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lbsteenwyk

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lbsteenwyk

  1. lbsteenwyk
    Hi Kassidy's Mom: It is normal to feel some grief with this diagnosis. The best advice I can give you is not to dwell on it. I always try to be thankful that my child doesn't have something worse! If you haven't yet had your older child tested, I would do so immediately, so that the resluts won't be affected by having less gluten in his diet. (It's...
  2. lbsteenwyk
    Welcome to the board! This really does get easier, I promise! The diet can be overwhelming at first, especially when you have the added stress of caring for a toddler who has been ill. My dd has been on a gluten-free diet for nearly two years and at this point, it just seems like a normal part of our lives. You just have to push through those first few...
  3. lbsteenwyk
    Everyone else has given you really good ideas; I have a couple more to add: corn tortillas made into cheese or mashed bean quesadillas dinty moore beef stew is gluten free homemade hummus - it's very inexpensive to make it yourself I've also had good luck finding local store brands that are gluten free, such as french fries and breakfast cereal. ...
  4. lbsteenwyk
    You can have both celiac disease and Crohn's Disease, but don't panic yet. Are you sure your son is completely gluten free? Any chance that he's getting cross-contaminated or "cheating" at school? Getting contaminated from art supplies, playdoh, etc? Have you checked his soap, shampoo, etc?
  5. lbsteenwyk
    Hi Lisa B: Too bad we are on opposite ends of the state. I was able to start the support group through the hospital where I work. Someone in the community approached the hospital's community outreach center about starting a group. They needed someone inside the hospital to take a leadership role and of course I jumped at the chance. I've had alot...
  6. lbsteenwyk
    Hi, I live near Asheville NC - but I don't have celiac disease, my daughter does. I just started a celiac support group in Hendersonville, though, and had a very good turn out. Where do you live? PM me if you want to chat.
  7. lbsteenwyk
    New Celiac and Gluten Intolerance Support Group forming in Hendersonville, NC. Meeting will be held at the Pardee Health Education Center at Blue Ridge Mall, Hwy 64, Hendersonville. TIME 3:30 pm INFORMATION: Laurie Steenwyk, RD...
  8. lbsteenwyk
    New Celiac and Gluten Intolerance Support Group forming in Hendersonville, NC. Meeting will be held at the Pardee Health Education Center at Blue Ridge Mall, Hwy 64, Hendersonville. TIME 3:30 pm INFORMATION: Laurie Steenwyk, RD...
  9. lbsteenwyk
    Hi Becky: This is strictly a personal opinion, but I think it may be too early to potty train your daughter. I didn't even start with my child until she was past 30 months. She has celiac disease and still has problems with constipation and I just felt she wasn't ready, even though she was right on track developmentally. When we started training, though...
  10. lbsteenwyk
    Try not to focus on how celiac disease will make your daughter different. Every child is different; as parents it's our job to teach our children the value of individuality. Some children need glasses, some kids have diabetes, some kids have ADHD, my daughter has celiac disease. Sure, it's a part of who she is, but it's not the most important part. I...
  11. lbsteenwyk
    celiac3270 - in all seriousness you should think about writing a book (it's not like you have anything else to do, right?) You have a great writing style; I'll bet you could get published! I think if you focused on teens with celiac disease you would have a unique and very marketable book. As an alternative, have you thought about writing an article for...
  12. lbsteenwyk

    ARCHIVED Fiber

    lbsteenwyk replied to BRCoats's topic in Related Issues & Disorders

    I believe that when the vegetables are pureed, the existing fiber is broken down into smaller fibers and becomes a little easier to digest. Insoluble fiber works by holding fluid; when the fibers are pureed, they can't hold fluid as well.
  13. lbsteenwyk
    All Bush's baked beans are gluten free - except for the chili beans, if I remember correctly.
  14. lbsteenwyk
    All of the celiac tests can be inaccurate in children under 2 years. Also, there is some question about accuracy under 5 years of age. If your child is thriving on a gluten free diet, I would leave her on it for now. Or you could put her back on gluten and pursue an endoscopy and biopsy. Just be sure to get someone who knows how to do the biopsy properly...
  15. lbsteenwyk
    Many people have secondary lactose intolerance when they are initially diagnosed with celiac disease. This is simply because they are malabsorbing and thus not digesting lactose. It may be beneficial to avoid dairy or try lactose reduced products for several weeks. You should be able to reintroduce dairy once your child's intestines have healed.
  16. lbsteenwyk
    There are lots of gluten free protein bars that are portable - though they can be expensive. Here's a link to a discussion about protein bars. I've seen other discussions on this topic here as well; you may want to do a search. Open Original Shared Link How about Hummus and tortilla chips? You wouldn't need to refrigerate the hummus and it is very...
  17. lbsteenwyk

    ARCHIVED Registered Dietician

    lbsteenwyk replied to JT-PDX's topic in Doctors

    If you are looking for an RD, I would be sure to see someone who has expertise in this area. Some dietitians are members of Dietetic Practice Groups. There is a sub-specialty of the Medical Nutrition Practice Group called Dietitians in Gluten Intolerance Disease. The American Dietetic Association has a referral service for locating RDs. Open Original Shared...
  18. lbsteenwyk
    Hi Jen: I live just South of Asheville. Now I'm kicking myself for not investigating the restaurant scene a little more closely; we just don't take my daughter out to eat at this point. There are TONS of unique and interesting restaurants in downtown Asheville; most of them are small enough that I think they would be very accommodating of your gluten...
  19. lbsteenwyk
    I'd bet anything you got glutened from the restaurant food. Cross contamination can happen easily in restaurants, even if you think the food is gluten free. If you doctor thinks you have celiac, why doesn't he just go ahead and get the blood work now?? I would insist on it. You don't need to continue to go through pain while he does all his other...
  20. lbsteenwyk
    Thanks for the link. I've bookmarked the site.
  21. lbsteenwyk
    Some hospitals do inexpensive bone density screens as a community service. Check with your local hospital to see if they offer anything like this.
  22. lbsteenwyk
    Welcome to the board! YOu will find tons of great information here. Let us know how we can help
  23. lbsteenwyk
    Your son sounds like he could have celiac disease, especially given your father's diagnosis. Does your son have any other of the common symptoms in children, such as underweight, poor growth or a distended/bloated tummy? Any unexplained vomiting? My daughter's stools were very pale and smelly- pale colored stools can be a sign of fat malabsorption which...
  24. lbsteenwyk
    I'm so glad you found a supportive doctor! Sometimes you just have to shop around . . .
  25. lbsteenwyk
    Are you urinating a lot, too? Excessive thirst and frequent urination can be signs of diabetes. Type 1 diabetes is linked to celiac disease. Maybe you should get your blood sugar tested?
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