momxyz
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About Me
I came here because of my daughter...
2003 - her growth rate had dropped off, she had off and on again tummy aches etc. slightly elevated anti-gliadin IgG, negative findngs on endoscopy. Told she did not have to avoid wheat.
2008 - she had problems with constipation
2009 - she developed insomnia,anxiety and depression, and I begin finding "the Gluten Connection"
She went gluten free July 2009. Insomnia, constipation, depression improved.
It finally dawns on me that my very itchy and very persistent rash could possibly be DH
I go gluten free August 2009 - rash is slowly but steadily resolving.
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This very well could be a topic that should be posted elsewhere, but my "presenting symptom" almost three years ago was an itchy rash, so that's why its here. I know its not good to self diagnose, but at the same time I was dealing with the rash, I was helping my daughter through her problems. Long story I've told previously, won't repeat. But whenever...
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ARCHIVED Reactivation Or Something Else?
momxyz replied to momxyz's topic in Dermatitis Herpetiformis
No, the grill is practically brand new, and nary a bun has touched it this summer! Also, my husband got this special tray for putting things like fish and scallops on. But, when I came home tonite, I pulled the bottle of sauce out of the fridge, and distilled vinegar was the second ingredient on the list. I have a few questions for you! 1. This wasn... -
I've been on this forum for almost exactly two years. My daughter has been gluten free for 2 years; my 2nd year aniversary is Aug. 10. I went gluten free to see if it would help with a perisistent, itchy rash of 10 months duration on my legs. It was so bad I couldn't wear shorts the summer of 09, and if I had to wear a dress, had to wear black pantyhose...
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I think there could be significant numbers of people who have Dh that don't get diagnosed. Just as with any other medical issue, it would seem logical that there would be a degree of variability to the presentation of the rash. So a "classic" case might be easily recognized. But, someone else's rash, which does not quite fit that classic presentation,...
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thanks for this post. Explains a lot of what I experienced lately, as I queried in another post. After previous "glutenings" exacerbation of the rash - my primary presenting symptom - was what I noticed first. 16 months out, this is no longer the case - to hear that new skin lesions are now one of your last signs corroborates both my recent experience,...
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I do believe my threshold is higher. My daughter, for example, is more sensitive than I. Would it make sense, that the longer I've been adopting the gluten free diet (16 months now), that this threshold would be even higher than when I started, because those antibodies have been eliminated over time? That there would be an even longer lag time between...
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thanks all. as far as continueing to eat gluten in order to pursue testing goes, I'm not really wild about that prospect. Yes it would be nice to have a diagnosis. But back in June, when the rash was reactivated after eating cake, I happened to have a physical. I talked to my physician about what I had experienced over the past year, and she told me she...
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It's been a long time since I've posted... because both my daughter and I have been doing well. Won't retell our stories....the recap is that alhtough neither of us have a formal diagnosis, the gluten-free diet helped my daughter in many ways, and going gluten-free helped me get rid of a rash with many of the hallmarks of DH. I had been experiencing a...
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18 years ago my mother in law had most of her stomache removed due to cancer. Immediately, this changed her life style, and, to some extent the nature of our family gatherings. First was the need to eat at planned times. She couldn't wait for a "fashionably late" dinner. Second, there were foods she could no longer digest. So, we had to ensure that...
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oh yeah, she already did check Vit D! And my thyroid function. Both were low. and there was a parameter on my CBC that was a possible indication of Vitamin B deficiency. (I work in a lab, will explain that one on request) So, she prescribed Vit D, thryoid replacement hormone, a biphosphonate drug (for the osteopaenia.) I had already been taking supplemental...
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ARCHIVED All Tests Were Negative, But I Can't Eat Gluten
momxyz replied to Kay DH's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
for the most part, I will "ditto" conniebky's reply... but I will also add that I do understand that it can be somewhat frustrating not to have an "official" diagnosis. Initially I didn't need the validation of an official diagnosis. First it was all about making my daughter better; the benefits I obtained from being on the same diet were observable... -
hi all, have not visited this forum in a while, mostly because life has been too chaotic. I have been working two jobs, while hubby got his feet on the ground after being laid off. This craziness, fortunately, will be ending soon, but safe to say, I have not had much time for social networking!!! My daughter is doing great on the gluten free path, independently...
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ARCHIVED Baking Cheap, Crunchy Snacks?
momxyz replied to David in Seattle's topic in Gluten-Free Recipes & Cooking Tips
hey guys, sorry my reply has been a bit delayed, but following is my cracker recipe. Can't claim it as my own, was given to me by someone who helped me get started on this gluten free journey. I will give the the recipe they gave me originally, how I have used it, and other possibilities.. Brown Rice Flour Crackers. 2 cups brown rice flour 1/2 tsp... -
ARCHIVED Baking Cheap, Crunchy Snacks?
momxyz replied to David in Seattle's topic in Gluten-Free Recipes & Cooking Tips
Well, this won't hit the salt and fat taste buds.... but I have a simple cracker recipe that does hit the spot when I need something to munch on. Basically brown rice flour, melted butter, water, seasoned with a little basil and marjoram... and brown sugar (more or less according to your taste). I like a slight sweetness so I add more than the original... -
I'm another "Other"! Although I voted "Eat to Live" I do appreciate good food, and go through periods where I really enjoy experimenting in the kitchen. Basically for me it boils down to time - when I am very busy and don't have time, or, I want to use my free time for outdoor activities, I don't focus on food very much at all, and like another poster...
