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Ivyblaze

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  • Jen1104

    Jen1104

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  1. I'm in same boat in Norman! I wonder how many of us there are.

    I'm from norman also. And like many of you dealing with this on my own so far. I have yet to find a dr other than my dentist willing to listen to my concerns. I am preparing to go Gluten-Free but was hoping for some validation before doing so. Although, I am hoping that my GYN will listen even though this is not their specialty but this disease does affect fertility, hormones, cysts etc...so I am hoping he will listen and order the tests. It is good to see others here in the same area that I am in!

  2. WOW what great lists to have! These are actual normal foods laughs. I already eat a lot of them so now i don't feel so bad either....It can be a daunting process starting out....my hubby is just upset because now we wont be having Kraft mac and cheese all the time. He's such a big kid but I love him :) Are Gluten-Free pastas available at walmart too or do I have to go to a health food store for them?

  3. Funny note: my mother used to tell me that she craved veggies and fruit with me but bread made her sick when prego with me. Laughs....she used to find me in the garden munching too Laughs. I just know that he will get it but his family might not so I will just have to depend on him to speak up for me....his mom listens to him :) strangely we live on a farm and I enjoy everything but being around the hay lol

  4. You are correct not a single person has ever been tested in my family.....not to mention I forgot most including my mother had thyroid problems and her gall bladder removed, and come to think of it her teeth were declining too, and Four of us have asthma. not to mention I am allergic to hay, wheat dust, pecans etc...the only thing they have ever told me was you have allergies take these shots one in each arm for four years and you will be fine. I have seen 8 immediate family members die in 4 years mostly my maternal side of my family and my mother 52, aunt early 40's, grandma in early 70's, grandpa in late 70's. All I know is my gut burns constanly and the cramping is almost unbearable at times...I do not want to die early too.

    I happened on this by total fate...i was watching a show about celiac disease and I sat there in tears thinking oh my god those are my symptoms, those were my families symptoms.....that is how I ended up here. Strangly when I was hospitalized for 5 days they had me on almost no food I got better. Rice, beans, banans, jello etc. They released me and told me I was fine. I will be requesting a celiac panel soon....Any ideas on the costs of that?

    Thank you so very much! I cannot even begin to tell you how much. Now how in the world do I explain this to my husband if this is the case...he knows my symptoms but just figured that is they way I am because for almost 8 years that we have been together this is how I have been running to the rest room after I eat and having D violently and then days no BM at all. How do you explain this? He is a southern farm boy...fried, meat, potatoes and bread!

  5. I almost have to have a diagnosis...not for me but for my husband. I have had so many problems myself that I think at this point he thinks I am a hypocondriac laughs. How many times can a person go to the Er because of abdominal pain and be sent away without any reason as to what started it. Only to come home and have to tell my husband that they couldnt or wouldn't figure it out. No insurance means no help sadly enough. His family fries everything and are very bread loving people so i really have to have something to back me up or I get a guilt trip for refusing food.

  6. Neroli,

    Jeez where to begin....Family history I suppose...My Mother's side of history is all I know...the women in my family have depression. There are also several ADHD people, Anxiety, diabetes, both rheumatoid and osteo arthritis, Lupus,

    My Maternal Aunt has ulcerative colitis (still alive) my maternal grandmother died of colon cancer, as well as 9 others, My Grandfather on mothers side had severe reflux, My second maternal aunt (deceased) died from Malignant brain cancer she had lupus, breast cancer, brain cancer and other auto immune disorders, My maternal cousin had one child and now is infertile (does not ovulate properly) severe depression and other problems, My mother (deceased) osteo and rheumatoid arthritis as well as others in the family, lactose intolerant, her tests frequently showed malnutrition even though she was a good weight, She died from unexplained circumstances. My grandmothers stool smelled horrible I hated going into her bathroom.

    Now me...I haven't been tested yet but I have in the past been diagnosed with diverticulosis, I have had several abdominal cat scans, been hospitalized for abdominal pain for 5 days, have D constantly and if not that then constipated for days, my stool smells like my grandmas did, it looks like fat floating, I have numerous allergies to everything including MSG. they did not fully test my food allergies, I have gas alot, joint pain that is getting worse, abdominal pain alot, ADHD, anxiety, I have trouble gaining weight but can lose it over night, anemic alot, and so far cannot conceive. My face breaks out horrible, i have very itchy skin, my teeth are all of the sudden getting cavities when they didn't before. I'm sick a lot and tired all the time.....I'm 29 years old and it just gets worse as I go along.

  7. I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

    Is this test 100% accurate?

    Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

    Thanks!

    Gary

    Hi Gary! I'm from Norman so it is nice to see others from Oklahoma. I am new to this as well I wish I could be of more help with doctors and such but I did want to say hi.

  8. Check asian markets for the flours and starches. They are often cents per bag. I get white rice flour, tapioca starch and potato starch at ours. They happen to be from Japan, Korea and Thailand. Sweet rice flour, also called glutinous rice flour is also available. I have to check the tapioca starch carefuly because the market near us sells two grinds-one very fine and the other a bit too coarse for our baking.

    Ok I will have to travel to Oklahoma City for that but thankfully that is not too far. I just cant beleive the price of some of this stuff....if it says gluten free on the label they charge quadruple for it....Such a rip. I am soo new to this....I have many of the symptoms and most of my mother's family did too...unfortunately they all died very young including my mother so I am desperate to not follow suit. I will be being tested soon but I am getting geared up to begin Gluten-Free....thank you for your help

  9. Joint pain is a symptom correct? by saying that is it merely pain or swelling as well? Also does deginerative arthritis have anything to do with celiac....?

    My mother had deginerative arthritis as well as other symptoms related.....

    I am not even thirty and having problems with my joints and other symptoms as well....Is this celiac related?

    Thank you

    Deedra

  10. I can't tell you how much the blood tests would cost, but seriously, you don't need them. Change your diet and see if you feel better. What you eat is under your control. You will undoubtly get a variety of opinions on this, but mine is - why pay for something that you can do for free?

    I was looking at the cost of gluten free food and man it is expensive stuff! I looked at my local grocery store and they sure did not seem to have much available. I know there are more options on things I can try and have than what they showed surely. How long do you think it takes being on the diet to see results one way or the other? If it helps me I will definately stick with it...

  11. I think that this belongs in the pre-diagnosis forum, so I am moving it there.

    Your symptoms are consistent with celiac disease, but could also have other causes. Since testing is not an option, I would suggest that you try the gluten-free diet and see what happens. If your health improves on the diet, you don't need a doctor with an official diagnosis to confirm what you body is telling you.

    Thank you sooo much! What are the general costs for the blood work to be done? Does anyone know? At this point I am just glad to "maybe" have an answer. My significant other has no health problems and he loves anything fried....I'm so afraid I am going to be fixing two seperate meals every night which is more cost and more time spent. Can you make traditional southern foods celiac friendly? Are gluten free foods more expensive than regular?

    At this point I have so many questions and few answers. Last night we had chicken fried steak, baked potato, macaroni and cheese, green beans and hot rolls and I paid for it....almost immediately after I was in the bathroom and uncomfortable the rest of the night....today I am still paying for it...

  12. Well I found you thanks to a good book called the Gluten-Free diet. I have read the entire book in a day and found hopefully many answers.

    My history is I have had abdominal pain for years and it is only getting worse. I have had numerous cat scans and was even hospitalized for 6 days a few years ago....noone could figure it out! My maternal aunt was recently diagnosed with ulcerative colitis, my maternal grandmother died from malignant colon cancer, there are numerous people on my mothers side whom have died from cancers, they had arthritis, thyroid issues, heart issues etc.....My mother died 5 years ago almost from unexplained issues. My family has issues with depression, anxiety, and ADHD, diabetes.

    I look back and remember my grandmothers bathroom smelling horrible when she was done in there a smell that would linger. One of my maternal aunt's now deceased, had several autoimmune disorders.

    I have lived with diarrhea, constipation, pain, fatigue, horrible gas, headaches, joint pain, smelly stool exactly like my grandmothers, and all the sudden my teath are in decline. I am needing to get several fillings. Also my concentration is awful and I spend great amounts of time in the restroom almost directly after eating. Sometimes it feels like my intestines are on fire.Also I have been trying to have a baby with no success for over two years, my cousin has one child and has been unable to conceive again and has been trying for over 10 years now.

    I'm allergic to a lot of things, MSG, Grain dust, mold, mildew, pollen etc... They never tested me for food allergies other than the MSG. I have lost 8 immediate family members in the last four years and my own health I feel is in jeopardy. Could I have Celiac disease? Is this possible? Any help would be great. I am currently unemployed without insurance so testing at this point would not be an option.

    Thank you,

    Deedra in Oklahoma

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