stuff but our grocery store only carries Gold's. I did see on some list it was gluten-free so I used it in the salad and I didn't get any reaction so I'm guessing it was ok. I've been gluten-free since Sept. last year and occasionally when making things that I've always made.. like this salad...