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lbsteenwyk

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lbsteenwyk

  1. lbsteenwyk
    It usually says something like "contains no more than a 12% broth solution" or some similar wording in very small print on the label. Another clue is that the sodium is almost always increased. Most fresh meats have very little sodium, but injected meats have around 300 mg per 3 oz portion.
  2. lbsteenwyk
    Here is the full celiac panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA
  3. lbsteenwyk
    I've read that biopsies should be taken from the 3rd portion of the duodenum, not the terminal ileum. If I only had a positive TTG and felt better on the diet, I would assume I had celiac disease and remain gluten-free. If you have a good pediatrician, you may be able to get a diagnosis for your son before you put him on the gluten free diet. I would demand...
  4. lbsteenwyk
    Here is a thread that ran several months ago with lots of good menu ideas for kids: Open Original Shared Link
  5. lbsteenwyk
    I make a big batch of homemade gluten-free waffles on the weekend and freeze them; You can pop them in a toaster oven for a couple minutes (crispier) or microwave them for a quick breakfast. I also make muffins to heat up during the week when my husband is in charge of breakfast. This is not quite as quick, but we also make french toast using gluten-free...
  6. lbsteenwyk
    Debbie: I looked at your daughter on a standard growth chart. She is at the 25th percentile for height, but at only the 3rd percentile for weight. If she has been on the lower end of the growth charts all along, this may not be of much concern, but if you've been seeing a steady decline over the past year or two, I think this indicates a problem. Anything...
  7. lbsteenwyk
    Jessica: When you contacted these companies, did you email them or contact them via regular mail? I am starting a celiac support group next month and want to begin working on getting product samples. Any tips you have are greatly appreciated!
  8. lbsteenwyk
    I looked at the pork injected with broth solution at my local Walmart yesterday. Here are the ingredients: Pork broth, potassium lactate, salt, phosphates, natural flavoring, ascorbic and citric acid. As far as i can tell, natural flavoring would be the only questionable ingredient. I have not checked with Walmart yet about the source of the natural...
  9. lbsteenwyk
    Since she was diagnosed years ago, she may be over-restricting her diet. There are some ingredients that celiacs can use that were once restricted - vinegar for instance. Here are a few links to current diet information. Open Original Shared Link Open Original Shared Link Open Original Shared Link
  10. lbsteenwyk
    Definitely try the diet first! Steroids have some nasty side effects and sometimes they are hard to get off of, too. It doesn't sound as though your symptoms are that bad. I would never take a steroid med unless as a last resort.
  11. lbsteenwyk
    I read an article recently about endoscopies and biopsies in celiac disease patients. It said that occasionally there are "suggestive" changes in the duodenal mucosa that can be seen during the endoscopy with the naked eye. I can't remember if these were described as nodular. I have the article at work and I'm at home now. Anyway, I think your doctor...
  12. lbsteenwyk
    I called horizen about 6 months ago. They do not add gluten to their yogurt, but like Dannon, won't confirm that the flavored yogurts are gluten-free because they outsource some of their flavoring ingredients. I did not ask specifically about the vanilla. We don't use their brand now.
  13. lbsteenwyk
    Rebecca: I went to Enfamil's webpage on nutramigen and found this: Potential Allergens The ingredients in Enfamil Nutramigen LIPIL are hypoallergenic. Rarely, however, allergic reactions to extensively hydrolyzed casein formulas have been reported. It would be unusual, but your baby may be sensitive to the casein, even though the proteins no longer...
  14. lbsteenwyk
    I'm glad to hear your family is supportive of your decision to keep Ella on theGF diet! I think you're making a wise decision not to pursue further testing. Your poor daughter has been through enough doctor's visits. I would make one last call to your doc to see if he actually did order a TTG or EMA, get a copy of the results if he does have them,...
  15. lbsteenwyk
    Shannon: Your doctor is full of crap!!! This makes me so angry. Find another doctor who will support you in your decision to keep your daughter gluten free. Ella sounds like she is having an amazing response to the gluten free diet. Are you getting support from your spouse and other family members to keep her gluten free? Have others close to her been...
  16. lbsteenwyk
    Judi: Where does the UltraClear Plus supplement come from? Is your doctor going to sell it to you? If so, I would be highly suspicious of his motives.
  17. lbsteenwyk
    Thanks, Lucy; I'll appreciate any information you can get. In the meantime, I'll try doing a literature search and see what I come up with. If I find anything interesting, I'll let you know.
  18. lbsteenwyk
    Lucy: Do you have a reference for those numbers? I don't doubt, it's true, but I try keep up with current research so I can share it with docs I work with. I'm always advocating to get type 1 diabetics tested for celiac disease, so if I have a reference to current research that indicates the numbers are this high, it would really help. THanks!
  19. lbsteenwyk
    I don't know the science behind it, but I think this is simply because undiagnosed celiac disease makes people more susceptible to other autoimmune disorders - Type 1 diabetes is also an autoimmune disease. Between 3-8% of children with Type 1 diabetes also have celiac disease.
  20. lbsteenwyk
    As a registered dietitian (RD), I can attest that many dietitians are not up to date on celiac disease. Before you go to your appointment, I suggest calling her and asking how much experience she has had counseling patients, how often she sees celiacs, etc. Ask if she can give you information on label reading, hidden sources of gluten. If she doesn't...
  21. lbsteenwyk
    Have you and your husband been tested yet? One or both of you may have celiac disease and simply be asymptomatic. Children typically have much more obvious symptoms than adults. It is now thought that the majority of adults with celiac disease have an "atypical" presentation with few symptoms, or "silent" celiac disease with no symptoms. I think it...
  22. lbsteenwyk
    I usually tell people that there has been a lot of new research on celiac disease in the past decade and that we now have new information that children do not outgrow celiac disease. As Tarnalberry said, symptoms in adulthood often seem to resolve, but the autoimmune response is still occuring and still damaging the body. Teenagers often experience a period...
  23. lbsteenwyk
    I agree with Merika, you should breast feed as long as possible. It's the one factor you can control to decrease your child's risk of developing celiac disease. My daughter was introduced to gluten during the recommended "window" of 4-6 months and she still developed celiac disease, but didn't have symptoms until about 20-22 months. She was breastfed for...
  24. lbsteenwyk
    Always start with the smallest recommended dose and see how that affects you. Remember to drink the recommended about of fluid with the fiber pills.
  25. lbsteenwyk
    Lucy: Try approaching this from the perspective that you really care about their son and don't want to see him go through what your son has (if your son was very sick at diagnosis). Also you might mention that if he does have undiagnosed celiac disease, he is at greater risk for developing Type 1 diabetes, like your son. The thought of their child having...
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