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mela14

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Everything posted by mela14

  1. mela14
    hey........... i love your jingle! the reality of it all really hit home after reading it! I'm still adjusting to all of it and having a rough time. not for lack of trying ...but just because I have sooooooo many health issues....so each day it is something else! I know they're all related but knowing it and trying to feel better are 2 different things...
  2. mela14
    glad you're back! You will get better and stronger each day. Just give it time and rest a lot. Your body need it. You've been through a lot! I've had 7 surgeries for abdominal adhesions and it takes evrything out of you but you WILL recover. Hang in there and keep us posted!
  3. mela14
    welcome back, let us know how you are just as soon as you can. hope you are on the road to wellness now!
  4. mela14
    I was thinking the same thing too..........hope all went well.
  5. mela14
    aaascr, i read your post and found it interesting that I used to eat quinoa too and I don't think it gave me a reaction. Then I started seeing a nutrionist who wanted me to have a little protein at every meal. I would have 2 hard boiled egss with the quinoa for lunch. That's when the trouble really started. I would get soooo sick. Not knowing I had food...
  6. mela14
    Donna, I use to get the magnesium shot too but it was the larger needle and it hurt! I was also getting weekly vitamin infusions. My energy seemed to be better at that time but I was still having gut problems as I did not know about the food allergies. does the dr give you a script for te magnesiusm to take home and then you do it yourself? Right now...
  7. mela14
    Has anyone tried these hosts and were they well tolerated? I'm afraid to try anything new especially since having reactions with the regular host before! but..................it's starting me thinking of possibly trying it.
  8. mela14
    I've been sick for years with GI problems and feeling "ill" after food. Only recently did I discover the gluten and other intolerances. anyway, I clearly remember having hard candy and gummy bears while on vacation and getting soooooo sick. I couldn't figure out what it was! My husband and I were going crazy scrutininzing everything I ate. Who knew? Of course...
  9. mela14
    Donna, I'm reading the advice that you gave linda...I'm going to have to take it myself. I am having such a hard time with food. I eat things that I think are ok but then react terribly. The advise you gave to keep it simple is what I have to do. The thing is that I thought I WAS keeping it simple! Chicken seems to be ok......white rice is now bothering...
  10. mela14
    Hi Donna, thanks...and I am trying so hard to keep it simple. My gut feels better but not good yet. I just always feel soreness and inflamation. Sometimes I feel it really down low..in the bowel area....like it is irritated. I know this will take a while to heal but I pray that one day my gut will feel OK. It's been soooooooooo bad for sooooooo long. ...
  11. mela14
    Thanks Donna, The hot brown rice cereal was Bob's Red Mill. Coincidentally I reacted terribly to to his gluten-free hot cereal before I knew that I had a Buckwheat intolerance. I was sooooooooo sick from it...immeditately. yesteday, the reaction started within a half hour. So either I can't tolerate brown rice or it was cross contaminated with buckwheat...
  12. mela14
    I haven't approached the church yet and am moving in 2 weeks so I might take it up with the new church that I will be attending. For now, I still go to mass but don't take the wafer. I remember times after church being really sick but not knowing from what. Only after learning about gluten did my husband and I see what it was doing to me. My husband receives...
  13. mela14
    I had that test done about a month ago and also have LOTS of food allergies. I didn't need the York test tell me that I was reacting to food but it did help to pinpoint or at least validate my intolerances. It IS very hard but you will figure out what you can and cannot eat. I was working with a dietician when I was first told about the gluten intolerance...
  14. mela14
    I've had contact with a few people form this board and all were very helpful and encouraging. That's what were here for.
  15. mela14
    OK.........I did some investigating. The hot brown rice cereal was made by the same manufacturer that I had a reaction to with Buckwheat cereal. I also tested positive for Buckwheat intolerance with the York lab test. Could there be some cross contamination with buckwheat in the same plant that mills the brown rice? That's the only thing that I can think...
  16. mela14
    Hi Faith, Welcome to the board and good luck to you! I have a lot of the same intolerances and soy is a definate NO. I had the York allergy testing done which helped me to fine tune what I should be watching..It's still a challenge though and I have slips. Eggs came up the strongest in so far as allergies and those seem to have been what I reacted a lot...
  17. mela14

    ARCHIVED 13 Years

    mela14 replied to flagbabyds's topic in Coping with Celiac Disease

    Congratulations!!! Imagine what it would have been like these past 13 years if yo hadn't stopped eating gluten or if they hadn't found out what it was! It took them about 10 years to even mention to me that I had a gluten issue! Good luck and keep on being gluten-free!
  18. mela14
    You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet! I had surgery in July 2004 for severe adhesions which were keep my intestines stuck to other organs. BM's were horrible....as there...
  19. mela14
    I had all my vit/minerals checked but all were OK an I still suffer fatigue and muscle pain. Do you have Espstein Barr? That may be something for you to look into. What liquid vitamins do you take? Are they free of a lot of preservatives? Good luck to you !
  20. mela14
    After getting "ill" from lots of different hot cereals I decided to try Organic Hot Brown Rice Cereal. Well, right after I had it this morning for breakfast I got really bloated and nauseous. Not this sick feeling like when I eat buckwheat or a gluten containing cereal but just really bloated, uncomfortable and nauseous. Has anyone else had this? Could it...
  21. mela14
    I've decided that I would like to purchase a bread machine but there are sooooo many out there on the market that I'm not sure which one ot get. Any suggestions? I've also been attempting baking but have not been successful in that either. I've made recipes from scratch and others that are boxed that only need a few ingredients. All were horrible and had...
  22. mela14
    Hi Donna, I see that people do have different views on the gluten issue for the biopsy. There is no way I would have gluten for the test! I will do the biopsy anyway next month, after my move, just to rule anything else out. If the damage is still visible then it's an added bonus. If not, I will continue to eat gluten-free. Yesterday was a better day with...
  23. mela14

    ARCHIVED Nausea

    mela14 replied to mela14's topic in Coping with Celiac Disease

    Thanks for the responses. I checked percocet and didn't see it either on the gluten free drug list. So I'm thinking that it probably DID have it in there. I started a new post somewhere to see if anyone knew if it was gluten-free or not. The manufacturer lists the ingredients and it contains corn starch but then also pregelatinized starch. Not sure what...
  24. mela14
    Hi Donna, Thanks for your sincere reply. You are right ...maybe it is too soon. I just get very discouraged when these slip-ups happen and then it sets me back emotionally and physically. I am tired of feeling so poorly but what choice do we have. I will try harder to avoid gluten and become more fanatical as you say. Hopefully things will start to simmer...
  25. mela14

    ARCHIVED Nausea

    mela14 replied to mela14's topic in Coping with Celiac Disease

    OK guys, i just got back from the weekend and read a lot of your responses. I went to see a new GI dr this weekend in NJ where I will be moving back to in about 3 weeks. He seemed very compassionate and was not dismissive at all. I guess it was also good to have my husband with me. I seem to get a different reaction from doctors when I have him with me. ...
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