shayre

If it's labeled "gluten free" then there is still 20 ppm (parts per million) contamination allowed, though I am SURE that some don't test and are much greater. If it is "certified gluten free" then they are allowed 10ppm. I still question testing sometimes. I react to 10ppm still. My threshold is somewhere between 5ppm and 10ppm, but 10 being too high...

Lisa...do you know anything about which labs are best to run tests? I read an article about the MD who owns Enterolab, and he has celiac disease. Other than that...I think that which labs do a better job...makes a difference. Right?

That's awesome, thank you! I have started to collect data for many of my doctors, but the infertility specialist is the first that I have approached. He is a very good doctor:) My new neurologist is more informed about gluten, because he has the same issues. He says that we are beyond medical borders at the moment. I am going to forward info to my old...

HI. My infertility specialist that we used a while back...is asking for the proper tests to order for screening his patients for celiac disease! He listened! I am not knowledgeable on what specific tests he needs to order. Does anyone knowledgeable know what I can tell him? After hearing my story since my 2 IVF procedures with him...and now my body is...

Thank you:) I do most of my shopping at Whole Foods though...does anyone have a safe organic brand that they use?

Hi! Does any other super sensitive have a safe brand of brown sugar? I am afraid to try some organic brands, because it doesn't say anything about whether it's processed in a facility with wheat, etc. I have Simple Truth and Earthfare brand in my pantry that my family uses. I am trying to make some applesauce that I can eat too:)

Need safe restaurants for sensitive gluten-free diets close to mag mile. We r here now and having trouble finding safe places. We r at the hilton on mich ave. Thnx!

I have a problem with nightshades too. I get just as bad of reaction as gluten. If I remember right, nightshades contain cytokins which can exacerbate inflammation in the body. Way true for me! Found this out from all of the fantastic people on this forum. Thanks to you all! I have not found any substitutes for them, and I just have to live without...

Thank you. We use Walgreens, and they are not usually helpful since they just read the ingredient list looking for it. I did that already, but the pharmacists can't tell me whether the main ingredient is derived from a process of gluten as secondary. Those ingredients are not required to be listed, or whether they run it on equipment that has had gluten...

Thank you for your help. I checked it, and it says Cipro, but does not list it's generic equivalents. Bummed...

Hi. I took Cipro (Cobalt mfg) last night for a UTI...and flucanozole (Ivax/Teva mfg). I feel horrible this morning!!! Does anyone know if it might contain gluten? I tried calling both mfg, but they are closed for the weekend. I am being tortured...just trying to see if it's the medication, since I'm due to take it again. Can anyone out there help?...

I feel your pain! I could not tolerate Synthroid at all. I had horrible headaches and had terrible brain fog. This was before I knew that I had trouble with gluten at all. Well, if it has gluten in it...now I know why. I react to even the smallest amounts of contamination. I put myself in the super-sensitive category on this site, and fortunately those...

Hi. I was in your shoes, and it took me a long time to figure out my issues. Everyone is different. I happen to fall into the "super sensitive" category. Which means that I can't eat any gluten-free premade food that doesn't test down to 5 ppm, and that's rare. I can't eat gluten-free products that even test down to 10 ppm. For example, I can eat a...

I called a couple of coffee manufacturers after I first went gluten free...I was grinding my own beans at the time. They told me that they could not assure me that the beans were not cross-contaminated. They said that the beans might be hauled in the same trucks where other grains were hauled or stored. I asked if they rinse their beans at all...they said...

I am definitely interested in more food ideas, so I will email you sometime soon. I am so unhappy to hear that others think that they just get more sensitive over time too...ugh! I was already so limited, and get glutened all of the time because it's everywhere...in spite of my obsessive carefulness too. Do we just keep getting more sensitive until I can...