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Latest Celiac Disease News & Research:
Everything posted by zergcoffeebean
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ARCHIVED How Many People Are Actually Self-diagnosed?
zergcoffeebean replied to no-more-muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Self-diagnosed with my doctor agreeing. We were going to do the blood work and biopsy, but when I tried to eat gluten again to get ready, I was completely miserable. So I didn't bother. Nothing could MAKE me go through that again. So here I am, going almost a year gluten-free (though I've only gone 3 months without CC, simply because I live in a house... -
ARCHIVED What Are Your Symptoms When Glutened?
zergcoffeebean replied to catarific's topic in Coping with Celiac Disease
I will feel a little light headed, or slightly drunk/brain foggy within about an hour of eating something containing gluten. However, I rarely notice this until the next day when the symptoms are much worse. When I go to sleep, I get severe nightsweats, the completely soaking my bed kind. I wake up in the throws of a severe fibro flare up and I typically... -
I'm sorry to hear that. I have such bad luck when I go to eat out. So I just don't do it anymore. Pineapple?
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ARCHIVED Hypoglycemia And Being Constantly Hungry
zergcoffeebean replied to zergcoffeebean's topic in Coping with Celiac Disease
Thanks for the link. This is something I tried a few years ago. It was a very very tiny component of my migraines. And only red wine (or beer) would trigger a migraine attack for me. -------------- Thank you for your very indepth and thorough reply Takala. I have read it a few times. I've got this thread bookmarked. I'll admit I probably should... -
ARCHIVED Hypoglycemia And Being Constantly Hungry
zergcoffeebean replied to zergcoffeebean's topic in Coping with Celiac Disease
Thanks everyone for the replies. I'm still reading through them and soaking them up. I just wanted to let you know I am paying attention lol. A note on caffeine. I drink it because it helps with migraines. But if I drink too much (like in a cup of tea or coffee) it makes me feel all shakey and anxious. It's really uncomfortable. I'm not sure why... -
I second that. It sounds delicious.
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ARCHIVED Hypoglycemia And Being Constantly Hungry
zergcoffeebean posted a topic in Coping with Celiac Disease
So I've been gluten free for a while. I think that I get hit with low levels of gluten from the things around me. I haven't got that down yet. But my main concerns at the moment are feeling hungry all the time and getting hypoglycemic. I have had issues with low blood sugar, usually when having a lot of pop and not eating anything, for a long time. ... -
I know my situation isn't exactly the same. But I'm going through something simmilar. Only I get nauseated when I go hypo too. I don't know what to do about it. I've got like no food at home and I have to eat contantly. I don't understand. And I'm so hungry and sick feeling and there is a plate of banana muffins my mom made on the counter that I can...
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I have had chronic migraines since I was a child, and that of course comes with a whole closet full of neurological symptoms, so it's difficult for me to seperate what is caused by gluten and what is caused by my migraines. I have noticed when I am glutened though that I have sore legs, muscle spasms when I try to sleep, and it makes it very hard to sleep...
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ARCHIVED Getting Fed Up And Tired Of It.
zergcoffeebean replied to conniebky's topic in Coping with Celiac Disease
I'm sorry that you're feeling so rotten. I haven't tried chex cereals, but I have read on these boards that many people do react to them. Might be a good idea to cut it out for at least a little while to make sure it's not what is making you sick. Condiments, especially shared items with gluten eaters have such a high risk of cc, it's best to have... -
ARCHIVED 48 Hours Gluten Free, And Daughter Wants To Eat All The Time
zergcoffeebean replied to kbidarch's topic in Parents, Friends and Loved Ones of Celiacs
I have to second this. I'm still starving and I'm on month 4 now. I am ravenous all the time. But it does give me a good indication if my food has been contaminated with gluten, my appitite just shuts down. For me, my first worry about that was gaining weight. I am small, I have a small frame, so it was a little odd at first to actually experience the... -
I was given the IBS diagnosis when I had my colonoscopy and gastroscopy they didn't see anything indicative of anything else. So there, I got IBS. That was when I was 16. So, 9 Years ago. The only medication that ever seemed to help was buscopan. Nothing else seemed to do anything. I tried diets and food elimination. (Not going gluten free though, I...
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ARCHIVED Struggling With Coming To Terms With How Stupid I've Been
zergcoffeebean replied to williamsburg000's topic in Coping with Celiac Disease
As far as I know, I've been sick with something since I was 12. Because that's really when my ibs, migraines, and general issues all sort of started. I'm 27 now. It takes a long time for us to figure out what is happening to us, and even longer for the people who are just listening to us. One thing that really helpped me was mindfulness training. I am... -
THIS. I tried it... for three days. That's it. It got so bad I couldn't eat, I could barely walk, and I couldn't sleep (well, not without help). If you find that going gluten-free makes you feel better, healthier, then there is your answer. It was so horrible, I just figured, why go through all that suffering if you don't have to? Best of luck...
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ARCHIVED Does Anyone Else Get Sick Of Foods Easily?
zergcoffeebean replied to KevinG's topic in Coping with Celiac Disease
I have been told I'm one of the most picky eaters that my family and friends have encountered. Before going gluten-free I would tire of foods even after just having them once in a longer time span. Now, it takes a little longer. I can have the same thing about six to eight times in a row and only then do I get sick of it. I think it is partly because... -
ARCHIVED Gluten Free For Me? Or Am I Just Off My Rocker..
zergcoffeebean replied to zergcoffeebean's topic in Coping with Celiac Disease
My family uses Hys Seasoning salt, and Montreal steak spice sometimes (clubhouse brand I believe). I've read both of the labels, they seem fine. And when I was first going gluten free they were using that and I felt better. Can MSG sometimes be a problem? (I hope not, I love that stuff). We have lots of kitchen cleaning cloths. I find though I have... -
ARCHIVED What Would You Do...?
zergcoffeebean replied to Ruthie13's topic in Coping with Celiac Disease
I agree. It's great that you are helping out. It's awesome. But you can't help anyone if you're dead/malnourished/sick/tired/etc. There are lots of people that need help, lots of causes to be a part of. Going gluten free doesn't mean these things can't be a part of your life. But you gotta look out for yourself first. -
ARCHIVED Gluten Intolerance And College Meal Plan -- Your Two Cents And Experience Needed
zergcoffeebean replied to Mtb's topic in Coping with Celiac Disease
It seems to me, that you are doing a pretty good job of trying to change some of the administrative issues involved. Which is a great step, not only for yourself but for other people who are celiac/gluten intolerant. Unfortunately those things wont help you RIGHT NOW. Does your meal plan allow you to purchase items from the convienance stores on campus... -
ARCHIVED Gluten Gluten Everywhere
zergcoffeebean replied to Indiana Joan's topic in Coping with Celiac Disease
Everyone in this topic so far has made some interesting points. I think that it is easy to assume that everyone around you whom is experiencing something similar to what you are going through that the conclusion must be the same. Even so, I have found that most people around me, aren't interested in feeling better until it's *their* idea. Which is fine... -
ARCHIVED Gluten Free For Me? Or Am I Just Off My Rocker..
zergcoffeebean replied to zergcoffeebean's topic in Coping with Celiac Disease
I keep thinking that it is this that is the problem. I make all my own meals save for supper, which my mother usually makes. At first the meals seemed fine, but as time goes by I seem to be getting sicker. Perhaps it is my family being more careless and/or it is the cookware they use. My mother usually cooks with a non-stick pan, a nice big one with handles... -
ARCHIVED Gluten Free For Me? Or Am I Just Off My Rocker..
zergcoffeebean posted a topic in Coping with Celiac Disease
Hello Everyone. I've been reading this community for quite some time. Since I decided to go gluten free actually. I just want to take a moment to thank you all for your informative posts and kind words you have given others. Before I really get into things, I should probably give you all a bit of background information. I'm 27, I live in Canada...