Seosamh
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ARCHIVED Barley Grass And Wheat Grass
Seosamh replied to lonewolf's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi folks. If anyone is still curious about this topic. I bought Amazing Grass Organic "Amazing Trio" Barley Grass, Wheat Grass & Alfalfa Whole Food Drink Powder, which is labelled Gluten Free & Raw. And, right now (2 days after drinking it), after having put it in a juice, I feel very raw on the inside! I'm not 100% sure that this... -
Our guts take a long, long time to heal. Do you visit any naturopathic doctors? They have helped me figure out what to take and what not to take--how to get my gut working, after a lifetime of it not working right. They focus on helping your body heal, not just diagnosing and medicating. Hope you feel better soon! Good luck--! Seosamh
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Hi there,I'm writing today, feeling fairly well. I wonder how other celiac's who were long undiagnosed got through it. Are other people as angry at the medical establishment as me? At themselves? I still often feel depressed, wishing that I could have led a healthy life up until now. I always knew something was wrong--I wish I would have figured this...
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Here goes:This blog is a long time in the coming for me. I have "belly-ached" about my belly aches all of my life and had few interested listeners. I would have started a blog long ago, but I was just too damn angry. I'm still angry, but I have a better handle on it at the moment. So:After being sick for most of my life, I was diagnosed as a celiac at...
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ARCHIVED Frustrated - Advice Please
Seosamh replied to Finlay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Finlay, I strongly agree with KVoght and others who've posted. I was not diagnosed as celiac for 30 years! I tended to avoid things like bread but was sick always with nearly the same symptoms that you describe. I went gluten-free, and could notice the difference in weeks. I'd say, let the MDs scratch their heads (they can do that for a long, long... -
Hi, Anyone reading involved in a support group here in NYC? I live in Manhattan and would love to check my reality with other celiacs. I've seen some names listed and have emailed them but haven't yet heard back. best Seosamh
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Thanks ST--drop a line when you come to NYC. I've been trying to meet other celiacs in NYC, but haven't had a lot of luck. I've emailed some coordinators of support groups, but haven't heard back from them. If anyone out there is actually in a NYC support group, could you let me know when a meeting will take place? Thanks, Seosamh
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Hi Dreamhouses-- I've got a PDA (palm pilot) with the downloadeded food and drug lists from Clan Thompson ($38). I love it and have benefitted from it--for instance, the drug list let me know that Maalox anti-gas tablets and Tums have gluten--something for a celiac to be aware of! Yes, maintaining your own list is a good idea also. And I believe...
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Hi all, It is so refreshing to hear other people's perspectives on this! I can sympathize with Tammy a bit, however. My family initially took some convincing to even accept that I have celiac disease--and that it was a "real" disease. I'm amazed at the level of support so many folks on this list have had. My sweetie is my rock and lends me strength...
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ARCHIVED Depressed...
Seosamh replied to Agee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Agee, I don't want to insult the medical profession--or maybe I do just a little--I think you should trust your gut! I did not for decades and instead listened to MDs tell me all sorts of things (such as that I was anorexic even though I ate and ate). Once I went off gluten, I knew it was the right thing for me. Months later medical science "proved... -
ARCHIVED Help And Advice Needed
Seosamh replied to BamBam's topic in Parents, Friends and Loved Ones of Celiacs
BamBam, When I was first realized that gluten was the culprit behind so many secondary illnesses, I became depressed--or rather my depression became overt. One of the main things that has helped me is that my long-time partner started shopping for gluten-free things and even baking gluten-free cookies and banana bread--her devotion and support showed... -
ARCHIVED Gluten Free Medications
Seosamh replied to irish's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi-- In addition to celiac disease, I have hypothyroidism. Does anyone know if the various thyroid medications, particularly Armour Thyroid and the generic Qualitest Thyroid are gluten-free? I found this description below for Armour thyroid, but Qualitest seems a sketchy organization at best--their thyroid medicine was recalled last summer for faulty... -
Thanks--
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ARCHIVED Joint Pain
Seosamh replied to I'm more celiac than you's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've had joing pain for years, and it certainly seems related to celiac disease! Knees and elbows and wrists. Glucosamine + Chondroitin helps me--at least the arthritis end of it. -
ARCHIVED Rice Cakes?
Seosamh replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know, but usually caramel coloring manufactured in the US is not made from gluten-containing grains. And, I think, Quaker manufactures in the US. In Europe, caramel coloring often has gluten--watch out for Ricola cough drops!