Jump to content

Mizzo

Advanced Members
 View Profile  See their activity

  • Posts

    506

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Mizzo

  1. Mizzo
    My daughter had severely atrophied villi when diagnosed. In 2 weeks her symptoms significantly reduced but it took almost 3 months for the majority to go away. It does depend on each persons damage and whether they are high or low symptomatic . I think its fair to say give it at least 2-3 months to see the majority of symptoms reduce. FYI playdoh was...
  2. Mizzo
    try this recipe , its he best homemade rollup / lavash type bread i have made Gobsmacked rollup bread - no rise recipe Ingredients 1 cup fine brown rice flour 1/2 cup tapioca starch 2 Tablespoons sugar 2 teaspoons xanthan gum 1 Tablespoon instant yeast 1/2 teaspoon salt 3/4 c. water 1 teaspoon cider vinegar ...
  3. Mizzo
    BTW when they do the endoscopy the child is put to sleep with a mask first before inserting the IV. That helped a lot for us. We started with my 7 yr old flailing and kicking the nurses who wanted to draw her blood to 4 yrs later her saying , ugh, not again. it does get easier, and in life she will need to get blood work done at some point . Dee made...
  4. Mizzo
    We have been gluten and nut free in school for years. However, my DD can have rice so eliminating that certainly makes it very challenging. Do you have someone with nut allergies in your child's classroom ? If you don't , you may have lotz of wiggle room with the (made in facility rule ) if you do you should start with a request for change in classroom ...
  5. Mizzo
    Honestly you will be overwhelmed with this for awhile, but, you will figure it all out and no matter what your child will get better. Ask any and all questions there are tons of great idea's here. You are not alone !!!! We have all experienced mistakes and wins with our kids, ourselves and our families.
  6. Mizzo
    I personally would say NO to all Gluten containing items and supply my own mat to be stored separately. Cross contamination is a real threat in the classroom. My 504 plan is clear on this and I have even talked to the teachers about having kids wipe desktops top to bottom as when they will wipe side to side and they were just flinging the crumbs across...
  7. Mizzo
    My daughter was dx through blood work then confirmed with an endo at 7 yrs old. You need to be back on gluten for approx 6 weeks. good luck
  8. Mizzo
    Well I don't know of any relationship between Asthma and Celiac ., but that doesn't mean it can't exist. There are levels of allergens in different breeds of cats and dogs . The Siberian and Oriental shorthairs cats don't affect 75% of cat allergy sufferers and the Balinese, Javanese, Devon and Cornish Rexes and Sphinyx are also less allergen. Many Terriers...
  9. Mizzo
    Everyone is different for us my DD was 7 at the time with completely atrophied Villi . Sleep -1-2 weeks Bowels - mildly better in 2 weeks but she had underlying issue's with Lactose( we didn't realize for 2 yrs) and a undiagnosed Thyroid problem Behaviors - they got worse before better , almost 2 months sensory issue's - about a year Gassiness - ...
  10. Mizzo
    Migraines are certainly common. Smartwater helps or taking a magnesium tablet and eating a banana a day with PLENTY of water daily can help too. Keeping my DD super hydrated with a magnesium tablet 3 x week reduced her migraines by 80 %, but that's us!!! You can try switching out Lactaid for regular milk and use hard cheese like cheddar for a bit...
  11. Mizzo
    not so healthy but easy: Fruit by the foot Fruit snacks Tortilla chips n salsa gluten-free Nature valley granola bars Frito's plain or BBQ Dorito's nacho cheese or cool ranch Utz potato sticks, cheese balls, chips
  12. Mizzo
    Ahhh Girl scouts : the parent volunteer run program I have had mixed responses with this. Our passed troop leader did little to nothing to accommodate a gluten-free or mostly gluten-free environment for the troop mtgs or day events. New leaders this year so we will see. On the camping events and overnighters we have had really exceptional help...
  13. Mizzo
    If you have the option of volunteering for lunch duty for 1 or 2 days, that can give you the insight you need regarding cross contamination at lunch. My DD is 10 and in 5th grade and they have switch classes. If your girl has the same make sure the switch desk is being wiped down after snack time. Also a snack/lunch mat brought from home will dramatically...
  14. Mizzo
    My DD is entering 5th grade and I just finished our 504 plan which we will present in a couple of weeks. She is also dx hashimota's disease, overweight and doesn't eat any veggies except carrots and only 4 fruits ,which is proving difficult if damn near impossible to control her weight and constipation issue's. I have included in my 504 the option to use...
  15. Mizzo
    My 10 yr old DD is 3 yrs gluten-free with a dx of Celiac. This year she was also dx positive Hashimota's with elevated TSH levels. We started Levothyrozine 5 weeks ago. So far all is great. She is not as tired , no more leg pains, better attention span and less anxiety . In addition her 4wk followup shows perfect TSH levels. It all depends on the person...
  16. Mizzo
    For the house: in mason jars put in your favorite pancake/waffle or pre-seasoned rice recipe (add liquids when you get there) I would pre-clean/cut and marinate my own meats and bring them frozen ( easy enough to defrost and cook later) one night try a do- it- yourself baked potato bar with all the fixins another time try taco night you can even make...
  17. Mizzo
    What is Alig ?? Why might Levothyroxine not work ???
  18. Mizzo
    she started Thyroid medicine 5 days ago
  19. Mizzo
    Hi all, My DD has been gluten-free for 3 yrs. We have prior to and still currently are dealing with excess stool in the colon. We have been told to treat with Miralax and he occasional weekend of Exlax "clean out" . The Dr's keep saying its safe to treat her with miralax daily but I don't feel good about it. Anyways, to add to her problems she has been...
  20. Mizzo
    As far as restaurants go I ALWAYS call ahead and get their kitchen practices otherwise you leave yourself wide open for disappointment. I have dealt with this attitude with Girl scouts leaders, parents and teachers. There is little a person can actually do except explain in the most clear of ways the situation and hope for the best. example :at an...
  21. Mizzo
    Well firstly and most importantly big CONGRATS on the weight gain. Based on your numbers she really needed it and to gain +70% of her weight is fantastic. Quick question did you say completely gluten-free in home ? because you also said she has her own cutting boards , toaster etc... so is the home 100% gluten-free ? If not there is always a way...
  22. Mizzo
    We are following up with a Neuro and Rheumatologists in May (earliest appt) but since none of the Dr's want to discuss food related potentials (I think because they don't understand them) I was curious if there are others out there with this happening. In the meantime I will plug away at the food diary and watch out for things. BTW we had 2 Dr./tests...
  23. Mizzo
    My 10 yr old (Celiac and gluten free 3 yrs) has been experiencing these symptoms along with occasional mood swings. the headaches and body pains usually go together and the low grade fever ( 99.0- 99.5) has been intermittent. She sometimes has fast mood swings and anxiety too. She was dx with Hashimota's disease but her TSH level went from 8.8 to 5....
  24. Mizzo
    It's my understanding, when the teeth are ready to fall out the roots have eroded. The adult teeth that are coming in cause the roots to be reabsorbed into the body. That is why when baby teeth fall out you NEVER see a root on them. Maybe the new ones are ready to come in ??
  25. Mizzo
    You can get gluten free graham crackers from Kinnikinnick called Smoreables and buy or make the remaining ingredients. FYI the gluten-free crackers are about half the size of regular so it makes a small house
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.