
bklyn
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celiac3270,
Thanks for your infor - my daughter attended also, took notes and called me with the facts. She was thoroughly impressed with Dr. Green and even asked one question about me! She convinced me to make an appointment with him (or one of his associates) to deal with my stomach problems. He talked about enzymes (which he prescribes) and how he doesn't agree with acid reducers (which my Dr. gave me). I told her to look for you, but no luck! She went to the 12:30 talk. She also ate a lot of gluten-free goodies.
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Ok, this is another question for the computer challanged - copy and paste someone else's answers and then what?
Thanks
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Lovegrov,
I had a totally different experience - my dr. spoke to me after the endoscopy and told me he thought I had Celiac Disease (what's that, I thought) but I should get the blood work done before it was a definite diagnosis. Also, he told me to go home and look it up on the internet! When I did that, I thought he was totally crazy for even suggesting that I had it.
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Emma, the "5" I mentioned is the number from my latest antibody blood test. My dr. says that it's good, it shows I am following the gluten-free diet. The strange part of this is that I was totally asymptomatic at the time of my diagnosis. All of these stomach problems just started recently. I'm worried because I haven't responded to any acid medications - that's why I'm having a CAT scan. It's all pretty scary for me right now.
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celiac3270 - My two daughters who live in NY will be attending. I signed up but I'm not feeling up to attending. One of my daughters is getting tested, the other is going to attend Dr. Green's speech. Will you be wearing name tags?
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I posted around 12:00 today and I don't see my post. How long does it take to show up? I'm never sure I'm doing it correctly.
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I need some advice - I'm still having stomach pain and nausea (around 2 mos.). My GI Dr. at first prescribed anti-acid meds. These have not helped. Now he is scheduling a CT scan. These symptoms started after being gluten-free for 5 mos. My latest antibody test was "5". Is it possible for the gluten-free diet to make someone sick! I never had any gastro symptoms before my diagnosis. I'm sick and depressed.
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Are all cake frostings gluten free? I bought a gluten-free cake mix, but I'm not sure about frostings. (Never bake, my daughter offered to do this)
Thanks!
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I just called to check on Pepsid Complete and was told that are "testing" to see if it is gluten-free. They did not have a date as to when they would know. I thought I read on this forum that it was gluten-free. Should I take it?
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I can't find the post about "burning stomach" with a remedy suggested. Does anyone remember where this originated?
Thanks.
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My GI dr. called with results from my antibodies test. I've been gluten-free for 7 months. It was "5". He said that was down from my original of "194". I was surprised (worried that I was getting gluten) Also, because my stomach is still acting up (pain, nausea) I thought maybe I was getting glutened. He doesn't seem to know why my stomach still hurts, but called my in some compazine for the nausea.
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Glad to hear that your tests are over - been there, done that. I was so stressed when I was scheduled to a colonoscopy and endoscopy at the same time, I got so sick (nauseated) that I couldn't drink the prep. My GI only did the endoscopy and then about 2 weeks later ( when my stomach settled down) I had the conoloscopy. Enjoy your trip!
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I'm not sure how to reply to a post - sometimes I see my reply and other times I don't. Which button do I click to post a reply?
Thanks!
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I had a wonderful birthday surprise yesterday. My family arranged for a chef to come to my house and prepare a birthday dinner. My daughter found her online and told her about my dietary restrictions. The chef was familiar with celiac and researched so she could prepare a totally organic and gluten free meal. It was amazing. This was the menu:
Salad with pears, walnuts, dried cherries
Macadamia nut encrusted snapper with fruit chutney topping
rice with cilantro
green beans with corn
flourless chocolate cake
I was so happy to stay at home and enjoy a meal with the stress of eating at a restaurant and worrying about gluten.
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This is Carol Fenster's Pizza Crust:
I've made this 3 times and it tastes like the real thing, just be sure to put A LOT of brown rice flour on your hands because it is very sticky! Also, I double the receipe so it's enough for 3 or 4 servings.
1 tablespoon dry yeast
2/3 cups brown rice flour
1/2 cup + 2 tablespoons tapioca flour
2 teaspoons xanthan gum
1/2 tsp. sale
1 tsp. unflavored gelatin powder (knox)
1 tsp. Italian seasongs
23 cup warm mile (110) degrees or non-dairy liquid
1/2 tsp. sugar or honey
1 tsp. olive oil
1 tsp. cider vinegar
Extra rice flour for sprinkling
Preheat oven to 425 degrees. In medium mixer bowl using regular beaters (not dough hook) add the yeast, flours, xanthan gum, salt, gelatin powder, and Italian seasonings on low speed. Add milk, sugar, oil and vinegar.
Beat on high speed for 2 min. (If the mixer bounces around the bowl, the dough is too stiff, add water if necessary, one tbls. at a time, until dough does not resist beaters) The dough will resemble soft bread dough.
Put mixture on lightly greased 12-in. pizza pan. Liberally sprinkle rice flour onto dough, then place dough into the pan, continuing to sprinkle dough with flour to prevent sticking to your hands. Make edges thicker to hold the toppings.
Bake for 10 min. Remove from oven. Top Crust with sauce and favorite toppings. Bake for another 20 min or until top is nicely browned.
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I agree. Actually, I was insulted by his suggestion, I thought he should have given me a different medication if the Prolosic wasn't working. Now I feel that he had "labled" me and may not look for answers when I go to him. This is only the second time I've seen him since my diagnosis (7 months ago). It's not like I'm in his office every week!
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I've been having stomach discomfort for the past week (nausea, pain in stomach) My GI Dr. said he didn't think there was any connection to Celiac (I was diagnosed in Sept.04) I had no gastro symptoms, I was iron deficient. After 1 week on Prilosec I'm not feeling better, so I called him today. His advice was "I think you should go on an anti-anxiety medication". I was shocked! I told him I would think about it and get back to him.
I feel like he is taking the easy way out because he doesn't know what else to say.
Any Advice?
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I'm in Ft. Lauderdale, Florida
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I've been feeling bad for about a week now - first burning stomach pain and now nausea. I saw my GI dr. yesterday and he doesn't feel this is celiac disease related. Told me to take Prilosec (which I started this morning) but I'm still feeling bad, plus a side effect of Prilosec is headache. I don't know what set this in motion. I've been gluten-free for 7 months and never had these symptoms. Any advice?
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Just throwing this out there to see if any of you have any ideas - Before I was diagnosed (Sept.04) I had a cough which I always thought of as a seasonal allergy cough. After going gluten free, I suddenly stopped coughing! Now I think it was related to stomach. Suddenly, in the last week or so, I'm starting to cough again and having some stomach pain and heartburn. I did eat a few meals this week with wheat free soy sauce and I'm wondering if the soy is bothering my stomach. Any ideas?
Kathy
Ft. Lauderdale
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I have a slightly different issues than many of the other people who post here. I have no gastro symptoms and was diagnosed because of low iron. I have been gluten-free about 6 months, but most of the problems I've faced have been psychological. I was totally blindsided by this diagnosis (because of no symptoms) and found it hard to accept that I had to face this lifestyle change. All of the possible complications put me in a tailspin, and the resulting worry and stress have caused me problems with fatigue (result of stress.) I have started to see a therapist to help me work through these problems and try to live one day at a time, rather than worrying all the time about the "what ifs". I tend to feel sorry for myself when I can't just grab a bite to eat at the mall. Eating out is an important part of my family's social life and now it all revolves around where I can eat.
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I ate tonight at Legal Sea Foods and they have a new wheat and gluten free menu. They were very accommodating on the phone when I called to inquire, and wrote "gluten free" next to my reservation. The menu has many choices, I had shrimp in a garlic sauce with white rice. Really good! The staff was excellent, checking on me several times and at the end of the meal the hostess came over to discuss the menu with me and told me I was the first person to request it. I told her I would pass the word.
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Since LaChoy's Soy Sauce is wheat free , I assume their teriyaki sauce is too.
I believe they are distributed by ConAgra foods who say they list wheat on their bottles.
Mission Corn Tortillas
in Gluten-Free Foods, Products, Shopping & Medications
Posted
I just purchased Mission Corn Tortillas and they are marked "gluten free" on the package. Yeah!