sillymomx3

My son is in 3rd grade now but was dx in kdg. I always provide a stash of gluten-free snacks or treats for him so the teacher will have something on hand. I also visit the the csaceliacs.org website and click on the kids link and print the letters for school staff. They have them for teacher, sub forms, principal, etc. I print a new set every year. As...

Ehlers Danlos is a connective tissue disorder, not autoimmune. It is an actual genetic defect in the make up of collagen in the body. I have EDS as well as Celiac Disease, my oldest son has both also. My daughter has mild EDS and carries the genetic marker for Celiac Disease. My youngest son has severe EDS, hypotonic cerebral palsy and nonverbal learning...

I have Ehlers-Danlos and Celiac disease. I have three children, my oldest has celiac, my youngest has EDS. My maternal grandfather (had), mother, sister, niece have Ehlers- Danlos. My father had celiac disease. My mother, sister, niece were all negative for celiac. Ehlers-Danlos, although it has neurological effects is a connective tissue disorder, a...

There is an article in the April 1st, 2006 issue of Family Circle titled "Stomach Pain S.O.S." I was looking through thinking they had to mention celiac disease. Then, lo & behold under a paragraph titled "Food Allergy Alert" there it was. I was so . I get so frustrated when it is refered to as an allergy. Just wanted to share.

Yes, I knew. He was dx in Nov. of 04. He was very colicky as a baby! He had RSV at 13 months which is a real health set back for any baby. Then he was hospitalized again at 18 months and at about 2 1/2. He's just never been much at fighting infection. He also has asthma and chronic ear trouble (including, ear infections and tumors). He started in with tummy...

My 7 year old, who has celiac, had it about a month ago. One minute he was fine, the next minute one very sick little boy. Christi

I too have degenerative disc disease, herniated discs and the schmorl's nodes or osteophytes. I am only 34. I also have scoliosis and Ehler's Danlos Syndrome. I have asked if it was related to my having celiac disease and they say with everything else I have going on, how to tell? But when you think of how long we all went along without absorbing our nutrients...

Just posted to your other post about EDS. I have no connection that I have noticed to gluten & dislocating. However, my son has to wear smo & dafo braces to keep his knees from dislocating. I have been so used to it all my life I just pop myself back in & go. Best of luck & as I have to tell myself on many days... Don't get glutened! Christi

I have Ehlers-Danlos type 3 with overlapping symptoms of other types. My 2 year old son has been extremely hypotonic (floppy) since birth. He was dx with Ehlers-Danlos type 3 at 16 months old. He also has extreme overlapping of symptoms. It was him that led to my dx. My niece, sister, mother, and maternal grandfather (passed) all have EDS 3 also. My MGF died...

Thanks for the reply. As of now he does not. He may be refered to one after we see a new ortho. He currently has a great pediatrician, an amazing ent, neurologist (so/so), a wonderful therapist staff for physical, occupational and speech. We were scheduled to see a geneticist this spring, but of coure insurance will NOT pay. So now we're in touch with Shriner...

I am in hopes that someone might be able to give me some info. on where to look for research on neurological and metabolic disorders due or linked to celiac. I and all 3 of my children are celiac. My youngest son, now 14 months was diagnosed with hypotonia (low muscle tone) at 2 months of age. Since we have found out he also has hypermobility syndrome...