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Lesliean

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lesliean

  1. Lesliean
    I wouldn't consider this a complete blood panel. I wouldn't rule out Celiacs based on this panel. Did the gluten free diet help you? What are your symptoms? See: https://www.celiac.com/st_prod.html?p_prodi...-44105346207.ce I'll wait for your post. Leslie
  2. Lesliean
    Tori- My heart goes out to you. It is terribly negligent that you are treated this way and you have done an admirable job of learning on your own about what conditions might be effecting your health. It can be a lot easier to diagnose ourselves than to get the doctors to do a complete job of it. Oh, I hate to sound so negative but what is the big deal? The...
  3. Lesliean
    I think it is incredibly frustrating to have to deal with skeptical doctors and to bring in reams of professional articles and abstracts that they generally disregard, especially considering Celiac disease runs 1 in every 130 people and is only diagnosed in 1 of every 1000. Combine this with the terrible side effects of not being gluten-free like diabetes...
  4. Lesliean
    Lots of people with Celiac/gluten sensitivity have bruising under the eyes but I am not farmiliar with bruising there. With over 200 symptoms of Celiacs it could still be a symptom though. I hope you will run it by a doctor just in case... I had back and neck pain and was positive for osteopenia. I've been taking Citracil calcium supplements very carefully...
  5. Lesliean
    Mary welcome to the boards! Did you have blood tests done too? What tests did they do? Keep us posted on the lab results. Usually the endoscopy results have to be read in the lab but what he said so far sounds like it could indicate damaged villi. This link is on scalloped duodenum. https://www.celiac.com/st_prod.html?p_prodi...-22105382255.f0 Are you having...
  6. Lesliean
    To discouragedmomof5- For at least 7 years my periods have been 3 days long, stop a day and then pick up again for 3 days. Weird. For the last two periods (month 2 and 3 gluten-free) they have been as normal as a 20 year old (I am 48). Also gone are the yeast infections. I hope this answered your question. We all know that mood swings go with gluten too....
  7. Lesliean
    My initial presenting symptoms was reflux problems and breathing problems. What blood work did you do 2 years ago? If it was positive for Celiacs and you responded to the diet then you have Celiac disease. Maybe that would be a comfort to you to know that the biopsy tells you the amount of intestinal damage but is not always recommended now for diagnosis...
  8. Lesliean
    Thanks for the info Paula on chewable Centrum Silver. Just goes to show you that you can't be too careful of each and every product. And maybe that we can trust out 'gut reaction' to products.
  9. Lesliean
    You have to be on gluten for any testing unless it is through Enterolab. She should be tested for the following: -Anti-Gliadin (AGA) IgA -Anti-Gliadin (AGA) IgG -Anti-Endomysial (EMA) IgA -Anti-Tissue Transglutaminase (tTG) IgA -Total Serum IgA You would benefit from a gene test too. Some of your symptoms also sound a lot like lactose intolerance...
  10. Lesliean
    My blood work was negative (not the whole panel though) after just 3 weeks gluten-free. I was not going to eat gluten for 3 months to get a positive biopsy. And a lot of gluten sensitive/Celiacs are negative on the biopsy. I have complete confidence in Enterolab. They say the testing will come back positive within the first 2 years and if it comes back...
  11. Lesliean
    Missla3000- I so feel for you. Did you know depression is a major symptom of Celiacs as is fatigue and brain fog? I am glad you have a good doctor to check out all the possible reasons for your condition but everything you have said certianly sounds like Celiacs to me. When you go gluten-free you might be so happy with the results. You might find you get...
  12. Lesliean
    Assuming you are positive for Celiacs, and keep us posted , you will learn the ropes quickly on what to watch out for and what to rely on. Medicines have to be checked out (like by googling it) individually and you check out each food that has natural flavorings, carmel coloring, and stay away from modified food starch... But you start getting a trust in...
  13. Lesliean
    Kaiti, you are an angel on this board. You guide us all! Cirrus16- I am on thyroid and am tested every year. I also had a bone density x-ray because so many Celiacs have not been absorbing calcium and because so many Celiacs have to give up dairy, at least for a time, because of villi damage. If you have osteopenia or ospeoperosis you will now absorb calcium...
  14. Lesliean
    I am astounded that your doctor would have positive blood work and say you might eat gluten. That is like having the EKG and heart tests that show blockage and saying that because the patient has not had a heart attack yet they might not have heart disease. The biopsy can miss the damage or the intestines might not be very damaged-yet. It is a hard diet...
  15. Lesliean
    Dear gluten-free princess- I like that moniker a lot! Have you considered Enterolab where you can be tested in the privacy of your own home without going back on gluten and also get the gene testing including DQ1 and 3 which are now accepted by some doctors as Celiac or gluten sensitivity genes? Mine was covered by insurance and the genes were DQ1 which...
  16. Lesliean
    While it could always be something else and so its great that you have a good doctor, all your symptoms sound like those Celiacs have. I presented to my doctor with trouble swallowing (GERD), trouble breathing (vocal chord and throat swelling), coughing and clearing (increase in mucus produced by the throat as a result of the inflammation in the throat) constantly...
  17. Lesliean
    I read Centrum as being ok and Centrum Silver is what I take. I was taking a baby aspirin as well every day and found that to be the culprit as it is buffered with flour. Switched aspirin to Bayers. See https://www.celiac.com/st_prod.html?p_prodid=285 for centrum listing, Junior was listed as possibly containing gluten.
  18. Lesliean
    I know there are members with lots of experience with handling the set-backs and I remember reading about foods they go back to that seem gentle. I keep hearing the set-backs as lasting 3 weeks.
  19. Lesliean
    Hi Ally- Osteopenia and osteoporosis is present in 50-100% of Celiacs but I couldn't find the medical article right now. It is at brain.hastypastry. but they are down for a day or two more. Another article said 25% of those with lactose intolerance will have Celiac and the another that weeks after going gluten-free the lactose intolerance will go away in...
  20. Lesliean
    Judy- Every symptom you listed was one I had seen posted elsewhere as a symptom of Celiac. Like I hear reports of rapid heart rate a lot but am still not sure why it occurs. And the dry eyes could be sjogren's syndrome. And the peripheral neuropathy is so common too. Isn't it nice that they went away?
  21. Lesliean
    Isn't it like a wonderful miracle to feel all around better? Celiac can lower bone density so while the intestines heal it can help to be careful to get enough calcium. Anemia also is common as is B vitamin complex deficency, especially B12. Some people take sublingual B12. I like Centrum Silver because it is cheap and gluten-free. Some people like to add...
  22. Lesliean
    Please tell me whether or not you are eating dairy? The villi damage you refer to would have damaged the villi ends of the small intestines that are used to metabolize dairy and the main symptom of dairy intolerance is diarrhea (bloating, pain..). You might want to go off dairy for a while too, but, make sure you take a good calcium supplement like Citracil...
  23. Lesliean
    Thanks for the suggestion Ajlauer and your info Ianm. I really want to hear about all your symptoms. I said unusual at first because I thought it would be gory, but, this is Celiac.com and we expect gory. I hope everyone will share their symptoms, cus they are all important. I debate moving up my first colonoscopy because I assume that would check...
  24. Lesliean
    I was told I had vocal chord dysfunction when I really had vocal chord inflamation due to gluten ingestion. It took 6 doctors to finally diagnose it correctly and then it was my discovery that it was gluten that was causing the symptoms. Now that I am gluten free my breathing is completely normal. I wish for you the same! Good luck, Leslie
  25. Lesliean
    I want to applaud you Audrey for taking control of your health and researching this so well. You are on your way to guiding the doctors towards the right diagnosis (whether it be Celiacs or not). We are behind in diagnosing Celiac disease (estimated around 1% has it and .1% is diagnosed) but with informed patients like you, more people will benefit and be...
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