teresasupermom

I agree with the others. I would have the blood test done to screen for it. If it comes negative you can always do a gluten challenge to see if she's intolerant to gluten, but if it's positive it will be easier to get accommodations and such at school. For me there were just a ton of reasons to formerly test. I have also had most of my other kids screened...

Has she had her antibody levels rechecked? Our GI doc has been checking every 3 months to see that they go down. To our surprise my dd's levels initially went down, but have steadily been going up. We have had to really change things more than I thought and are still trying to pinpoint all the sources of glutening. We've found a few things in the past...

We are going through similar problems with my dd. Her antibody levels have progressively gone up her last 3 checks in spite of us being stricter and stricter with things. We at first were only having her meals gluten free, and then the whole house has gone gluten free. I would start looking at that. For us I believe her primary problems have been cross...

I have 2 kids with type 1 diabetes and 1 child with celiac disease. None have both. We just follow the same meal plan for everyone. I also am an identical twin myself so I've read up a little on this. Your other twin is definitely very high risk for getting both type 1 diabetes and/or celiac disease. My other non celiac kids do eat gluten at school,...

Yes, we've found a couple places that she has been being exposed to gluten still so we're still working on this. She's getting contaminated out of the home I think, but still working on pinpointing all the sources. It's very frustrating.

Those test strips are too expensive for that. I am only testing things that we eat regularly that I am suspicious of. My family goes out to this restaurant every week and my husband was not convinced that it was contaminated. Since we haven't been able to pinpoint the source of why my dd's antibody levels were still up I ordered 5 test strips to test a...

French Meadow makes some pretty good gluten free frozen cupcakes Open Original Shared Link You can check out the store locator to see if they are available near you. If I get in a pinch on time I will pick those up. My dd likes Kinnikinnick cookies too. We are lucky that there is another kid in her class that has major food allergies. My dd goes to a small...

My dd hates lunch meat or any meat that is cold at all so that eliminates a lot of the roll up type foods or lunchable ideas. We do a lot of leftovers from dinner that get popped in the microwave for her. We also send in gluten free chicken nuggets which also go in the microwave. The only thing that she will eat cold is pb&j on Udi's bread.

Interesting that you post this. We ordered EZgluten test strips so we could test our favorite breakfast restaurant. We eat there every Sunday after church and I have been suspecting that my dd's food was contaminated. They have shown me the food labels and even gone to the trouble of cooking her food in a separate skillet. (She was eating hashbrowns,...

I agree with the advice above. I'd start with doing as much naturally gluten free options as you can. We buy one new gluten free food to try a week. (Well we aren't doing that much any more, but that's what we were doing.) We wound up throwing a lot of food out at first. By doing the naturally gluten free stuff you give them a chance to forget what gluten...

While I get what you are saying a lot of the kids are having poor growth and poor weight gain. My dd for example hasn't ate dinner lately because she's so darn picky. She will just not eat. Some of these kids will choose not eating at all and they don't all eventually eat. Some will just lose weight and become more malnourished.

We are still working on my dd gaining weight. She has not gained any weight in a year and I am very concerned about that. She is 7 soon to be 8. She has been completely gluten free for a year, but her antibody levels are still high indicating she is getting contaminated somewhere. Was she tested for antibodies at all? For us the antibody check has been...

I agree with the others on getting a diagnosis if you can, especially if he is fighting you on this. If he has celiac then he will have to accept this no ifs, ands, or buts. Without a formal diagnosis it is going to be harder to keep him safe from gluten with others working against you. If you have celiac he definitely is at risk for it. As far as keeping...

I've read a bit on this as I have a 6 month old. There are some new studies out saying that the best time to introduce gluten is between 4-6 months to reduce the risk of celiac. Because our whole house is now gluten free I am finding it hard to do that, but I have been trying to expose her to gluten. This is a very personal decision so I don't think there...

I can sympathize on this one. My dd celiac antibodies were not going down so we finally made the switch to the whole family being gluten free almost a month ago. We have a large family as well - 7 kids, 6 living at home. I got picky eaters to boot so it's been interesting to say the least. You don't realize how much you live on bread and pasta until you...